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Topic: some new idea for us sufferers (Read 362 times) |
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atwitsend
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some new idea for us sufferers
« on: May 16th, 2003, 12:00pm » |
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[center][/center] ??? I have been suffering for 12 years - this is the longest though - 14 weeks - at least 4-6 a day!! times are tuff - saw a new dr says he wants to try a neurostimulator?? or activa therapy ?? anyone ever hear of this at all/ Please let me know I am scheduled for surgery for June 30th.
write to me asap - please i'm at my wits end!!
kcacrec@attbi.com
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Ted
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Re: some new idea for us sufferers
« Reply #1 on: May 16th, 2003, 12:09pm » |
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Is the nerve stimulator the nerve vibrator  ? One of the ones giving electrical impulses to the nerve through an implanted device? There should be info on it in the archives and probably at OUCH's site too.
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BobG
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Re: some new idea for us sufferers
« Reply #2 on: May 16th, 2003, 12:45pm » |
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Are you talking about Occipital Nerve Stimulation?
Go here: click OUCH button on left side of screen.
OUCH/Cluster Help/Research Library/Surgery
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| « Last Edit: May 16th, 2003, 12:46pm by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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cathy
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Re: some new idea for us sufferers
« Reply #3 on: May 16th, 2003, 1:06pm » |
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Atwitsend....do you have a name....??? sorry don't know anything about the nerve stimulator, just wanted to say HI and WELCOME...sorry your having a rough time at the moment, hang in there, keep us posted and good luck with the surgery...
Cathy 
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katethecelt
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Re: some new idea for us sufferers
« Reply #4 on: May 16th, 2003, 1:45pm » |
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Welcome!!!!
I don't have any info on the treatments you are considering, but you have my support and good, warm, vibes.
I'm new to CH & this MB. I do know that the Beast has wicked effects on how one thinks. Don't give up!! Please keep us updated and vent all you need.
Wishing you PFDAN's, Kate
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cootie
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Re: some new idea for us sufferers
« Reply #5 on: May 16th, 2003, 1:56pm » |
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atwitsend........welcome.......hey "maybe" if you start a new thread in the general MB post area nameing it neurostimulator theropy" you'll snag onto some more info from someone there.......I keep forgettin to check in here so maybe more do the same and have some info for you...mite be worth a try. Good luck to you !! Not educated in neo anything Pam
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Harvey
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Re: some new idea for us sufferers
« Reply #7 on: May 16th, 2003, 2:42pm » |
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GOOD LUCK may god be with you please keep us posted they seem to keep us guys full of meds or o2, I personally would like to know if this works for you, I am headed for gamma knife myself....good luck HARVEY
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CJohnson
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Re: some new idea for us sufferers
« Reply #8 on: May 16th, 2003, 3:15pm » |
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This is lifted from a presentation on Current Concepts in Pain Management from 1998.
We used to believe that destruction of the pathways of pain transmission could alliviate the pain. This has proven to be wrong. Due to the plasticity of our nervous system, the pain relief achieved by neuroablation is always short lived. In pain management, modulation of pain signal transmission is a far better choice than destruction.
-Curtis
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Through water and fire. From the lowest dungeon to the highest peak, I fought the Beast. Until at last, I threw down my enemy and smote his ruin upon the mountainside.
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OneEyeBlind
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Re: some new idea for us sufferers
« Reply #9 on: May 18th, 2003, 7:36pm » |
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Hang in there bud. Don't know anything about the tx you want to try, but I am sending you good vibes for some relief !!!!!!!
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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