Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 23rd, 2024, 11:10am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Occipital Nerve Stimulation »


   Clusterheadaches.com Message Board
   New Message Board Archives
   Medications, Treatments, Therapies 2003
(Moderator: DJ)
   Occipital Nerve Stimulation
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Occipital Nerve Stimulation  (Read 591 times)
Globi77411
New Board Newbie
Netherlands 
*





   
Email

Gender: male
Posts: 18
Occipital Nerve Stimulation
« on: May 13th, 2003, 2:12am »
Quote Quote Modify Modify

Is there anybody at this forum who had the “occipital nerve stimulation” treatment as described at the link below?  
 
http://www.clusterheadaches.org/library/surgery/occipital_stim.htm
 
I am trying to get this treatment done in Holland but the insurance company still regards it as experimental.  
 
 
« Last Edit: Jun 14th, 2003, 1:03pm by Globi77411 » IP Logged
atwitsend
New Board Newbie

*



I love YaBB 1G - SP1!

   
Email

Posts: 24
Re: Occipital Nerve Stimulation
« Reply #1 on: May 16th, 2003, 12:06pm »
Quote Quote Modify Modify

where are you from - i am looking for info on this & my dr in the united states is offering this option to me - please respond & help me to find out more Shocked
IP Logged
subluxationskill
New Board Newbie

*



I love YaBB 1G - SP1!

   
Email

Posts: 34
Re: Occipital Nerve Stimulation
« Reply #2 on: May 16th, 2003, 8:40pm »
Quote Quote Modify Modify

why not go and find an upper cervical doctor and find out if your clusters can be helped by restoring normal biomechanics in the upper neck region. Just a thought.  If the occipital nerve is not " stimulated" enough and that is the cause of ch then what is causing the occipital nerve to be hypo-functional?
IP Logged
Ueli
Guest

Email

Re: Occipital Nerve Stimulation
« Reply #3 on: May 16th, 2003, 10:18pm »
Quote Quote Modify Modify Remove Remove

Sublux, do you mean you can fine tune the biomechanics of the neck in such a way that the atlas tickles the occipital nerve in the right way for the chi to vibrate in resonance with the biorhythms to achieve a balance of jin and yang and such re-gain good health?
 
Why the fuck are you not reading the given links and learn what is talked about, before you start to string together some medically sounding words and produce some gibberish that is even too nonsensical for a wellness advertisement?
 
Why don't crawl back under the stone you came from and preach your hype to the worms and snails there?
IP Logged
Globi77411
New Board Newbie
Netherlands 
*





   
Email

Gender: male
Posts: 18
Re: Occipital Nerve Stimulation
« Reply #4 on: May 17th, 2003, 7:12am »
Quote Quote Modify Modify

I am from Holland. If you are from the US you should contact Dr. Dodick from the Mayo Clinci in Arizona (?). According to my information he's the one who has ínvented' this treatment based on the Italian "deep brain stimulation" which is much more dangerous. In Holland the insurance company refuses to pay for the operation, maybe it's different in the US. According to my neurolog this treatment is best if no medicine or other things helped. I have the chronic form, tried ALL meds available + neck nerve injections and heating nerves.
IP Logged
Globi77411
New Board Newbie
Netherlands 
*





   
Email

Gender: male
Posts: 18
Re: Occipital Nerve Stimulation
« Reply #5 on: Jun 6th, 2003, 5:45pm »
Quote Quote Modify Modify

subluxationskill. I’ve tried that already. Seemed to help a bit after a week. The Dr. told me first 5 days after treatment would be worse and it was. But….after some more days the beast was back.........went back 9 times but it never did it for me again. Also asked him how many (chronic) clusterheads he has helped…..many according to him but he’s not really willing to give any real info to my neurolog. I am still hoping for the Dodick treatment. As far as I know he will ‘publish’ some results end of june/july this year (in Chicaga I think). +/- 15 people had this treatment and it’s looking promising. It’s still ‘experimental’ which is the reason for no published facts yet. There is another man posting about Dr. Dodick =
 
Occipital Nerve Stimulation
« on: May 31st, 2003, 3:26pm »   By MarkHW
 
 
 
I think I am better off then you guys in the US. All medicine (including Imitrex) are covered fully by my insurance. Took as many as 10 injections a day without coverage problems. Hope the Dodick treatment will be a breakthrough especially for the people who have to face the pain without the right medicines.
IP Logged
MarkHW
New Board Old Timer
USA 
****





    mwilliams43050
Email

Gender: male
Posts: 348
Re: Occipital Nerve Stimulation
« Reply #6 on: Jun 9th, 2003, 9:04am »
Quote Quote Modify Modify

I haven't had it done yet, but I am travelling to the Mayo clinic in Arizona in July to be evaluated for the procedure.
 
Nothing else has worked and I do not want Gamma Knife.
 
