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Lizzie2
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Indomethacin
« on: Dec 2nd, 2003, 4:39am » |
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Hi...pretty new to posting here!
I just have a general question. Has anyone ever tried indomethacin wayyyyyyyyyyy back a long time ago? I know it's not a drug CHers take regularly, but I know some people go through it as a trial. I was wondering if it is the kind of drug that usually works right away or if it takes awhile to build up in your system. I've read conflicting things about that!
When I tried it, it was for about 12 hours or so, and I didn't notice a change (headache was already REALLY good too!), but I'm kinda interested in giving it another shot, and I want to know if I should give it more than a 24 hour chance. 
Of course, will have to go through the neuro to see about trying it out, but I wanted to get "popular opinion" first!
~Lizz 
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Karla
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Re: Indomethacin
« Reply #1 on: Dec 2nd, 2003, 8:20am » |
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It took 3 days for it to kick in and start working for me. It only worked for 5 months before the beast figured out what was up and I had to change meds again. 
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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fjleonard
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Still lookin' for relief!!
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Re: Indomethacin
« Reply #2 on: Dec 2nd, 2003, 8:37am » |
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Hey Liz...
Sorry to report failure...but in my case indomethecin did nothing. We tried it years ago when I was chronic (thank God I'm now "only" episodic!!). I don't recall the dosage, but we did stay on it for at least a couple of weeks. I was going to a HA specialist too, so I suspect we had the dosage high enough that it would have workewd if possible for me.
Regards,
Joe
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armstrong
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Pain is temporary, Pride is forever...
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Re: Indomethacin
« Reply #3 on: Dec 2nd, 2003, 9:52am » |
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hey lizz,
i started up on indo about a month ago...it took like 3-4 days but my headaches did something weird...i started getting them much more frequently but they only worked their way up to about a kip-3 and then theyd fade away...2 weeks ago i started taking verapamil and depakote...i also take atenolol ( a beta-blocker) for my heart arrhythmia...somehow this concoction has been working well so far, i get 1-2 ha's a day and they just come real quick and at peak their a k-3 then they fade...its nice. id stay on the indo for a while to see what it does, give it a chance. laterzzz
timmy
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The mad viking
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Re: Indomethacin
« Reply #4 on: Dec 2nd, 2003, 10:02am » |
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As far as i know "Indomethacine"does nothing for us clusterheads,BUT its a miracle-medizine for those that suffer from CPH
Indometazine is in many cases used to separate cluster from CPH when they are trying to diagnose you here
The best from Svenn
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Always Look on The Bright Side of Life
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eyes_afire
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Re: Indomethacin
« Reply #5 on: Dec 2nd, 2003, 5:59pm » |
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Hi Lizz,
Yes, I believe you need to give it more than a 24 hour chance. I've taken it in the past, and my neuro just re-prescribed it for me in case the jolts on my CH side start getting out of control (ISH possibly???). He sez it's to be taken like a preventative medication... meaning that you have to give it a chance.
Best wishes,
--- Steve
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Still around... in a brand new world now...
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pubgirl
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r.e. the comments above, my reading of the literature and board entries is the same.
Indomethacin is often used as almost a diagnostic tool as it is prescribed to rule out CPH and is very effective for this. Some CH sufferers have reported success with it, but for the most part other drugs more commonly work better.
Wendy
From Goadsby's article:
Paroxysmal hemicrania is a syndrome similar to CH except that it prevails in females and attacks are briefer and more frequent. It is absolutely responsive to adequate doses of indomethacin, which underlines the importance of not misdiagnosing it as CH.
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| « Last Edit: Dec 2nd, 2003, 6:10pm by pubgirl » |
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Lizzie2
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Re: Indomethacin
« Reply #7 on: Dec 2nd, 2003, 6:39pm » |
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Thank you for the info
For me, it will probably most likely be a rule out for CPH symptoms coexisting with my new daily persistent headache which I have had now for 3 years. Over the past couple of months or so, I started getting very extremely painful stabbing headaches around the orbital of my right eye. My headaches are always on the right side, so this is no surprise. The stabbing headaches come on without warning, and they usually do not last a very long time...maybe 10-20 minutes or so. I can get upwards of 20 a day at times, but sometimes as few as maybe 3 or 4 a day. I get them at any time during the day, but they also wake me up from sleep at night. Overall, they make me want to pull my eye out!! (A little graphic, I know...) So that's why I'm considering the indomethacin. I think it's worth a decent trial! Thanks again for the info!
~Lizz
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CJNine
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I took indo for about three weeks, twice or three times daily (I don't recall the freq). I was still popping it and the CH's kept occuring. I was warned of indo's side effects (intestinal) and sure enough got them too. So with indo I had the CH pain plus GI pain. Gave up on that one.
Hope it works for you.
CJ
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