Author |
Topic: Warning for others (Read 793 times) |
|
JCM
New Board Newbie
JM
Gender: 
Posts: 14
|
 |
Warning for others
« on: May 2nd, 2003, 8:25am » |
 Quote  Modify
|
Just a fair warning for others. I have been in a cycle for about 2 1/2 weeks now. I was prescribed medrol starting with 4 mg 6 times on the first day and reducing by 1 each day following. It seemed to work until I finished my last pill on Tuesday. I thought my cycle was over. I decided to have a beer and watch some hockey and basketball. That was the biggest mistake ever. I was awakened at 3:00 a.m. with the worst headache ever and it lasted until noon the next day :o. Actually I wasnt able to function until late that evening. I do not know if it was the beer I drank or a rebound from not taking the steroids. Has anyone experienced bad headaches after completing the steroid treatment? If so how long did they last? Any solution?
|
|
 IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: Warning for others
« Reply #1 on: May 2nd, 2003, 8:50am » |
Quote Modify
|
About 10 years ago a doctor tried me on prednisone to break my cycle. 80 mg a day reducing to 0 in about 2 weeks. Blocked 100% of my headaches. When I got off the prednisone, had the WORST attacks of my life. It's almost like the beast is paying you back for blocking him out! These were 60 to 90 minute attacks that were an 11 on the kip scale. (I know it only goes to 10 but DAMN)Not sure if the steroid you were using are similar to prednisone but after two attempts we abandoned that. Good luck, mental attitude is everything in the fight.
Joe
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
JCM
New Board Newbie
JM
Gender:
Posts: 14
|
|
Re: Warning for others
« Reply #2 on: May 2nd, 2003, 9:29am » |
Quote Modify
|
Joe,
That is exactly what I was taking and you are correct. I was about an 11 on the scale also. There was nothing I could do to relieve the pain, like you said the beast was paying me back for blocking him.
|
|
IP Logged |
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: Warning for others
« Reply #3 on: May 2nd, 2003, 1:29pm » |
Quote Modify
|
Last cluster I went through 4 Medrol dosepacks. Each time the attacks stopped the first day but returned when I got down to the 2 tablet day.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Wendy1
New Board Veteran
Posts: 154
|
|
Re: Warning for others
« Reply #4 on: May 4th, 2003, 8:10pm » |
Quote Modify
|
OOOooooo, never, never drink till you are ABSOLUTELY sure.... learned the hard way! Prednisone is a miracle drug, but I've had to do a taper a couple of different times during a cycle, cause once you start reducing, they CAN come right back and you are back at step 1. GOSH I NEED A BEER!!!!!!!!!!!!!!!!! AHHHHGGGGGG 
|
|
IP Logged |
|
|
|
pinksharkmark
New Board Veteran
Clusterhead
Gender:
Posts: 201
|
|
Re: Warning for others
« Reply #5 on: May 5th, 2003, 11:52pm » |
Quote Modify
|
Sprecco's description describes my experience perfectly, except in my case the headaches were 3 to 4 hours. Prednisone for me provided almost miraculous relief every time I would take a "burst", but only until the dosage level dropped below a certain level. Then The Beast returned and was he ever pissed! It is almost as if the prednisone didn't eliminate the pain for a week or so, but merely stored it ALL up to be delivered later!
By far the longest and most severe CHs I have ever endured have come in the few days following a prednisone "holiday". If there is such a thing as a Kip 11, it is surely experienced at the end of a prednisone session.
pinky
|
|
IP Logged |
|
|
|
islandtimefl
Guest
|
Geez. Now I'm terrified. My last dose of Prednisone is tonight. 100, 100, 100, 80, 60, 40 then twenty tonight. Am I going to get my ass kicked tomorrow or is this not the case with everyone? Any good results? The last few (stepdown) days have been easy but I have noticed a slight cluster whereas I didn't have one on the higher dose days. I think this cycle was about over but since it had lasted 4 months so far my neuro wanted me to try this. Any ideas of what I might expect anyone?
|
|
IP Logged |
|
|
|
NewHeadPLZ
New Board Junior
I love YaBB 1G - SP1! But these Headaches S*ck
Gender:
Posts: 67
|
|
Re: Warning for others
« Reply #7 on: May 13th, 2003, 3:05pm » |
Quote Modify
|
Geez, are any of you taking Verapamil along with Prednisone. I do and although my Clusters return, they don't hit me that hard after tapering off.
|
|
IP Logged |
|
|
|
islandtimefl
Guest
|
I've been on Verapamil for about six (240 in am then 120 in pm)years now and although the clusters came back after the Prednisone treatment for me they weren't nearly as bad. I think the worst part was the fear of them. After looking at it on the internet I'm not too comfortable taking steroids. They made me feel pretty strange but nothing drastic. Never had the energy nor will to do anything though. The clusters are back now and I fear I may have gone chronic. They aren't too bad for a few weeks now but this "cycle" has lasted since January so far. I still hope and pray it is just a long cycle. Any input?
|
|
IP Logged |
|
|
|
NewHeadPLZ
New Board Junior
I love YaBB 1G - SP1! But these Headaches S*ck
Gender:
Posts: 67
|
|
Re: Warning for others
« Reply #9 on: May 14th, 2003, 7:41am » |
Quote Modify
|
on May 13th, 2003, 4:01pm, islandtimefl wrote:| I still hope and pray it is just a long cycle. Any input? |
|
Wish I had an answer for that. My cycle before this one lasted 2 1/2 years. Then I got a break for about a year. Started back again beginning of last November. The ONLY thing that keeps them away is a high dose of Prednisone. I started tapering to 40mg two days ago. Did sleep well at all last night because of the Headaches again! Only about a KIP 5-6 but enough to wake me none the less.
|
|
IP Logged |
|
|
|
NewHeadPLZ
New Board Junior
I love YaBB 1G - SP1! But these Headaches S*ck
Gender:
Posts: 67
|
|
Re: Warning for others
« Reply #10 on: May 14th, 2003, 7:42am » |
Quote Modify
|
Ment to say didn't sleep well
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss