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Riccardo
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Very important research...
« on: Jan 16th, 2003, 2:55am » |
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In Turin (my home) a DNA research on the CHers has been started .
This research is in collaboration with the Neuroscience Tanz Institute, Università of Toronto, Canada.
They are seeking CH patients to do genetic researchs and (perhaps...next year) to lay the CH genetics characteristics on the complete human genome.
This is doing also by Doc. Goadsby with the Leicester University (another one study).
May be that, in the near future, we can define if our children will suffer from CH or not, to adjust the meds taken, and more far..... to find an "universal" cure for the CH.
Our OUCH Italia people are "scheduled" for a blood test here in Turin, to lay out the DNA characteristics.
I will update you as soon as possible
Ciao friends
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Riccardo OUCH-Italia
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Karla
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Re: Very important research...
« Reply #1 on: Jan 16th, 2003, 8:55am » |
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Thank you so much Ricardo for the wonderful news. This is very exciting. Be sure to thank OUCH Italia members for helping in this study and paving the way for the rest of us. Hopefully this will lead to some discovery and more information about us.
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Karla
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Margi
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Re: Very important research...
« Reply #2 on: Jan 16th, 2003, 9:58am » |
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That's awesome, Riccardo - good for you!! You think they'll find that extra sex drive gene that Davide (or was it Sten?) insists is there? 
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kathy copelin, ch.com 8/8/06
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cleon
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[i][/i] :DRe: Very important research...
« Reply #3 on: Jan 17th, 2003, 9:33am » |
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Thats great news - we need it in Aussie too.
Wonder how long that will take!?
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Riccardo
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Re: Very important research...
« Reply #4 on: Jan 17th, 2003, 9:38am » |
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hmmm Cleon... i think that the measurement is in years, but.....better than nothing....
The DNA researches take long time and so much money.....
Ciao
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Riccardo OUCH-Italia
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Bob P
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Re: Very important research...
« Reply #5 on: Jan 17th, 2003, 11:17am » |
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Outstanding!
It may take a while to complete this research but I think that when it is finished we will finally be able to say, I have clusters because ......
If you can get any information on this project Riccardo, please send it to me so I can post it on the OUCH Research page.
And, thanks for shedding blood for the rest of us clusterheads.
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firebrix
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Re: Very important research...
« Reply #6 on: Jan 17th, 2003, 3:49pm » |
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This is good news Riccardo!
Please keep us updated.
Thank you for sharing this and also for taking part.
This is a major step in understanding CH.
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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domm
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Re: Very important research...
« Reply #7 on: Jan 18th, 2003, 11:31am » |
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Riccardo - tremendous undertaking !!! Is something being done in the US? anyone know? I'd be happy to participate.
domm
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Margi
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Re: Very important research...
« Reply #8 on: Jan 22nd, 2003, 11:37am » |
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Riccardo, the following was in our morning paper...is this the same study that you're involved with (only this one is migraine)?
"Two Italian scientists have discovered a gene liked to migraines, which could pave the way to banishing all headaches.
The research of geneticist Giorgio Casari and neurscientist, Roberto Marconi, appeared yesterday in the online journal Nature Genetics. The gene causes a malfunction of the pump which shifts sodium and potassium through cells. Mutant cells were swollen, leading to the pain, flashing lights and tingling sensation that debilitates "aura" sufferers.
"The chromosome is so well researched, it will not be difficult or take long to find a therapy for it," Casari said.
This study was done in Milan, Riccardo - but I'm wondering if the two studies are linked. Even though this is for migraine, it's still encouraging from a research point of view for clusterheads.
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| « Last Edit: Jan 22nd, 2003, 11:40am by Margi » |
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Riccardo
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Re: Very important research...
« Reply #9 on: Jan 22nd, 2003, 11:52am » |
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No, it's not the same and....sadly.... these are news not too correct...
The gene has been identified ONLY for a particular, ultra rare kind of headache....... all the rest..... journalists....
For "OUR" research, we have to wait a minimum of a couple of years......
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Riccardo OUCH-Italia
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Margi
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Re: Very important research...
« Reply #10 on: Jan 22nd, 2003, 11:57am » |
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Rats. 
I found the connection to the sodium and potassium interesting though. Potassium deficiency has been discussed here before, in relation to clusterheads. And the Water Water Water treatment that Doc Jerry brought us years ago, addressed the possibility of an overabundance of salts in your systems...
What do you mean 'ultra rare kind of headaches', Riccardo. Is this study I mentioned NOT about migraines?
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Riccardo
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Re: Very important research...
« Reply #11 on: Jan 23rd, 2003, 3:37am » |
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Sorry Margi, I made a mistake (In Italy the names migraine and headaches are practically for the same diseases):
The exact gene discovered is about hemiplegic familiar migraine.
Is, anyway, very very rare.
But yes, agree on your WWW (we have a couple of people that do this and get a high relief) sodium and potassium deficiency
Ciao Marghee
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Riccardo OUCH-Italia
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ZAIRA
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Re: Very important research...
« Reply #12 on: Feb 3rd, 2003, 2:32pm » |
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The 31/01 I was in Torino/Turin for a test.
I believe very much in this research  and I hope it brings some good results  ... if not for us I hope for our kids... than I yet don’t have ;D...
Ciao, Zaira 
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