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Topic: More shroom stuff.... (Read 3125 times) |
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Roxy
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More shroom stuff....
« on: Dec 15th, 2003, 2:30pm » |
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I've been dosing pretty regularly, but this week I'm going med free. I've been off the verap for about two weeks now, and going off the imitrex this week. I'm breaking out in cold chills at the thought, but I know I have to do it.
Took dramamine last night, so I made it through the night without trex. Going to dose tonight, and although I know I haven't been long enough without the trex, I'm hoping that the dosing might help me through the week.
Wish me luck guys......and if I'm not around very much.....well, you'll know why.....  .
One interesting thing. I dosed last Sunday night (hoping it would help me make it through the week in New Orleans), and I started getting hit as I was making the tea. You've never seen anybody try to make tea that fast...LOL. I just downed it quick, and it totally aborted my hit. Amazing....  . I've never actually dosed in the middle of a hit, and I really wasn't expecting such a quick abort. A very pleasant surprise.
Now for the whine.......I don't want to go without trex, I don't want to go without trex, I don't want to go without trex.......  .
But I know I gotta.
PFDAN,
Tracey
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thomas
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Re: More shroom stuff....
« Reply #1 on: Dec 15th, 2003, 2:37pm » |
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Good luck Roxy - You can make it without the trex - I'm sending you all the trex independence vibes I can.
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eyes_afire
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Re: More shroom stuff....
« Reply #2 on: Dec 15th, 2003, 2:46pm » |
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Hey Tracey,
Quote:| and I started getting hit as I was making the tea. You've never seen anybody try to make tea that fast...LOL. I just downed it quick, and it totally aborted my hit. |
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One time that happened to me too. It aborted shortly after takeoff. Ended with about 15 to 20 seconds of sharp jabs and then 'poof, gone'.
Good luck. I hope things get better for you.
--- Steve
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BlueMeanie
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Re: More shroom stuff....
« Reply #3 on: Dec 15th, 2003, 3:00pm » |
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GOOD LUCK TRACEY.
I'm still a holdout, but eventually i've gotta give it a try. Please keep posting on your results.
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Mikey
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.Re: More shroom stuff....
« Reply #4 on: Dec 15th, 2003, 3:27pm » |
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I'm dosing now myself Tracey!! So far, it's made my HAs a little worse, but other than that, not much change .
I'm so glad that you are getting some kind of relief Tracey, you've needed it, and is well deserved!!!
Wishing you all the luck with it!!!! And please wish me luck!!
Mikey,
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Hope for PFDAN, peace and safety to you all!!
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hdbngr
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Re: More shroom stuff....
« Reply #5 on: Dec 15th, 2003, 5:03pm » |
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Hang in there, we're all thinking of you! And watching closely...
V
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Pinkfloyd
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Re: More shroom stuff....
« Reply #6 on: Dec 15th, 2003, 8:01pm » |
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Ok, so you guys had to start your own thread!!! LOL
Fine...we can watch two at the same time!!! 
Jos and Hannah let us get a little extra sleep last night so.....we're ready...
and we'll be here for ya!
Good luck!
PF
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KandyKane
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Re: More shroom stuff....
« Reply #7 on: Dec 15th, 2003, 9:17pm » |
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Didn't want to interrupt the other thread, so will ask here. Should all meds be stopped prior, or just Imitrex? What about standard anti-inflammatories?
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jminmilwaukee
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Re: More shroom stuff....
« Reply #8 on: Dec 15th, 2003, 9:54pm » |
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I'd say that the evidence points to NO TREX for sure. Even within earlier studies this has been a common theme. Trex seems to hose up the works in such a way that the treatment cannot grab hold.
I do not know about anti inflams but would assume (I stress assume) that they do not react with the receptors in the same manner as trex and some of the other meds do. Someone with experience really needs to respond to that.
As for the abort thing, some have reported success by placing a small piece under the tounge (sputnik for those who remember) or chewing one like a pice of gum when getting hit.
I heard of a guy who looks like me and has a name similar to mine who had a friend who knew someone who would keep a jar of premade tea in the fridge to abort an attack by swigging down a few gulps and hitting the 02.
Heard it worked quite well 
jmin
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Flash
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Re: More shroom stuff....
« Reply #10 on: Dec 16th, 2003, 9:13am » |
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The following MUST be ceased prior to shrooms:
triptans such as Imitrex
methysergide (Sansert)
ergotamine
predisone
lithium
would also caution against beta-blockers
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HannahFroukje
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Re: More shroom stuff....
« Reply #11 on: Dec 16th, 2003, 2:44pm » |
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Hi all
Just know that I'll be here to cheer you along in thoughts as well as in writing. And )))))))))))VIBES((((((((( ofcourse .
I'm sure other cycles could be (much) easier broken than Jos' cycle, he seems to have a very stubborn one. We've made probably a mistake or two, or perhaps just bad luck ... and his cycle is very violent, so I would not expect the same problems with everyone.
It's a FACT that it works, that's important.
Good luck to you all, who are going to try.
Perhaps one day we can all have a picknick, have a beer and serve chocolate-mushrooms, mushroom egg-roll, mushroom-tea (the famous recipee) and stuffed mushrooms as desert . AND BEER!
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jminmilwaukee
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Re: More shroom stuff....
« Reply #12 on: Dec 16th, 2003, 3:49pm » |
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Just let me know when Hannah! We will have to have the get together in a park near you so we all don't end up with a picnic in prison of the world.
BTW - I have always wanted to visit your part of the world.
jmin
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TxBasslady
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Re: More shroom stuff....
« Reply #13 on: Dec 17th, 2003, 12:19am » |
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I've been thinking about you, Tracey. Wondering if you were doing ok.
