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   Meet the King of Freakish CCH symptoms
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   Author  Topic: Meet the King of Freakish CCH symptoms  (Read 260 times)
notseinfeld
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  krilldocument  
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Meet the King of Freakish CCH symptoms
« on: Jun 15th, 2003, 11:29am »
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Chronic CH 2.5 years, ECH prior 2 years.
 
Haven't watched a full movie (from start to finish) in 2 years. Ditto for television show >1hour. After about 45 minutes of boob tube staring an attack will always occur. Sometimes a break at the 30 minute mark (hit the pause button) will provide some relief but generally if I'm watching I'm a sitting duck.  
 
Haven't had a 'same time' attack in better than a year. It'll strike any old time one day, go away for a day, then chronic shadows all day another.  
 
Usually hit THE VERY SECOND a photon enters my iris upon opening my eyes in the morning. Rapid onset precludes making coffee to drink so it's a roll-over Imitrex sniff, writhing for 20 minutes on the bed, exhaustion, back to sleep===you know the drill.
 
No hot tubs for me and the little lady either. That vaso-expansion thing is just too much. Sometimes I can dip in my big toe for 5 minutes. Yahoo.
 
No alcohol---usually even swig will bring on awful shadows.  
 
I'm feeling like a complete freak. Guess I just can't play in all the reindeer games.  
 
Oh, and the Diamond headache clinic wants $3,000.00 US per day. Are they on dope?
 
 
nots
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Re: Meet the King of Freakish CCH symptoms
« Reply #1 on: Jun 15th, 2003, 5:44pm »
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Hang in there nots!
 
Wishing you PFDANs
 
Still searching for the cure,
Kim
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I'm on a train, but there's no one at the helm.
And there's a demon in my brain starts to overwhelm. And there it goes, my last chance for peace. I lay me down, but get no release...
(3b)
cathy
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  cathy_lucas47   cybersis1965
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Re: Meet the King of Freakish CCH symptoms
« Reply #2 on: Jun 15th, 2003, 5:57pm »
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Hi Nots......sorry your having it so rough....sending you PF vibes to keep you hanging in there.... Undecided
 
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....

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