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Topic: new to suffering (Read 229 times) |
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Miguel_Esquiroz
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new to suffering
« on: Jun 18th, 2003, 1:32pm » |
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Hi I´m Miguel ,new to the list and it has been a relief to see you in the net,so I´m not alone.I have been suffering ch for ten year now and believed or not it was not a problem for my untill recently. At the start it was the tipical sporadic crisis ,I was very confused cos I did not know what the hell it was, went to the doctor and told me I had a migrain and to take cafergot. Since then not a problem, every time it struck I poped two cafergots and in les than two minutes everything was back to normal ,so I carry on as normal untill I have to take two cafe daily and I started to worried. About two weeks ago I went to the neurologist and told me that I was having a rebound efect with cafergot and that it caused me a cronic ch. So he prescrived me topamax as a preventive and zomig for the crisis. Well it may be to early to say anything about the topamax ,but the zomig is not working at all and instead of the daily crisis I used to have now I have three wich won´t go away, morning afternoon and evening ,I´m on a sick leave from my job and don´t dare to go out but the few moments in between crisis. please should anyone have any experience with cafergot and its effects in the long term please tell me, becouse i´m thinking about going back to it, I´m very confuse. Any ideas will most wellcome becouse I won´t see my doctor but in two weeks. Do not have to tell you about the pain because you allready now, excuse my english and thanks in advance. Miguel
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BlackDog
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Re: new to suffering
« Reply #1 on: Jun 18th, 2003, 1:46pm » |
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Miguel, I cannot help you with your meds. I am on O2, prednisone and migranal. I am sure someone will see this and respond. What I can offer is a big WELCOME to you! Sorry you are here, but glad you found us. Read everything you can and listen, you will hear some GOOD advice. Good luck my friend.
Hoping you are PF soon. Darren 
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cbolony
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I love YaBB 1G - SP1!
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Re: new to suffering
« Reply #2 on: Jun 18th, 2003, 3:48pm » |
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Miguel_Esquiroz first go to the left side of the board and take the custer quiz if you pass the custer test then go to the kip scale and see the level of pain you are having after that go to medication and read all the meds that people have taking for cluster headaches.If you need anything else to ask me please feel free to email me. just click on my email icon.If that does not work here is my email cbolony@aol.com
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eyes_afire
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Re: new to suffering
« Reply #3 on: Jun 18th, 2003, 5:04pm » |
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Hi Miguel. Have you ever tried verapamil (calan) as a preventative? It works great for several people here and has less side effects than some of the other stuff. Also maybe you should try oxygen as an abortive, again it works well for many of us here. Here is some info about how to use it properly:
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
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Still around... in a brand new world now...
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Karla
CH.com Alumnus
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One of Many and Never Alone - Join OUCH
 
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Re: new to suffering
« Reply #4 on: Jun 21st, 2003, 6:46am » |
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oxygen and imitrix are the biggest helpers I am aware of and the most popular also. They abort the ha. Verapamil or lithium or a combo of the two drugs offer the best chance at protection to prevent the ch from appearing. Topamax can mess with your short term memory and tern your mind to mush. Good luck trying it. If it doesn't work try the verapmil and lithum.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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MarkHW
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Re: new to suffering
« Reply #5 on: Jun 21st, 2003, 7:55am » |
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None of the pill forms of imitrex (imitrex, zomig, amerge, etc) touch my clusters.
I have to have the injections. Try to get your Dr. to prescribe those or at least the nasal spray (it works somewhat better than the pills).
Mark
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The clusterhead formerly known as williamsmh.
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