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   Tell me what works, PLEASE!!
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   Author  Topic: Tell me what works, PLEASE!!  (Read 755 times)
HypnoticFreddy
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Re: Tell me what works, PLEASE!!
« Reply #25 on: Jul 10th, 2003, 8:30pm »
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Imitrex injections are successful for me. But so gosh darng expensive. I stayed on 240 mg of Verapamil for 2 years. Clusters came back with a vengeance after beginning pyschotropic medication (due to other issues....oh issues). Verapamil....no longer successful as maint. med. But for many, I agree a first line-defense against CHs is without doubt Verapamil.  
 
There are anti-convulsants, anti-seizure, mood stablizers, etc. out there. I think it is incurable and will always come back. At least for me. I am 30 and have had 3 "episodes", each one lasting longer than the previous episode since I was 25.  
 
Medicated or not, they come back. Then you have to play the games with the nuerologists. Try this, try that, try this, try that. I am quite tolerant to medication, so I never suffer/worry about side effects, except Prednisone (which gave me awful dreams and feverlike syndromes). But that's just me. It's an awful game to play.
 
I was treated with oxygen last summer during my 4 month chronic bout. My apartment looked like a nursing home. I had 3 different size tanks, and they were on carts. It's not too good if you're single and want to date!I liked to suck down the oxygen before a tennis match, but for headaches.....no, I did not get relief. When I went to the ER last year, I begged for relief. It was the morning after a series of about six CHs over the previous night. They unfortunately, gave me Roxicet (oxycodone/acetominophen), and then a prescription, and then..........boy it gets real rocky after that. Narcotics are not really good for CHs. I recommend people stay away from them for CH treatment. I know.  
         -HypermanicFreddy
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Re: Tell me what works, PLEASE!!
« Reply #26 on: Jul 11th, 2003, 8:05am »
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Wow I am sorry to hear about all the problems. I pray things will get better for you. I have wondered about some of the issues you have brought up. Thanks for the insight. I hope the verapamil will be a get me by until my cycle should be done. Right now it seems to be Spring Summer yearly I pray it never goes more. I want to be careful as to not push it into more, esp. with meds.  Senidng PF vibes to us all! Thanks
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