Damn, I hope all goes well for you.
BTW, I enjoyed the hell outta that visit with you Saturday. You are such a sweetie! If your ears were burning, it's because Elaine and I were talking about ya!
Let me know, sweetie, if I can do anything for ya.
Love ya.........Jean
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Roxy
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Re: More shroom stuff....
« Reply #14 on: Dec 17th, 2003, 12:53pm » |
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on Dec 15th, 2003, 9:54pm, jminmilwaukee wrote:
I heard of a guy who looks like me and has a name similar to mine who had a friend who knew someone who would keep a jar of premade tea in the fridge to abort an attack by swigging down a few gulps and hitting the 02. |
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Now this interests me......I tried the under the tongue thing...didn't work real well. Maybe the premade tea will do better.
Mikey......all the best, I'm thinking of you and wishing you great success.
This chronic shit really stinks...... Thanks for the good wishes everyone....I appreciate it.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
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Flounder
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Re: More shroom stuff....
« Reply #15 on: Dec 17th, 2003, 5:46pm » |
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(((((((((((((Good Vibes)))))))))))) to you Tracey!!!!!
Have you been able to go without the Trex?
We share the same neurologist. I was curious if you have discussed shrooms with him and if so what his reaction was. I haven't seen Dr.Mathews in almost four years since starting this treatment. I have wanted to contact him and let him know about it and how well it's worked for me.
Hope things are going well
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Roxy
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Re: More shroom stuff....
« Reply #16 on: Dec 19th, 2003, 10:44am » |
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Flounder,
I haven't mentioned shrooms to him yet. He's a very ch aware doctor, but he didn't even like it when I suggested changing from the extended release verap. He basically told me in a nice way.....that I didn't know what the heck I was talking about. So.....I've learned to just smile, and keep that trex prescription going....
I need to get a little better result going for myself before I bring it up to him too. I know the treatment is helping me, I'm not at 10-12 hits a day.....but, I'm afraid he might not see it that way.
T
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Cluster_head
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Re: More shroom stuff....
« Reply #17 on: Dec 19th, 2003, 10:58am » |
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I had a very frank discussion with my neuro about this treatment. At first, he didn't want to hear anything about it. After pressing a bit he did say that he wouldn't be surprised if it could help, but since it was outside the parameters of western medicine, he would never recommend such a course. Said there were plenty of docs writing scrips for medical canibis, but he isn't one of them. He left it at that.
I threw away the prescriptions for pred and indocin on my way out the door.
I actually have a follow-up appointment this am that I won't be attending.
Its been about a month since my last attack. Its shrooms for me from now on. I have no need for a neurologist anymore. Never did much for me anyway.
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Tim
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Elaine
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Re: More shroom stuff....
« Reply #18 on: Dec 20th, 2003, 9:22am » |
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Good Luck Roxy! If I did not have this baby I would give it a try myself. I am sending prayers your way and fingers crossed for ya!
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HannahFroukje
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Re: More shroom stuff....
« Reply #19 on: Dec 20th, 2003, 11:05am » |
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I second that .
Let us know how you are doing!
Best of luck
Hannah and Jos from Holland
(not the A-team but the C-team) 
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jminmilwaukee
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Re: More shroom stuff....
« Reply #20 on: Dec 20th, 2003, 2:42pm » |
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Clusterhead,
ice to be free yes?.....enjoy!
jmin
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Flounder
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Re: More shroom stuff....
« Reply #21 on: Dec 21st, 2003, 1:07am » |
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Tracey,
He does think of himself as the premier headache specialist in the country. He definitely has a big ego.
He helped me years ago. After many visits to all kinds of quacks and there idiotic diagnoses, he new right off the bat what was going on with me. But thank God I don't need him anymore. I wish the same for you!!!!!!!!!
Or should I say thank Flash, Pinksharkmark and while I'm thanking people Ueli and Pinkfloyd as well. Also all the clusterbusters and all that have shared their experiences with this treatment. It really is an amazing thing.
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Pinkfloyd
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Re: More shroom stuff....
« Reply #22 on: Dec 21st, 2003, 4:35pm » |
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on Dec 17th, 2003, 5:46pm, Flounder wrote:(((((((((((((Good Vibes)))))))))))) to you Tracey!!!!!
I haven't seen Dr.Mathews in almost four years since starting this treatment. I have wanted to contact him and let him know about it and how well it's worked for me.
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I saw Dr. Matthews a few years ago and spent some time in Houston.
He was willing to do the RF for me but not until I went through his IV DHE therapy first. Knowing the poor results on IV DHE and the usual recurrence of the cycle, I declined his offer. It was a couple months after that, that I went the psilocybin route. I guess I owe him a thanks.
Good luck and some Merry Christmas vibes coming your way, Tracey.
PF
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CJohnson
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Re: More shroom stuff....
« Reply #23 on: Dec 22nd, 2003, 2:15pm » |
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Why do you suggest stopping prednisone before employing the "therapy"?
PFDANs
-Curtis
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Roxy
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Re: More shroom stuff....
« Reply #24 on: Dec 22nd, 2003, 5:38pm » |
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Thanks for all the good wishes. Wish I had better news from here. I haven't done real well with the 'no trex' attempt. I can handle the hits during the day, but I'm getting slammed pretty hard most nights, Saturday night it was seven shots, last night was pretty easy....only three. Last Christmas was a real high cycle for me, so it might not be the best time to try doing without the trex. It might just be one of those high cycle times.
Must be Murphy's Law....trying to go without, I end up having to use more than I have in months..... . Ho Ho Ho.....I hope my stocking is full of trex.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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