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Topic: Shroom update (Read 608 times) |
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Henk
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Hi everybody, Since I promised to update you every once in a while: here is one.... I've been chronic for 6 years, started shrooms every 2 weeks in july '01. Did that for about half a year, stopped in jan 2002 and didn't take *any* meds ( nor shrooms) since. No more attacks, CH is completely gone, except from an occasional shadow max once per month. So either I'm episodic, or it's competely gone.... Anyway 2 years with no attacks is like a godsend....... PFDAN's to you all, Henk
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jminmilwaukee
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Re: Shroom update
« Reply #1 on: Aug 14th, 2003, 3:15pm » |
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The good news just keeps coming in!!!! Happy to hear about your success. We really should start keeping tabs on this. jmin
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Flounder
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sing sweet songs to rock my soul
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Re: Shroom update
« Reply #2 on: Aug 14th, 2003, 9:44pm » |
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Henk, That's great to hear. I think there are more stories like yours that don't get reported. Once the CH's are gone some people don't come back to the board. Thanks for the update. Since you are still getting shadows, I would take a preventative dose every six months. I think this would insure your continued success. I love to see these kinds of stories. Especially from someone who was chronic. Please keep us updated, Mitch
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5-string
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Re: Shroom update
« Reply #3 on: Aug 15th, 2003, 8:55am » |
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So let me get this straight, if I were to eat mushrooms,(the kind that grow under cow shit,the kind I used to eat to trip) every oh I don't know 4-6 months,there is a chance that my clusters will stay away next time? I know this is pretty basic info for alot of you at this point but I' m new here and was'nt expecting this. hell,I'm game. this current cycle is now entering week 5. I'm getting larger windows of pain free time now but they keep commin'. Mark.
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5-string
CH.com Alumnus New Board Old Timer
   

Nothing is accomplished without passion

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Re: Shroom update
« Reply #5 on: Aug 15th, 2003, 11:04am » |
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thanks alot forgetfulnot, I appreciate it. Mark
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tommyD
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 Anything not impossible is compulsory.
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Re: Shroom update
« Reply #6 on: Aug 15th, 2003, 1:42pm » |
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5-string - Here's a better address for shroom info. It includes the faq and a whole website full of info. Check out the archives while you're there - a great collection of discussions on the topic from years gone by. http://www.clusterbusters.com -tommyD
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www.clusterbusters.com
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Norm
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 I love YaBB 1G - SP1!

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Re: Shroom update
« Reply #7 on: Aug 16th, 2003, 9:10pm » |
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HENK POASTING Shrooms up date on 14 Aug 2003, by Henk> I read your good report, and would greatly appreciate your giving me the details of what the treatment is. I'm new to this site this week, and a cronic suffer of CH for the past 7 years. Been on Prednisone, but everyone seems to say get off it. Alternate with Indocine. Please help, your success sounds so great.....Anyone else with shrooms success??Thanks. ndmec@earthlink.net
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BillyJ.
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start reading here- http://home.comcast.net/~rwold350/ and feel free to ask questions if there is something you don't understand.Lots of people have had great success with this treatment. PF2U, Billy
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firebrix
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Re: Shroom update
« Reply #9 on: Aug 17th, 2003, 5:15am » |
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This is great news Henk! We are very happy for you! Thanks for the updates and keep in touch. firebrix
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"All that it takes for the triumph of evil is for good men to do nothing." Edmund Burke
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Flash
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In a nutshell: Yes eating a small dose of magic mushrooms every 6 months between episodes will prevent the episodes in most cases. The mushrooms can also be used to abort current episodes but this may take anything from a single dose (as in my case for the last decade I've used this treatment) to a weekly dose for 6 months like Henk. The secret is to take the shrooms at regular 6 month intervals between episodes. Flash
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judyw
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Re: Shroom update
« Reply #11 on: Aug 19th, 2003, 5:54am » |
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Great results Henk...I did my first dose in Feb 2002...two doses a week apart...then, averaging about every six months since...Chronic since 76, Inderal controlled since 88...but had to come off steroid due to asthma complications...still have shadows when overtired, but livable and so thankful to be rid of the steroid...have even managed to lose weight...PPP judyw
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judyw143
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Flash
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Inderal is a beta blocker not a steroid. It does cause complications with asthma. It also slows your heart rate so you get tired faster. It's not a good drug for CH because one of the side effects of a bad CH attack is trachycardia (slow and irregular heartbeat). Believe me that betblocker and trachycardia no mix. My heart rate dropped to 30bps, thought I was toast. Glad you are off it! Flash
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