Author |
Topic: For the new folks (Read 320 times) |
|
mediccpc
New Board Newbie
Gender: 
Posts: 27
|
 |
For the new folks
« on: Feb 2nd, 2004, 10:52am » |
 Quote  Modify
|
I just found this site and it is great. I have had cluster headaches since the age of 12. It has been 26 years I have been a suffer. My question goes to treatment. Currently, I do the Imtrex treatment. I ususlly get 3 headaches a day. What is available to take after the 2 doses of Imtrex have been used? In the past year I have been getting chest tightness when using Imtrex. Any other ideas? I'm sorry we have to go through this. I feel good knowing there are floks out there who know what It feels like. Thank you, and look forward to your response.
|
|
 IP Logged |
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
 
Gender: 
Posts: 4458
|
|
Re: For the new folks
« Reply #1 on: Feb 2nd, 2004, 11:18am » |
Quote Modify
|
Have you tried oxygen? Here is the link to the info:
http://www.headachesupportgroups.com/oxygen/oxygen.htm
welcome! sorry you had to find us through mutual pain..  i hope you find some success if you try oxygen...i know it has helped me since i can't do my DHE injections more than twice a day. take care!
~Lizz
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: For the new folks
« Reply #2 on: Feb 2nd, 2004, 11:24am » |
Quote Modify
|
On the left side of your screen is a button 'imitrex tip'.
Click it and you'll find a way to cut the 6mg injector dose to three 2mg doses.
The 6mg dose is for migraines. Most folks find a 2 or 3mg dose is enough for clusters.
Saves bucks on the cost and strain on the heart.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
mediccpc
New Board Newbie
Gender:
Posts: 27
|
|
Re: For the new folks
« Reply #3 on: Feb 2nd, 2004, 11:39am » |
Quote Modify
|
I did try the oxygen, I did not get any relief from that. I may need to give it another try. I am on the down side of a 5 week bout.
|
|
IP Logged |
|
|
|
henzey
New Board Junior
civics queen who beats the beast most of the time
Gender:
Posts: 81
|
|
Re: For the new folks
« Reply #4 on: Feb 2nd, 2004, 2:34pm » |
Quote Modify
|
I strongly encourage you to try taking the melatonin as a preventative for your next bout....it has worked for several folks here to the point that they have been able to really cut back on their imitrex or O2 usage. It appears that taking 3 mg of regular plus 2.5 mg slow release has worked for several but some take even more. However, you cannot take melatonin if you are on certain medications, so you need to check that out.
I have had very good luck with a low dosage of Topamax as a preventive, but pay a price with being more introverted and incredibly constipated...so am a good customer of Exlax for the time being. I do NOT recommend it for higher dosages, but some folks have the headaches so bad that these other side effects aren't so bad (it's all relative...ya know??).
|
|
IP Logged |
civics queen CHead
|
|
|
Giovanni
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 764
|
|
Re: For the new folks
« Reply #5 on: Feb 2nd, 2004, 8:08pm » |
Quote Modify
|
Hello,
Ditto on the melatonin advice above....helped me. You'll have to determine your dosage a bit by trail and error. 9mg works well for me, but might be too much for you. Also, the imitrex tip to the left is used by many people to stretch out the injections to cover more headaches without overdosing.
This company will sell you insulin syringes and sterile vials for dividing up your imitrex. You might perfer this method over using the same needle more than once.
http://www.earthstores.com/gpzservices/
Best of luck,
John
|
|
IP Logged |
|
|
|
t_h_b
New Board Hall of Famer
primary chronic since 1999
Gender:
Posts: 527
|
|
Re: For the new folks
« Reply #6 on: Feb 2nd, 2004, 8:38pm » |
Quote Modify
|
O.5mg of melatonin here.
Are you on a preventative such as verapamil? You need both preventative and abortive meds.
|
| « Last Edit: Feb 2nd, 2004, 8:39pm by t_h_b » |
IP Logged |
No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
|
|
|
broomhilda
CH.com Alumnus
New Board Hall of Famer
Ride it!
Gender:
Posts: 2533
|
|
Re: For the new folks
« Reply #7 on: Feb 3rd, 2004, 5:53pm » |
Quote Modify
|
Welcome! Sorry you find yourself here as well! I just joined a while ago as well! its been great here so look around there is so much to learn and go head to your doctor with all the info you can, its a great help! thought I had the imitrex twice a day down pat, one in the am one in the pm, timed perfectly then the beast changed on me and would come earlier in the mornig and through the night,almost laughing at me!!!! Bad, so I am trying lots of things as suggested here, look around everyone here is wonderfully wise and supportive!!!!!!!!!! Life savers! Welcome! 
|
|
IP Logged |
Suck it up Princess...
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss