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Topic: Trigger Article (Read 922 times) |
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cbolony
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Re: Trigger Article
« Reply #1 on: Jun 2nd, 2003, 10:51am » |
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Brian my triggers are Alcohol always in cycle and out of cycle and sometimes when it's very hot outside or a hot room
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Bob P
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Re: Trigger Article
« Reply #2 on: Jun 2nd, 2003, 11:53am » |
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Now if you could just find a list of triggers for cluster headaches. The list you link, unfortunately doesn't apply to us.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Brian_Y
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Maybe you need to read it again. Alcohol, MSG like stuff, et al. It is applicable and the last time I checked, triggers are somewhat arbitrary anyway. And having the "reasoning" behind WHY some of these trigers act the way they do is important as well.
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oringkid
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No offense, but PTOOOEY! There are no REAL triggers for CH except for whatever it is the hypothalamus is doing. Alcohol will only trigger an unscheduled CH in me. I get them whether I drink or not. Whether I eat or not. You could go without eating and be on a glucose IV and I bet you would still get the attacks. If we went by those guidelines we would all starve to death. What the hell are you supposed to EAT? Chalk????? Sorry, but these kinds of lists piss me off. Sherry
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Bob P
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Re: Trigger Article
« Reply #5 on: Jun 2nd, 2003, 1:35pm » |
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MSG and stuff like that are not recognized cluster triggers. From Doc Goadsby: "Alcohol, nitroglycerine, exercise and elevated environmental temperature are recognised precipitants of acute cluster attacks."
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« Last Edit: Jun 2nd, 2003, 1:36pm by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Brian_Y
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But NOTHING else? How odd. I guess all of those posts from everyone else (and I've noticed more than just a few...) listing SOME of the triggers in this article was just rubbish? And if my doctor says that X or Y is a trigger or if there is an article that's posted in NE Journal of Medicine that says something besides what's listed here is and Goadsby does not, then he is gospel because......why? That sounds suspiciously like hero worship, sorry... And why on earth, Sherry, would a list like that upset you? Seems to me this board is rife with misinformation. If that is what I have promulgated here.
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oringkid
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It pisses me off because they don't really know. Let's say it is what it is...a list that they give to people with migraines. What on earth are they supposed to eat? How many times have the great "they" said so-and-so causes this! And then 5 or 10 years later they find out well no, it doesn't cause this. They are basically guessing cuz some people said I get this after I eat this. But is that all they did? Does this really cause this or could it be something else. Did you know that if you eat 20 tubes of lipstick a day for 10 years it will give you cancer? If you drink 3 bottles of shampoo a day for 15 years you will also get cancer! People who are suffering take every little thing to heart, whether it makes sense or not, whether proven or not. Tell me, what does that list leave for someone to live on? Sherry
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Brian_Y
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Your point is well taken, Sherry. But that type of trial and error is necessary for educated guesses to be effective. I hear you, though. Eggs used to cause cancer too. But then again, if we as a community had a consensus that there were triggers in food outside of what Goadsby recognizes, then HIS sitting on what's recognized or not is more harmful in my opinion.
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oringkid
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Well to tell you the truth, I don't agree with all of his! Heat does not seem to trigger mine...neither does exercise from what I can tell. Living in 110 to 120 degree heat and not being triggered by that even IN cycle, Sherry ;D I tend to let my common sense and instincts guide me. It's worked for me so far....
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Brian_Y
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So that gives SOME credence to the article, n'est-ce pas? If you list ALL the foods, and you see a pattern, maybe it has validity. You right, I right. Everyone else is wrong.
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cathy
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Re: Trigger Article
« Reply #11 on: Jun 2nd, 2003, 3:03pm » |
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on Jun 2nd, 2003, 2:12pm, oringkid wrote: Did you know that if you eat 20 tubes of lipstick a day for 10 years it will give you cancer? If you drink 3 bottles of shampoo a day for 15 years you will also get cancer! Sherry |
| Now Sherry would that be any particular colour of lipstick, me I only eat the red ones...and is it okay if I only drink the small bottles of shampoo.... ;D All I know is Wes will get CH if he drinks Alcohol for sure, so Dr Goadsby was right about that, but also if he has food containing MSG....and orange juice...so has Dr Goadsby missed something...or maybe if wes didn't have a problem with the hypothalmus he'd get migraines from the same things...who knows... ??? Me I get migraines if I drink Red Wine....I think the list is a guideline, likes been said trial and error....if all are a trigger then chalk sounds like a good idea, not sure how nutritional it'd be though... Cathy...
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Bob P
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Re: Trigger Article
« Reply #12 on: Jun 2nd, 2003, 3:15pm » |
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If it hurts, don't do it. It's really just that simple. Maybe it's because the article is listed in the "Migraine" section that I figured it didn't apply to clusters. Naw, it's because the list is bogus for clusterheads.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Ueli
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Oh please not again A clusterhead needs no fucking migreene trigger list to know that alcohol is a trigger for many, and the rest of this list is utterly useless. Sure, some clusterheads have their own personal trigger, but there is no reason to collect these in a list and recommend everybody to avoid them. In a recent thread somebody reported to be triggered by gasoline fumes. Is this a reason we all turn Amish and swap our car for horse and buggy? But then some people are triggered by horse shit.....
