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Topic: Meet the King of Freakish CCH symptoms (Read 260 times) |
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notseinfeld
New Board Hall of Famer
Enough is Enough. Vote Libertarian
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Posts: 648
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Meet the King of Freakish CCH symptoms
« on: Jun 15th, 2003, 11:29am » |
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Chronic CH 2.5 years, ECH prior 2 years. Haven't watched a full movie (from start to finish) in 2 years. Ditto for television show >1hour. After about 45 minutes of boob tube staring an attack will always occur. Sometimes a break at the 30 minute mark (hit the pause button) will provide some relief but generally if I'm watching I'm a sitting duck. Haven't had a 'same time' attack in better than a year. It'll strike any old time one day, go away for a day, then chronic shadows all day another. Usually hit THE VERY SECOND a photon enters my iris upon opening my eyes in the morning. Rapid onset precludes making coffee to drink so it's a roll-over Imitrex sniff, writhing for 20 minutes on the bed, exhaustion, back to sleep===you know the drill. No hot tubs for me and the little lady either. That vaso-expansion thing is just too much. Sometimes I can dip in my big toe for 5 minutes. Yahoo. No alcohol---usually even swig will bring on awful shadows. I'm feeling like a complete freak. Guess I just can't play in all the reindeer games. Oh, and the Diamond headache clinic wants $3,000.00 US per day. Are they on dope? nots
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-----------Democracy is three wolves and a sheep voting on what's for dinner. ---------------------
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kimmyv1966
New Board Newbie
Peace!
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Re: Meet the King of Freakish CCH symptoms
« Reply #1 on: Jun 15th, 2003, 5:44pm » |
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Hang in there nots! Wishing you PFDANs Still searching for the cure, Kim
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I'm on a train, but there's no one at the helm. And there's a demon in my brain starts to overwhelm. And there it goes, my last chance for peace. I lay me down, but get no release... (3b)
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cathy
CH.com Alumnus New Board Hall of Famer
Not all those that wander are lost......
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Re: Meet the King of Freakish CCH symptoms
« Reply #2 on: Jun 15th, 2003, 5:57pm » |
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Hi Nots......sorry your having it so rough....sending you PF vibes to keep you hanging in there.... Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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