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violet
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waking with aura, then migraine
« on: Oct 27th, 2003, 11:13pm » |
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When I am clustering, I will wake up in the morning with the aura, (shadows, confusion, dreamlike state, one sided numbness and tingling), and then after about 1/2 hour the migraine will set in. Anyone relate?
Thanks,
Vi
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floridian
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Re: waking with aura, then migraine
« Reply #1 on: Oct 28th, 2003, 8:16am » |
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When I am in cycle, I get one sided numbness and tingling (usually brain and foot).
I occasionally get aura, but not in cycle, and it has never developed into a migraine. Are you sure its aura? What do you mean by dreamlike state? My aura usually starts by a blinking spot, which turns into a blind spot, and the blind spot expands to cover most of my central field of vision. There are "lightning bolts" or squiggles in the peripheral field. If it is a strong aura, I can't really focus on anything. But I wouldn't call it dreamlike.
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violet
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Re: waking with aura, then migraine
« Reply #2 on: Oct 28th, 2003, 12:41pm » |
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With my aura I get flashing geometrical patterns in either one or both eyes, or shadows, like my vision is getting dimmer. It usually get dimmer first, then the flashing geometrical patterns start to move around, usually in a circle. Then I get numbness and tingling on one side of my body, dizzyness, and confusion, like I'm dreaming the whole thing. My neurologist says this is because my artery is in the constriction phase, and I am not getting enough oxygen to my brain. That is when I start the O2, and it helps stop the migraine. Otherwise, I get the hideous stabbing, ice pick bashing, feeling in my eye and temple, and then I just want to vomit and die. Bust sometimes when the flashing lights start I feel really out of it. The migraines are coming on more in the morning now, than any other time of day.
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Prense
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Re: waking with aura, then migraine
« Reply #3 on: Oct 28th, 2003, 7:27pm » |
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You have CH and migraines? Or do you know?
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floridian
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Re: waking with aura, then migraine
« Reply #4 on: Oct 28th, 2003, 8:40pm » |
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Yeah, that sounds like the classic description of aura, all right.
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violet
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Re: waking with aura, then migraine
« Reply #5 on: Oct 28th, 2003, 9:41pm » |
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ummm...my neuro told me they were clusters ???
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Prense
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Re: waking with aura, then migraine
« Reply #6 on: Oct 28th, 2003, 10:41pm » |
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on Oct 27th, 2003, 11:13pm, violet wrote:When I am clustering, I will wake up in the morning with the aura, (shadows, confusion, dreamlike state, one sided numbness and tingling), and then after about 1/2 hour the migraine will set in. Anyone relate?
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I do not doubt the diagnosis Violet...I asked because of your use of the word "migraine." CH and migraine are not synonymous. I was just seeing if maybe you had both or something.  Some folks actually suffer from both...that's gotta suck.
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ave
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Re: waking with aura, then migraine
« Reply #7 on: Oct 29th, 2003, 5:55am » |
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He guys, and Violet too, it is perfectly possible to have clusters AND migraines. Just ask Elaine.
Or clusters and aura's. At the moment I am getting reminders of the beast's existence, and some aura's in between. They don't however relate in timing to the painless clusters I am feeling.
Violet, you may very well have migraines too, with the aura as a wake-up call, and a cluster attack, totally uinrelated, later in the day.
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Bob_Johnson
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Re: waking with aura, then migraine
« Reply #8 on: Oct 29th, 2003, 7:49am » |
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Some docs use the term "cluster migraine" to describe a condition in which elements of both disorders are present at the same time.
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Bob Johnson
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violet
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Re: waking with aura, then migraine
« Reply #9 on: Oct 29th, 2003, 11:29am » |
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I asked my neurologist this morning for clarifiaction. he said I was having cluster migraines with aura beforehand. First the aura symptoms, and then the hideous pain and agony of the cluster. I'm sort of confused now...Don't most clusterheads have auras too? I thought that I read a few posts here about people seeing shadows before the pain hits them. And my main question was, how many of you have clusters upon waking?
Vi
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ave
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Re: waking with aura, then migraine
« Reply #10 on: Oct 29th, 2003, 11:59am » |
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Violet, shadows (of clusters) are NOT seen, they are just felt, as in foreshadowing of an attack, or as (relatively) painless attack.
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Prense
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Re: waking with aura, then migraine
« Reply #11 on: Oct 29th, 2003, 2:30pm » |
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The OUCH convention summary from this year states that some clusterheads can experience some certain "typical" migraine symptoms at some point during their CH life. This can include auras, nausea, light/sound sensitivity among others. That doesn't mean the correct diagnosis would be "cluster migraine" Two different ailments. There was a conversation on this MB not too long ago about this. You either have CH, migraines or both. I am fairly certain that those who suffer from both do not have a migraine attack and a CH attack at the same time every time. Migraines can last a long time, CH is a few hours max. You should be able to distinguish the two easily.
Yes, I have had CH attacks in the morning upon waking...not commonly though.
Shadow is a term we use to describe minor CH attacks. Those can linger for a long time. On the KIP scale (pain scale) 1-4 that doesn't develop to above a 4 in 30 minutes or less is what I consider a shadow. Above 4, I consider a CH attack.
An ER visit once yielded me a diagnosis of "cluster migraine" Idiots! BTW, I suffer none of the typical migraine symptoms...not even common triggers.
Hope that helps break it down.
Chris
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