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Topic: Shrooms, Alcohol and Gamma (Read 371 times) |
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Jup
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Shrooms, Alcohol and Gamma
« on: May 29th, 2003, 7:02am » |
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Hi,
Actually my name is Sjoerd from the Netherlands and I use the mushrooms from june 2001 till March this year. Some of you know me as a chronicle clusterhead. It started 1999.
I used the shrooms once in three weeks during the above mentioned period. This helped me to get from 6 to 8 attacks to 1 or 3 attacks per day and a pain free period of five days somewhere in the middle of the three weeks between the use of the shrooms.
When I started the use of mushrooms I was very enthusiastic and I thought that this was the answer of fighting the CH beast. Most people around me didn’t like it all, but my family, and thank God for my beautiful and caring wife, supported me along the difficult CH path.
So the shrooms helped me to be medicine free and reduced the number of attacks enormously and I felt a human being again.
At the end of the summer of 2002 I had a very bad trip. It was something like the trip Flash mentioned a while ago. From that time I became anxious to use the shrooms and I made the ‘three-week-trip’, as I called it at first, once in 4 weeks and later 5 to 6 weeks. Every time it made me sick for an hour and I felt horrible. For three hours I saw my life as useless, all my mistakes under a loop and all the problems I made for my family. I couldn’t see all the beautifull things in life anymore, all the bright colours, beautiful flowers, and hear the singing birds or music.
So I started to use once a week alcohol. I bought a nice bottle of whisky and drunk in the evening just that much to be drunk. That night I didn’t have one attack and the next day, with a little hangover also not one attack. That day after the drinking session I didn’t drink much alcohol (mostly I had two glasses of wine). During the following night the beast was there again and the next day I did the alcohol session again. Three times a week. So I left the shrooms for alcohol and it felt good for a while. In January 2003 I found out for myself that this was no answer to my CH problems and I started again on the shrooms. I must say that I felt very depressed and didn’t know what to do. I had two or three CH attacks that I killed most of the time with Immitrex.
I went back to my neuro and he give me depakote. That did’nt work either. I went again through a MRI to see if the Janetta operation was an option, but that was’nt. Back on the verapamill was an advise, but that was earlier in my life not very helpfull. My neuro sent me home with the words; “I feel very sorry, but I cannot help you!”
In march ’03, I was ready for a drastic option. After a very bad paddo trip I went away for a few days on vacation to a small house in the mountains of France. I was alone and the attacks were not gone as they usual did in a week or so after the shroom session. I was thinking about my life and it felt useless. I couldn’t understand why this was happening to me and I realised that the world could be better be without me. To drop out was a serious option at that time.
When I spoke about this, later with my wife and family they could understand me but they let me realise that this could not be the answer. I started from that moment to carry on with my miserable CH life, but the suicide thing still hangs over my shoulder.
I had from January ’03, two or three attacks and killed them as I said before with Immitrex or, when my stomach is empty, with Relpax pills.
Three weeks ago I found an article on Gamma Knife and after much thought and discussions with my neuro, medicineman, my wife, family and friends, I decided to go for it. Two days ago there was my day and I went into the machine. After the process I felt horrible and now two days after the gamma bombardment I still have three or four attacks in 24 hours, but they say that this is normal for two or three weeks. I sit it out and hope that I will be in the 50 percent that have total relief or the 30 percent that have a reduced number of attacks and intensity. I have no side effects, everything in my face works normal.
This my story up till now. Not much to worry about.
I hope for the best and I hope the same for you all.
Jup (Sjoerd)
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ave
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Re: Shrooms, Alcohol and Gamma
« Reply #1 on: May 29th, 2003, 7:20am » |
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Hello Sjoerd, what a shame the shrooms didn't work for you anymore... I agree alcohol is not the solution and I fervently hope the gamma knife will have helped you.
Please keep us posted on what's happening to you. You have been here before and you know we all care.
Gove my regards to your wife, and look us up on this MB and in chat, now and then.
Annemarie
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There is a break in reality. Do not adjust your mind.
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Jup
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Re: Shrooms, Alcohol and Gamma
« Reply #2 on: Jun 4th, 2003, 7:37am » |
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One week after Gamma Knife,
Last week on tuesday, I was treated with the Gamma Knife. At first, after the treatment, I had more attacks, 5 to 6 per day, instead 2 or 3. They told me that this was normal, but the attacks must be less or gone within 2 - 6 weeks.
At first I must say that there are no side effects in my face. No problems at all.
After five days with 5 to 6 attacks per day the intensity of the attacks became lower and the attacks were gone within the hour, instead 1 1/2 hour. Now (the last two days) I have a mineur attack once a day, mostly during the night.
So I hope that I get PF at the end and that it will last for a long time.
It's going well, I hope. I keep my fingers crossed
Jup
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