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kareno
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BOTOX-WORKED
« on: Jun 5th, 2003, 8:45pm »
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Hi everone, I have posted here a few times about my daughter.  Since my last post, she has had two botox appointments.  The first lasted for 2 months which was so great concidering she has been cronic for 2 1/2 years now.  We tried everything and 5 different nero. She also tried the mushrooms which were also a big help at a time when nothing else worked.  We were fighting the insurance company and they finally agreed to give the botox a try.  This last dose consisted of 47 shots in her temple, forehead (both sides) and neck.  From the second day after the shots no more HA, she would get 2 to 8 HA per day.  We are so happy.  The only side effect is that she can not wrinkle her forehead anymore.  I thank God every night, this has given her life back.  I highly suggest you give this a try.  I have read you post for over 2 years now and it seems that not many have done this.  It is not a cure but does stop the awful pain that had destroyed her life.  She does still feel a slight feeling at 7:00 am some days (7 oclock was always a 10 HA for her) but says it just can't seem to come. Hope you all find pain free days and nights.
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sfly
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Re: BOTOX-WORKED
« Reply #1 on: Jun 6th, 2003, 8:33pm »
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wow, that was like reading my own words... i got my first injections last fri. didn't take them away, but where i got the injections there was no pain. same spots, forehead, sides, and back of nexk, also not able to wrinkle my forehed, but at my age it's a plus, no more forehead wrinkles!!! i started a prednisone taper yesterday to stop the cycle, you see this is my first cycle for 5 years.. before that i suffered for 28 years, having a 30-40 day cycle 2 times a year. when i'n not having clusters, i have tension ha everyday, that was my reason for the botox.  good luck to your daughter...
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kimmyv1966
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Re: BOTOX-WORKED
« Reply #2 on: Jun 8th, 2003, 6:58pm »
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wow.
 
what a great success story. i am so happy that u have found something that works for you.
 
please keep us informed of your successes or failures.
 
thanks,
 
still tryin to find my cure,
 
kim
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Re: BOTOX-WORKED
« Reply #3 on: Jun 9th, 2003, 3:23pm »
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kareno i'm happy for you and your daughter i hope she  
PF forever
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Ree
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Re: BOTOX-WORKED
« Reply #4 on: Jun 9th, 2003, 5:46pm »
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Good for both of you I hope more give this a try... Dave hates needles and 47 is alooooooot of needles but thanks for the information and God Bless ree
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Re: BOTOX-WORKED
« Reply #5 on: Jun 9th, 2003, 10:49pm »
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47 shots in the head??? OW!!!! thats one brave kid you have there. good luck to you both and tell her for me she has more guts than i ever will!!
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Re: BOTOX-WORKED
« Reply #6 on: Jun 10th, 2003, 10:03am »
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kareno,
 
I'm glad the botox seems to be helping.  My doctor is wanting to try the botox on me......I'm still a little hesitant about this process.  Not sure if it will do any good or not, but I'm about to the point that I'll give it a shot.  He says it works on about 1/2 of his cluster patients.  I've been doing the shroom treatment, but it will be another three months till I can do those again.  I'm hoping the botox might work in the meantime.
 
Please let us know how this works out,
Tracey
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