I'll let you know.
 
Mark
 
P.S. If you want information, contact the mayo clinic in Scottsdale Arizona - I went to their web page.
IP Logged

The clusterhead formerly known as williamsmh.
Nathan
New Board Veteran
USA 
***



mufon member looking for serious ufo/alien stories

  ufo_guy1  
Email

Gender: male
Posts: 111
Re: Occipital Nerve Stimulation
« Reply #7 on: Jun 9th, 2003, 10:34pm »
Quote Quote Modify Modify

[quote author=Ueli Why don't crawl back under the stone you came from and preach your hype to the worms and snails there? [/quote]    
 
  hey ueli, down boy!! alot of people come to this board 1) not knowing anything about archives 2) so damn frustrated with their chs they just dont FEEL like searching, they want answers and they want em right now and 3) some people get online, type "cluster headaches" in google and are just amazed to find a site like this! we should try to be a little more helpfull to those that dont know their way around the internet as well as others, especally if their in the middle of a cycle and just looking for a little relief or a shoulder to cry on.
IP Logged

field investigator for mufon(mutiual ufo network) looking for serious people only to share their stories with me. total anominity promised. chs and alien abduction may be related.
Ueli
Guest

Email

Re: Occipital Nerve Stimulation
« Reply #8 on: Jun 10th, 2003, 2:06pm »
Quote Quote Modify Modify Remove Remove

Hey Nathan, in your enumeration you forgot at least one point:  
... some people come to this board 4) because they found a 'cure' for every disease under the sun, from housemaid's knee to Alzheimer's, and Google the net for support groups to bring their blessings to a larger crowd of suckers sufferers.
 
If you visited the board a bit more often than once a month you would know that Sublux admitted he never heard of Clusterheadaches before he found this board, but nevertheless claimed in his first post that he had the cure for it, and then continued to litter these pages with his pseudo-medical gibberish.  
 
Nathan, although you call me boy, I cannot call you daddy. But, since you act as a stirrup holder for this ghoulish Sublux, I call you a fucking moron, who should do first some reading before criticizing others.
 
BTW, a bit further down the medical board I wrote another unfriendly reception for a newbie, in the thread "This has worked for me". Maybe, since you are a friend of every scam artist, you'll find some encouraging words for him too.
IP Logged
Nathan
New Board Veteran
USA 
***



mufon member looking for serious ufo/alien stories

  ufo_guy1  
Email

Gender: male
Posts: 111
Re: Occipital Nerve Stimulation
« Reply #9 on: Jun 10th, 2003, 4:05pm »
Quote Quote Modify Modify

damn i thought my chs made ME bitter!! you have a point about scam artist though, people that swear they have a cure for something that none of us can get under control and its unfortunate that they would come to message boards like this to attempt to get someones hopes up or whatever they hope to accomplish. BUT this is not the first time i have seen someones post simply dismissed by saying  "read the archives" and that is my main bitch. the people that come here honestly looking for help, answers or support should be given it. but if you feel that they should handle it on their own, then YOUR the fucking moron. try and remember when you first found this site. were you greeted warmly and supported or were you cussed at and told to look it up yourself? i know when i first found this site over a year ago, before they changed the board format, i was greeted by many and all my questions answered without bieng made feel unwelcome. and for the record, im on daily, i just dont post unless i feel the need. mostly, i just lurk. as for the scam artists, fuck em. i think we all have the intelligence to see through their bullshit.
IP Logged

field investigator for mufon(mutiual ufo network) looking for serious people only to share their stories with me. total anominity promised. chs and alien abduction may be related.
Charlie
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Happy to be here

135447360 135447360   mondocharlie   mondocharlie
Email

Gender: male
Posts: 14968
Re: Occipital Nerve Stimulation
« Reply #10 on: Jun 10th, 2003, 11:50pm »
Quote Quote Modify Modify

Well.....this began as a fun thread defending common sense and critical thinking. Everyone take a deep breath. Ueli speaks from his crystalline heart  Cheesy Those Suisse, are direct bunch.  
 
You're right too Nathan. The first thing I read here was the guest book. That fascinated me and made me cry. I couldn’t wait to get to the board. I was dying to meet others. It was exciting. Going to the other stuff at first was too much work for this lazy old fart.  
 
Still:
 
Never give cranks and purveyors of fraud and nonsense an inch. They're waste our time and do some real damage in some instances.  
 
By the way. The Mayo Clinic is in Rochester, Minnesota.
 
