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gene
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prednisone questions
« on: Jun 6th, 2003, 12:20am »
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Hi everyone,
New to the site... I have been prescribed pred taper.1 wk 60mgs/then today 50/then 40...
Working great so far but I'm concerned about the taper part now?? Also have been hearing you guys talking about the "nasty" side effects. So far only trouble sleeping. I havent had a ch in 1 wk and if not for your comments, i would think I'd found the miracle cure.
Please give me your experiences, I'm terrified.
Gene
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Bob_Johnson
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Re: prednisone questions
« Reply #1 on: Jun 6th, 2003, 7:33am »
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Stop with the "terrified"; some folks run up the warning flags too quickly. When used for the brief periods, as you outlined, the potential for side effects is very low.
 
Keep in mind that this med may abort your clusters but they tend to come back when the pred is stopped. So, your doc should be starting one of the preventive meds at the same time you are taking the pred.
 
If this has not been suggested by your doc, ask--now.
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Bob Johnson
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Re: prednisone questions
« Reply #2 on: Jun 6th, 2003, 8:27pm »
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Hi, have tried the pred taper several times... this time i went begging for it, also taking valium to help me sleep. started yesterday and only had a slight episode early this am. the night before i had 3. this is about my 3rd week, hoping the cycle ends when the taper does. nothing to worry about.
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gene
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Re: prednisone questions
« Reply #3 on: Jun 6th, 2003, 9:36pm »
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asked and answered!! thanks I feel better.
Gene
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MarkHW
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Re: prednisone questions
« Reply #4 on: Jun 11th, 2003, 10:07pm »
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Gene I've taken pred many times... I'm on a 10 day - 40 mg and then taper right now.
 
The only problem I have had is a bit of tiredness, hunger, and after 6 weeks on 40 mg I started to break out one time.
 
It's not a drug to take every day, but for a few weeks it can do the trick.  The hard part is when the taper ends.  I'm chronic and when I get down to about 20 mg the shadows start and then the clusters aren't far behind.
 
Mark
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The clusterhead formerly known as williamsmh.
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Re: prednisone questions
« Reply #5 on: Jun 13th, 2003, 4:20pm »
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Hi there  
   
This is my coctail    
     
Verapamil Retard 120mgX5-7/daily during cycle 3 weeks after last hit tapering down with 1 verap every 3/4 days until you are on 1 a day.1 a day for another 2 weeks you can decide to quit the verap or take 1 a day.Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few seconds after that you are almost painfree    
Prednisolone in high doze for 10 days 80mg    
then over a 3 weeks periode step down like 70-60-50-40-30-20-10-5mg every 3/4 day  
This work fine for me    
   
The very best from Svenn  
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Re: prednisone questions
« Reply #6 on: Jul 8th, 2003, 7:10pm »
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Hi Gene,
 
I have taken Prednisone for many years now during cycles.  I have never been as high as 60mg though.  Sleeping and being wound up all the time are the only side effects that I had.  It sounds like you are being very aggressive as far as tapering off.  The longer I'm on it, (usually 4 months), the harder it is to get off.  I have to use the 10mg tablets and drop by 5mg for a few days, then drop 5 more, etc until I'm off.  I generally feel like crap each time I step down.  But the alternative is definitely worse!  Anything is better than the CH!
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