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   Author  Topic: Lithium  (Read 488 times)
vaughan
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Lithium
« on: Apr 12th, 2003, 8:40pm »
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I have suffered from cluster headaches for the past five years with an attack almost every day.My neurologist suggested I try Lithium and I thought why the hell not.After about 10 days my attacks became less and less severe until finally Kissthey went away.I have been three months now without one and it is fantastic.
 
Vaughan Coburn
 
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Re: Lithium
« Reply #1 on: Apr 12th, 2003, 9:02pm »
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Wow Vaughan, thanks for the good report.  Those of us who have not yet traveled those waters need to hear that there is hope.
 
--- Steve, one of many...
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Re: Lithium
« Reply #2 on: Apr 12th, 2003, 9:50pm »
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Hello Vaughan,
 
Just curious:
 
1) What dose are you taking?
2) Did you slowly increase the dose?
3) How often are you scheduled to get blood work done?
 
Thanks in advance,
Marc
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cluster0557
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Re: Lithium
« Reply #3 on: Apr 13th, 2003, 2:33am »
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Man am I glad Lithium works for someone. It damn near kicked my but during the dosage buildup.
 
I turned into a true live walking zombie in three weeks and had to say goodbye to it.
 
Like Marks Question how did you build up your dosage ?
Maybe mine was too aggresive!
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Re: Lithium
« Reply #4 on: Apr 13th, 2003, 6:28am »
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A lot of folks have found that a combination of lithium and verapimil has worked when other conventional meds have not. There are plenty of posts on this in the back pages & archives.  
 
As a side note/warning, do NOT use lithium and shrooms (or other indole-ring hallucinogens) at the same time, unless you want to, like, become ONE with the UNIVERSE, dude... Lithium seems to greatly enhance the psychedelic effects of the shroom treatment.
 
-tommyD
 
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cluster0557
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Re: Lithium
« Reply #5 on: Apr 13th, 2003, 7:45am »
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on Apr 13th, 2003, 6:28am, tommyD wrote:
.  
 
As a side note/warning, do NOT use lithium and shrooms (or other indole-ring hallucinogens) at the same time, unless you want to, like, become ONE with the UNIVERSE, dude... Lithium seems to greatly enhance the psychedelic effects of the shroom treatment.
 
-tommyD
 

 
 
TommyD for some reason you just let the question slide away.
 
Too many shrooms and lithium ?
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Re: Lithium
« Reply #6 on: Apr 13th, 2003, 7:59am »
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Sorry, 0557.  Wasn't trying to answer your question. I was only suggesting research into the verap/lithium combo, as I haven't seen this mentioned lately.
 
That okay with you?
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Re: Lithium
« Reply #7 on: Apr 13th, 2003, 8:02am »
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Sure why not.
 I am awake, It is Sunday and I have a cluster SO all is right with the world. or at least typical for me Undecided
 
Sorry for the dig.
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Re: Lithium
« Reply #8 on: Apr 13th, 2003, 8:08am »
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I am so happy that lithium is working for you!  I took 900mg for a couple years.  It reduced my headache frequency in half.  
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Re: Lithium
« Reply #9 on: Apr 26th, 2003, 6:21pm »
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Nice work Vaughan! After going through the usual rounds of Beta blockers and other run of the mill Cluster preventives for about 24 or so years, my doc of the past 10 years put me on 600mg in the morning and 600mg at night. After about a year and a half (I get clusters about once a year for about 2-3 1/2 months), things were going well, aside from occasional tremor in my hands. Well, about 3 weeks ago all that changed...and I am back to 1-2 attacks a night. I won't be able to see the doc until the end of next week, but I know my lithium level is "safe" right now according to the blood tests he makes me get on a regular basis. How much do you take per day? Do you shake at all?
 
As an aside...does anyone else with eposodic clusters, after you have had a year off or so, and things are just a rosey as can be, and you get that certain headache...deny that "the headache I just had, although mild, was NOT...WILL NOT...CAN NOT be a cluster"? It is impossible for people to know what they are like unless they were to experience it. Not on my worst enemy!
 
Mark
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Re: Lithium
« Reply #10 on: Apr 26th, 2003, 6:52pm »
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Gee, where were you 12 yrs ago when I started taking it?
 
LMMFAO....You dudes are slow......LOL ;D
 
...........................jonny
 
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Re: Lithium
« Reply #11 on: Apr 29th, 2003, 1:36am »
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I got great relief with Lithium.  300mgs of Lithium and 240mgs of Covera once a day got rid of the clusters for me.  Finally, after 10+ years of chasing down the right combo, I found David Kudrow and he wrote the winning prescription.  
 
Good luck to all.
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Re: Lithium
« Reply #12 on: Apr 29th, 2003, 1:39pm »
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on Apr 26th, 2003, 6:21pm, MarkW wrote:
As an aside...does anyone else with eposodic clusters, after you have had a year off or so, and things are just a rosey as can be, and you get that certain headache...deny that "the headache I just had, although mild, was NOT...WILL NOT...CAN NOT be a cluster"? It is impossible for people to know what they are like unless they were to experience it. Not on my worst enemy!
 
Mark

Anytime I begin a new cycle, I go through about 2 days of denial before starting on whatever regimen of prophylactic meds I will be taking. We want SO BADLY for it to be something other than what it is that we play these head games with ourselves. Otherwise intelligent people, too.
 
Bill
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Re: Lithium
« Reply #13 on: May 4th, 2003, 11:26pm »
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i tried that combo once durning a sansert 30 cleanout and i didn't have any problems except it lessoned my sex drive wich didn't work out very well so i went back on sansert wich is now done so i have been thinking of going back and trying it again.
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Re: Lithium
« Reply #14 on: May 6th, 2003, 4:21pm »
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I have been chronic for 6 years and have tried everything under the sun, and the only thing that keeps me from getting them is lithium/verapamil combined.
usually 300 to 900 mg of lithium dependening on the cycle. and 240 of verapamil . have to alter doses every couple of months. very hard on the stomach though. I take diphenoxylate a hour ahead of other meds. try the slow release lithium works better for clusters and is easier on the belly. takes a litlle while to build up in the blood stream,2 weeks. only have to have blood tests done about 2 times a year.   Chris
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Re: Lithium
« Reply #15 on: May 7th, 2003, 2:30pm »
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My experience: ;D
Lithium+Verapamil for me it worked but I got high dosages (1200 mg+900 mg) fortunately without side effects....
 
Good Luck, Zaira Wink  
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Re: Lithium
« Reply #16 on: May 13th, 2003, 3:24pm »
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Lithium made me shake too much - 1000mg a day and, although it helped for a while, the BEAST came back  Angry
 
Seems that no matter what we take, sooner or later the Headaches break through!
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