See you two in the next thread. Fun stuff this is  Cheesy
 
Charlie
IP Logged

There is nothing more satisfying than being shot at without result---Winston Churchill
Globi77411
New Board Newbie
Netherlands 
*





   
Email

Gender: male
Posts: 18
Re: Occipital Nerve Stimulation
« Reply #11 on: Jun 11th, 2003, 11:53am »
Quote Quote Modify Modify

Mayo Clinic website:  http://www.mayoclinic.org/
 
They have 3 clinics
1) http://www.mayoclinic.org/jacksonville/  (Florida)
2) http://www.mayoclinic.org/rochester/     (Minnesota)
3) http://www.mayoclinic.org/scottsdale/    (Arizona)
 
Arizona is where Doctor Dodick works.
IP Logged
Charlie
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Happy to be here

135447360 135447360   mondocharlie   mondocharlie
Email

Gender: male
Posts: 14968
Re: Occipital Nerve Stimulation
« Reply #12 on: Jun 11th, 2003, 8:16pm »
Quote Quote Modify Modify

Oops
 
Shows ya what I know.  Roll Eyes  
 
I'm behind the times. It doesn't surprise me though..sigh.   Undecided
 
Thanks.  
 
Charlie Cool
IP Logged

There is nothing more satisfying than being shot at without result---Winston Churchill
MarkHW
New Board Old Timer
USA 
****





    mwilliams43050
Email

Gender: male
Posts: 348
Re: Occipital Nerve Stimulation
« Reply #13 on: Jun 11th, 2003, 9:49pm »
Quote Quote Modify Modify

Dr. Dodick (I'm probably not spelling it right) is the neuro that is pioneering the Ocipital Nerve Stimulation procedure for Cluster.  There was a link to the article posted in the forum at one point.
 
He is based in Scottsdale and the only place I could find that would see me about the procedure.
 
I just booked my air fare and hotel.... I leave Sunday, July 20th for Phoenix and have my appointments on Tuesday.... This is just the eval, but ......
 
I hope this is the answer!  
 
My neuro has told me he thinks it's this or Gamma Knife.  I have no intention of doing Gamma Knife!
 
Mark
IP Logged

The clusterhead formerly known as williamsmh.
Globi77411
New Board Newbie
Netherlands 
*





   
Email

Gender: male
Posts: 18
Re: Occipital Nerve Stimulation
« Reply #14 on: Jun 12th, 2003, 1:34am »
Quote Quote Modify Modify

Hi Mark,
 
Gamma knife would not be an option for me as well.  
What are they going to do in this eval? Temporary occipital nerve block? Did they sent you any info?  What would reasons be NOT to accept you for real treatment? Probably going there myself in a couple of months and I am curious.
IP Logged
hdbngr
New Board Old Timer

****





   
Email

Gender: female
Posts: 257
Re: Occipital Nerve Stimulation
« Reply #15 on: Jun 13th, 2003, 2:49pm »
Quote Quote Modify Modify

Dr. Richard Ferro in Lansing, Michigan is also using the occipital stimulation and spinal chord stimulation to treat clusters. There are two devices, one made by Medtronic, one made by ANS, although the ANS has more leads, and can supposedly reach more of the pain.
 
Dr. Ferro does a "practice" external procedure first, to see if it would even help. If it does, then they will schedule you for the real thing. If it doesn't, you don't have any extra parts you don't need.
 
I have been through the diagnostic stuff, and am hoping to get the practice one done soon. Here's hoping it works.
IP Logged

Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup.
splittin_head
New Board Newbie

*



I love YaBB 1G - SP1!

   
Email

Posts: 15
is there a cure
« Reply #16 on: Jun 13th, 2003, 9:23pm »
Quote Quote Modify Modify

??? hello every sufferer.. how are your brains today..mine are numb from the beatings this b t ch has givin me. sorry to be this way but im tired and im lookin for som answers and no one has any iv had these ch for 30 yrs know and still no help do these doctors knnow we are out here or do they just push us under the rug cause they dont know what to do...im not sure but ill be damm glad when this episode ends signed splittin head
IP Logged
MarkHW
New Board Old Timer
USA 
****





    mwilliams43050
Email

Gender: male
Posts: 348
Re: Occipital Nerve Stimulation
« Reply #17 on: Jun 18th, 2003, 10:27am »
Quote Quote Modify Modify

During the eval I'm supposed to see dr. Dodick and the surgeon who does the procedure.
 
I'm not sure exactly what they are going to do.... I know they want to go over my symptoms and let me know what it will all entail.
 
I just hope it goes well and I can get back out there quickly to get it done!
Mark
IP Logged

The clusterhead formerly known as williamsmh.
MarkHW
New Board Old Timer
USA 
****





    mwilliams43050
Email

Gender: male
Posts: 348
Re: Occipital Nerve Stimulation
« Reply #18 on: Jun 18th, 2003, 10:30am »
Quote Quote Modify Modify

BTW... I made my arrangements through Travelocity...
Got a pretty good deal.
 
I'm leaving Sunday from Columbus, Ohio and returning from Phoenix on Wednesday (in July).
 
The flight, hotel, & car are only about $450.
 
Mark
IP Logged

The clusterhead formerly known as williamsmh.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss