Author |
Topic: This WORKS, No Drugs, No Doctors, No Shrooms (Read 1485 times) |
|
terrylch
New Board Newbie
Gender: 
Posts: 35
|
 |
This WORKS, No Drugs, No Doctors, No Shrooms
« on: Feb 11th, 2003, 1:37am » |
 Quote  Modify
|
I have spent many hours reading the posts and replies on this website. I have come to the conclusion: old timers give anyone who claims to be able to prevent them, a very bad time. The board regulars seem to be experts on drugs and mushrooms. I can understand why there are no (cured) sufferers among you. Any one who has figured out how to prevent the headaches, doesn't return to this site, after being ridiculed and told they don't have CH?? I have decided to post this (one time only) for the new readers and for the readers who have an open mind, which eliminates most of you.
The following will NOT cost you a dime. No doctors. No drugs. Takes 3-5 minutes. You can do it driving down the road.
This works for me and a few others I have talked to. It might not work for everyone, but you should at least give it a try. Don't badmouth it till you try it !! If it doesn't work you haven't lost anything. The following is what I have done for over 42 years. It stops them before they get started in each cycle. When you can stop the first attack of the cycle the remainder are less severe or do not happen.
My headaches are on the right side. I am not sure what I would do if they were on the left side. But I sure would try the same method, on the other side of my neck. I have learned to control them (prevent them) by using pressure on the back of my neck (see added statement below) at the first sign (I strongly repeat) AT THE FIRST SIGN of one coming on. I hold the pressure with the tips of my fingers until it dissapears. This usually takes 3 minutes. I have recently learned another version of this from reading the archived posts. I now use a combination of the two. I tip my head to the side opposite the pain side. This stretches the muscles, nerves, blood vessel, and whatever else runs up that side of my neck. While stretching I turn my head from side to side while rubbing and putting pressure on the (not sure what) which runs up the back side of my neck ( the side that is being stretched). In most cases the headache should dissappear as fast as it came on. I believe the most important part of this is to do it immediately upon any sign of the beast.
I would appreciate not getting badmouthed for trying to help. If you try this faithfully and do not get any relief, feel free to say so, but don't knock it till you have tried it. All of you who work for the drug companies can stick your foul comments up your ass. Good luck to those who it might help. sincerely, terry
Added 2/21/03 To clear up the question of what is under the area I put the pressure on?? I really have no idea. From the books and internet pictures I have found, there are small blood vessels and lots of nerves. There is a good chance it is the nerves as the spot is near my spinal column. I am not a doctor and have never worried about what was there as long as it worked. The area is a lump which I have always assumed is a muscle that starts at the side of my spinal column and runs up benind my ear. I put the pressure on the lower portion of this lump (just above my shoulder). It seems to help to massage this same spot while tipping my head the opposite direction to stretch whatever is there. If you try it, do so at the first indication of the headache. Do not wait until it is full blown. I hope this helps. terry
|
| « Last Edit: Feb 21st, 2003, 6:03am by terrylch » |
 IP Logged |
terry
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
Gender: 
Posts: 3090
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #1 on: Feb 11th, 2003, 8:29am » |
Quote Modify
|
Terry I have tried this and have found it to temporarily relieve the pain but not to abort a headache. It is also a very dangerous technique to master. You risk passing out and cutting blood flow off to the brain if you don't do it correctly. It has been mentioned here before by a couple other people as being a helpfull way to deal with ch.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #2 on: Feb 11th, 2003, 9:08am » |
Quote Modify
|
Quote:| I have learned to control them (prevent them) by using pressure on the back of my neck |
|
Very interesting, especially since the carotid and jugular run up the side of the neck and there are no veins in the back of the neck.
http://www.ama-assn.org/ama/pub/category/7152.html
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Marc
New Board Newbie
Gender:
Posts: 39
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #3 on: Feb 11th, 2003, 12:35pm » |
Quote Modify
|
I wonder if Terry is describing putting pressure on the Trigeminal nerve bundle.
- Many of us get a lump there
- I apply ice to that location
- I have found that I turn my head to stretch my neck before an attack - my wife usually spots me doing it before I even realize it.
I've never tried pressing there before the pain ramps up, but I know it hurts like hell during one.
Marc
|
|
IP Logged |
|
|
|
JohnM
New Board Hall of Famer
Detox believer
Gender:
Posts: 558
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #4 on: Feb 13th, 2003, 2:50am » |
Quote Modify
|
Hey Terry
Stick around. While I agree with you that most non-drug or mushroom related therapies get a bad press around here, at least the board readers get to see the alternative ideas and theories and can take or leave them as they require, and the flamers can feel free to climb in and attack and try and presuade the readers you are talking absolute crap. Just aquire a thick skin. 
I am hoping that my own personal "cure" therapy works long term. It has had stacks of bad press here, and lots of flaming, but I have had a few personal messages posted from people who were committed enough and tried it out with some success.
But I am sticking around just in case it is not the answer 
I too am sick of taking drugs for this affliction. To those followers here of Doc Goadsby and his hypothalmus theories, well you are entitled to your opinion and may well be proven correct in the fullness of time, but IMHO no-one on this planet yet has a definitive proof of the cause of CH, let alone a cure. Keep looking.
In the last 30 years I have tried pressing and massaging every concievable part of my head, neck, and back to stop a CH. I have tried the ice packs, hot packs, vigourous exercise, jumping into a freezing cold swimming pool, you name it. None of this really helped me. Only thing ever to bring relief was the imigran injection. But go figure, this does not work for lots of guys, and stuff guys swear by here like Maxalt does nothing for me. So horses for courses. I'm really glad your method works for you.
I am seeking a drug free method to PREVENT the CH cycles, and think I may have the answer. I am sure you guys all know what that is, so I won't bother repeating it here. 
John
|
|
IP Logged |
Moderation in everything; including moderation!
|
|
|
Flash
Guest
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #5 on: Feb 16th, 2003, 2:46pm » |
Quote Modify
 Remove
|
If something like that worked for us all then we'd have found it by now. I have rubbed, pressed, massaged, banged head etc and none of it ever did me any good.
I'm glad it works for you, but doubt if it's the way forward for the rest of us.
Flash
|
|
IP Logged |
|
|
|
das
New Board Junior
It's 2:22, make a wish.
Gender:
Posts: 95
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #6 on: Feb 17th, 2003, 9:45am » |
Quote Modify
|
Every time I've tried something that has worked for me, I have always naively thought that finally I had been cured!
At this point, I am not sure if that is possible. The best I can hope for now is temporary relief of 1 or 2 years at a time.
I have come to realize that CH has a mind of its own and it can eventually find its way around preventative measures.
That's just my opinion. Just by reading posts on this board, it is evident that everybody's individual body chemistry has different ways of reacting to all the different treatments that are available. How else can you expalin the facts that some people get hit on the left, other on the right. What works for one person doesn't for another. etc. etc. etc........
Recently I posted asking people about stress as a trigger, expecting (naively again) that many people would reply that like me it was. Of course, more people said that stress was almost helpful(?) and that when they had gone through a stressful situation, the CH would hit them only after the situation had ended.
All I am saying is that the puspose of this board to me is just to be among people that can empathize with you not cure you. No one here has the cure becuase if they did, the board would not exist. We would all be cured.
|
|
IP Logged |
|
|
|
JohnM
New Board Hall of Famer
Detox believer
Gender:
Posts: 558
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #7 on: Feb 18th, 2003, 12:45am » |
Quote Modify
|
Hi Das
I agree with you whole heartedly. As I said I currently believe I have the answer to preventing CH but only many years will tell. I have been posting my method on and off for the past year. I am really hoping iy is a "cure" (for me at least), but the hard part is getting people to buy into the method, which for me is to do a total liver detoxification every 3 months to elliminate toxins. It is not easy and requires immense will power and a change in life style. This is probably the main reason most are unwilling to give it a try and would rather look to the pharmaceutical industry for the answer.
John
|
|
IP Logged |
Moderation in everything; including moderation!
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #8 on: Feb 18th, 2003, 9:09am » |
Quote Modify
|
Quote:It is not easy and requires immense will power and a change in life style. This is probably the main reason most are unwilling to give it a try and would rather look to the pharmaceutical industry for the answer.
|
|
I think the main reason is that they believe that CH is a genetic condition related to the hypothalamus and detoxing has nothing to do with CH. If they thought a lifestyle change would help stop the pain, I'm sure they would do it.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
JohnM
New Board Hall of Famer
Detox believer
Gender:
Posts: 558
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #9 on: Feb 18th, 2003, 9:38am » |
Quote Modify
|
So Bob - its all about beliefs and what people think then. You are almost certainly right there. My own beliefs on this subject have changed over time. I have tried to be more open minded about alternatives to drugs.
Right now I don't buy into the hypothalmus "theory" and it being "genetic". God bless Goadsby and co for fighting for the cause though, and they may well be absolutely correct. IMHO what they are seeing in the hypothalmus may well be just the symptom, not the cause of CH.
I have also been very grateful for Imigran Injections these past 9 years, as I had to just ride out every single CH before they were around, but I feel there has to be a better, simpler, less dangerous (and much cheaper) way.
I do know for a fact that I am currently enjoying exeptionally good health for longer than I can remember having done in the past. I don't feel stressed, but am constanlty under the same pressures as I have always been, I sleep better and wake refreshed when I used to be tired in the morning. My blood pressure is just about back to normal and I have not had so much as a even a cold, let alone a headache for the past 10 months now, while all around had been hit by bugs. I have also lost quite a bit of weight (still a bit overweight though ;D ) so I reckon I must be doing something right (for me). It is all about believing I am right until proven otherwise.
I have offered to eat humble pie big time to this board if my theory fails me in the next few years, but at least I have some hope right now and have been willing to give it a shot. I have nothing to lose (except for the effort required) and everything to gain.
John
|
|
IP Logged |
Moderation in everything; including moderation!
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #10 on: Feb 18th, 2003, 11:24am » |
Quote Modify
|
John,
I sure can't say anything against living a clean and healthy lifestyle. It can only help. I'm sure the psychological well being that comes from it can only help also.
I'm not poo pooing your beliefs. I respect the fact that you are entitled to them just as you respect others right to not believe in them.
It's really all about acceptance. You've found something that you believe works for you. You've shared that belief with the others here. It's up to them to embrace that belief or discard it. Either way it should be no skin off your nose. You've done your part.
I hope your sytem continues to work for you. No pain is everyones gain.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
terrylch
New Board Newbie
Gender:
Posts: 35
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #11 on: Feb 18th, 2003, 7:53pm » |
Quote Modify
|
John,
I am sure your method will make anyone healthier and feel better but CH seem to be associated with one side of hte head or the other (not both at the same time). I believe the cause of CH is something that affects the nerves, blood vessels, node vessels, or whatever that just serve the one side of the head. I wish you well with your plan. I also appreciate hearing it is working. Sometimes one needs to have faith in their beliefs for them to work. I think this site should be more appreciative of any idea that might help or that is working for anyone.
terry
|
|
IP Logged |
terry
|
|
|
gtar_man
New Board Junior
I love YaBB 1G - SP1!
Posts: 78
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #12 on: Feb 20th, 2003, 8:10am » |
Quote Modify
|
Yo, John - how does one go about doing a total liver detox?
I'll try ANYTHING, once, conventional OR bizzarro...
Mike
|
|
IP Logged |
I'm not a damn newbie! I just changed ISP's!
|
|
|
JohnM
New Board Hall of Famer
Detox believer
Gender:
Posts: 558
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #13 on: Feb 20th, 2003, 8:33am » |
Quote Modify
|
Mike
I am sending you an email to try and explain what I do. I have posted several times on this previously and do not really want more flaming right now.
John
|
|
IP Logged |
Moderation in everything; including moderation!
|
|
|
deadheadrob
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #14 on: Feb 20th, 2003, 7:11pm » |
Quote Modify
|
Excellent! I'm right sided and learned that massaging the large artery in my neck would lessen the pain and length of attacks. Only would delay them until night time though when it's nearly impossible to abort them. I like to keep the worst attack for when I'm awake and could do something about it. That meant staying up all nite, but doing computer work it was possible. For the last 2-1/2 years i've been virtually ha free due to the correct use of LSD. Was 20 years chronic til that point. Now if I feel a twinge or a shadowy feeling I just massage that artery and good-bye. Sometimes I do have to use a cafergot due to sensitivity to chemicals-BUT NO CYCLES AT ALL- thanx for the reinforcement of natural relief methods. I've found all kinds of natural triggers also though- high altitude, low pressure systems, light cycles(i.e: too much light or dark) and sleep patterns. Oh!- be careful if you mention to your doc you get relief from massaging your neck- he might suggest a lidocaine injection or nerve block in your neck. I have to go to the VA and don't want to be a guinea pig any longer.
|
|
IP Logged |
|
|
|
terrylch
New Board Newbie
Gender:
Posts: 35
|
|
Re: Change in wording
« Reply #15 on: Feb 21st, 2003, 5:53am » |
Quote Modify
|
To all,
After further study, it appears there are no major veins in the area I put the pressure on. There are a lot of nerves there though. I have added a paragraph to the original post, to try to clear up the location of the pressure point. I am thinking, this method has not worked for many of the people that claim to have tried it, because they waited till they had a full blown cluster before applying the pressure. (maybe)
again, just trying to be helpful, terry
|
|
IP Logged |
terry
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
 
Gender:
Posts: 1406
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #16 on: Feb 21st, 2003, 6:40pm » |
Quote Modify
|
on Feb 18th, 2003, 7:53pm, terrylch wrote:
Sometimes one needs to have faith in their beliefs for them to work.
terry |
|
This is the basis for all "placebo effect" temporary "cures." Anything under a 20-30% effective rate for a group can usually attributed to a mind over matter, placebo effect.
I hope your method continues to give you and anyone that gives it a legitimate try, continued success.