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BobG
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Re: Trigger Article
« Reply #14 on: Jun 2nd, 2003, 3:37pm » |
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Sherry, That lipstick and shampoo theory is not true. You can eat or drink all you want. All you end up with is a red tongue and bubble on your breath. Mice in laboratories in Canada are the ones that have to worry.  
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cbolony
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Re: Trigger Article
« Reply #15 on: Jun 2nd, 2003, 3:49pm » |
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So you are telling me that sometimes when i go into a hot room or car and i'm out of cycle and get a headache on the left side of my face in my left eye and i know for sure its a cluster headache and i take a shot of imitrex to stop the pain and it goes away in 10-15 its not CH then what is it.It feels like the same CH when i'm in cycle can i be wrong.
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oringkid
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Nope, not saying anything like that. But lists like that cause people to try to avoid ALL that stuff when maybe only one thing is a trigger. If heat triggers yours, well then heat triggers yours. It doesn't trigger mine. Not saying you don't have CH, just that not everybody has the same. The only trigger I can say for sure is a trigger is Alcohol for me. Mostly cuz I have basically experimented with it enough. I also think that mothballs is a trigger for me, but, it is possible that I was just gonna have a CH then (both times. Can't say positively cuz it was only 2 times that I was in cycle and was exposed to mothball fumes, I say fumes as it was in a store not just someone's house that uses them) but since the CH came on suddenly right after I got a noseful of it and since it did happen the same way both times, I will conclude that for me, mothballs is a trigger. See what I'm saying? No one else on the board has said mothballs was a trigger, but many have other triggers that do not seem to trigger mine. If we go and try to avoid all the stuff on these "lists" you're probably still going to get hit with CH and you are left with almost nothing to eat or drink! Sherry
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cbolony
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Re: Trigger Article
« Reply #17 on: Jun 3rd, 2003, 5:39am » |
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Brian all they are trying to tell you is there is no list for CH and they are right.If i drink i would get an unscheduled CH like sherry said.When i'm in cycle no matter what i do they still come 3-4 aday. And i knew your post was going to get Ueli upset ;D ;D Your are not the first to post that link and i'm sure you are not going to be the last one
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Brian_Y
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As to "upsetting" someone, here is what I think about that: Whatever. If you can discern from what is what and use what little education you may or may not have, then enjoy the article. Maybe if you are that one person who triggers a cluster by eating twinkies, then it has served its purpose. A blanket statement condeming it is nonsense. WHATEVER. I am through.
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cbolony
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Re: Trigger Article
« Reply #19 on: Jun 3rd, 2003, 10:06am » |
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Brian don't get mad do you know how many times i got banged around here a lot of times.It's just part of this happy family we have here of clusterheads.These people here are going to be the first ones to help you when you need them trust me brian
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Brian_Y
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I am not getting angry, per se, and your point is well taken. I get "frustrated" by a lack of being able to think for oneself. We are all adults. How many times has someone (at least those of us with correct political views) used the "turn the channel" argument for something you do not like, etc. It's the same thing here. Attacking me or the article is ridiculous. You can make up your own mind. Use what's useful, discard the rest. As if this board is not overflowing in misinformation..... But good info too.... Thanks, though, cbolony. You have been listened to.
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cbolony
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Re: Trigger Article
« Reply #21 on: Jun 3rd, 2003, 2:51pm » |
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Quote:How many times has someone (at least those of us with correct political views) used the "turn the channel" argument for something you do not like, etc. |
| You must have read some of my views they upset some people here but we all express our views and that's why everybody gets along so well here.One thing i can tell you there are a lot of very smart people here who know there shit about CH some of them could be fucken Neuro's ;D ;D
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Brew
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Re: Trigger Article
« Reply #22 on: Jun 3rd, 2003, 8:24pm » |
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This may fall under the "too much information" category, but Viagra triggered one of the worst CH's I've ever had. Supposedly it is a vaso-dialater, which, when in cycle, is one of the worst things you can do to yourself. I learned the hard way (pun unintended). Come to think of it (another pun unintended), there's no way to discuss this particular drug without making unintended puns. Bill
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Robert
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Re: Trigger Article
« Reply #23 on: Jun 5th, 2003, 8:34am » |
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Caffine was on that list, and thats one thing that help me sometimes. If I need to go somewere for a few hours were I need to be ch free I will load up On Excedrin or nodoz with alot of caffine and it will work most of the time, for at least afew hours Bob
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ave
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Re: Trigger Article
« Reply #24 on: Jun 6th, 2003, 2:13pm » |
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It is useless to do a follow-up. Nobody READS the stuff. Still: here goes. A list of possible triggers is a waste of time for clusters. For different people there are different triggers. (Alcohol is one for many of us - but not for me; it even helps deaden the pain). A list of possible triggers meant for migraines may be a waste of time for migraineurs as well: Dr. Ferrari, the Dutch guru of headaches, said in a recent speech that the much maligned chocolate is NOT a trigger for migraines. Your body feels a migraine some time in advance and you develop a craving for, in this instance, chocolate, he stated. What we think of as a trigger appears to be a signal! Brian Y, it IS depressing when you think you have some good info to show people and they won't have it. Don't get angry. Absorb the information that has been gioven to YOU. Be pf!
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