Success in "life with clusters" isn't necessarily measured in cure rate but in bringing someone enough pain free time, and hope, to go on living.
on Feb 18th, 2003, 7:53pm, terrylch wrote:
I think this site should be more appreciative of any idea that might help or that is working for anyone.
terry |
|
It would be nice but...this is reality ya know, and not a fantasy site. I think most ideas are accepted but in reality, people here have been trying *anything* for YEARS, and in many cases have tried every idea put forth with negative results. This will lead to negative remarks. many people have experienced the placebo effect first hand and have settled into what they have the best success with and will rely upon that method until medical science comes up with something better and can *prove* it.
OTOH, don't feel too bad.....707 people to date have tried the "water" method, acheiving no help at all,and that has its own button!
If enough people give your method a try and 10% of them show some relief, you (and mr. morgan) too may get a button. 
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #17 on: Feb 21st, 2003, 6:55pm » |
Quote Modify
|
on Feb 18th, 2003, 9:09am, Bob P wrote:
If they thought a lifestyle change would help stop the pain, I'm sure they would do it. |
|
Not necessarily Bob.
77% haven't tried quitting smoking.
59% haven't tried changing their diet.
56% haven't even tried stopping drinking.
I think we (at least some of us) search just as hard sometimes to find a reason *not* to change our lifestyle. It probably has something to do with not wanting to give in any more than we already have, to this destructive disease.
BobW
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
JohnM
New Board Hall of Famer
Detox believer
Gender:
Posts: 558
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #18 on: Feb 22nd, 2003, 5:28am » |
Quote Modify
|
nice stats BobW
Is this some sign of encouragement for me and my method? 
Some big sacrifices may well be needed to beat this bastard.
John
|
|
IP Logged |
Moderation in everything; including moderation!
|
|
|
terrylch
New Board Newbie
Gender:
Posts: 35
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #19 on: Mar 7th, 2003, 3:48am » |
Quote Modify
|
To all,
It looks like you were right.  Evidently my pressure idea hasn't helped anyone but me. I apologize for taking up space on your board. I had good intentions and the price of the treatment was right. This doesn't mean I am going to stop using my "placebo" method. I will just do it in silence from now on (maybe another 40 years).
I wish you all well, and may God be with you, terry
|
|
IP Logged |
terry
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
BobW
« Reply #20 on: Mar 7th, 2003, 9:42am » |
Quote Modify
|
Where did those stats come from?
And, of those who did try quitting smoking, drinking, changing diet - how many did it help?
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: BobW
« Reply #21 on: Mar 7th, 2003, 10:14am » |
Quote Modify
|
on Mar 7th, 2003, 9:42am, Bob P wrote:| Where did those stats come from? |
|
73% of us can't figure out where those stats come from either.
|
|
IP Logged |
|
|
|
Dave_W
New Board Junior
Pain Free Days!!!
Gender:
Posts: 83
|
|
Re: BobW
« Reply #22 on: Mar 7th, 2003, 1:04pm » |
Quote Modify
|
on Mar 7th, 2003, 10:14am, Ted wrote:
73% of us can't figure out where those stats come from either.
|
|
93.451% of all statistics are made up on the spot. ;D
Thanks for the chuckle, Ted-ola! I needed one just now.
To Terrylch (is that Russian?), hang in there, bro. Thanks for the post -- it's not for me but hey, neither is a hot chicken-broth enema....
Pain Free Days, Dudes and Dudettes of the ClusterBoard!!!!!
Your Old Decrepit Friend
|
|
IP Logged |
Old Decrepit Dave
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: BobW
« Reply #23 on: Mar 7th, 2003, 3:20pm » |
Quote Modify
|
on Mar 7th, 2003, 9:42am, Bob P wrote:Where did those stats come from?
And, of those who did try quitting smoking, drinking, changing diet - how many did it help? |
|
I dug very deep into the bowels of the WWW using my "boggle" search engine and found them in a very obscure site..... ;D
http://www.clusterheadaches.com/cgi-bin/meds.cgi
You can find the answers to your followup questions there also. Its a little confusing (not to complain or anything) because the percentages listed are skewed by including all the people that *didn't* try each medication/treatment listed. So, when it shows that something helped 10% of the respondents, it's very misleading IMHO. You need to subtract all the people that didn't try it and come up with the correct percentage of people that were helped, that actually *tried* something.
Four out of five dentists agree, that 63% of the people reading this will disagree with me, but I've been told that 100% of the people that don't read this *would* agree, if only they knew.
BobW
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
Gender:
Posts: 3436
|
|
Re: This WORKS, No Drugs, No Doctors, No Shrooms
« Reply #24 on: Mar 7th, 2003, 5:33pm » |
Quote Modify
|
And,
the ones who said they were helped by these treatments, be they small in number, are probably meegrainers who are here under the misconception that they have CPH.
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss