Author |
Topic: Re: May sound stupid...but works for me (Read 1082 times) |
|
domm
New Board Old Timer
I love YaBB 1G - SP1!
Gender: 
Posts: 474
|
 |
Re: May sound stupid...but works for me
« on: Nov 23rd, 2002, 9:42pm » |
 Quote  Modify
|
Roxy - welcome and I hope you've clicked your way thru this site and the OUCH website. There is tons of great info on both sites.
Click on the medical info and the medications buttons on the left of the screen. Nexium is a stomach pill for folks with ulcers and such. Indo usually doesn't do squat for cluster headaches. Ueli will know exactly what its used for.
The prefered drugs for CH are Oxygen and triptans (Imitrex) for abortives, and Verapamil (and others) as preventatives. Many docs will get a new CH patient on Prednisone and Verapamil. The pred stops the CH while the Verap builds up in the system. As you come off the pred, the verap kicks in.
Don't be embarassed about the Big O. There was a long discussion on the board about this not long ago. Do a search and you may be able to find it. The conclusion was that you are giving the blood somewhere else to go, rather than aggrevate the trigeminal nerve. Many confessed to using this method to abort an attack.
Read, read, read. After you have absorbed the info from this site, you will know more about CH than most doctors.
Good luck in finding the right set of meds that work for you.
domm
|
|
 IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #1 on: Nov 24th, 2002, 2:02am » |
Quote Modify
|
Thank you so much for pushing that to the top. I searched the site but didn't find much.
I know all the guys were saying they can't get off during a ch. It doesn't seem to work unless you can catch it at the very beginning of an attack.
I just know I'll keep using it as long as it works...doesn't seem to have alot of bad side effects!!!! Anything rather than more meds.
Roxy
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
|
|
Re: May sound stupid...but works for me
« Reply #2 on: Nov 24th, 2002, 2:46am » |
Quote Modify
|
Welcome Roxy and whatever helps.....helps. As Domm says, this has been discussed here before. There seems to be something to the circulatory component to CH. It seems to go along with Dr. Wright's circulatory method. It makes some sense to me.
Glad to have you but sorry it's necessary.
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
forgetfulnot
Guest
|
|
Re: May sound stupid...but works for me
« Reply #3 on: Nov 24th, 2002, 11:38am » |
Quote Modify
 Remove
|
On e little ?, what do you neeed a vibrator for if your husband is there? 
Lee
|
|
IP Logged |
|
|
|
Jarvis
New Board Old Timer
Gender:
Posts: 251
|
|
Re: May sound stupid...but works for me
« Reply #4 on: Nov 24th, 2002, 12:53pm » |
Quote Modify
|
Sorry Roxy but I cant resist. Charlie- your sorry that whats necessary? ............Roxy- could you perhaps describe your cure in more detail...................maybe a video for sommeliers publicity show....may cure us all................Fergetfull- as she said not medicinal..there is a limit to mans ability 6 months maybe, but a whole year straight even I couldnt pull that off. ....just funnin here someone had to start..... Seriously Roxy its really good to know that something works and am sure this is nothing to be embarrassed of, untill someone like me butts in....wait till I tell the boys. 
|
| « Last Edit: Nov 24th, 2002, 1:17pm by Jarvis » |
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #5 on: Nov 24th, 2002, 1:22pm » |
Quote Modify
|
Well, I got hit twice this morning with the little darlins'...the main problem is my husband is working 400 miles away in Houston...I have to stay home on the ranch. And the ultimate stupidity is forgetting to recharge...I know husbands need recharging too, but they can usually manage in a clinch!
But, like I said before...I much prefer the side effects of the non-meds cure. I've tried exercise, which seems to work pretty well, but I've had 8 knee surgeries, so running is out...climbing on the horses doesn't exert enough energy, so I'm still searching for options. I'd honestly like to get back to sex as a everyday fun thing...don't think husband likes the responsiblity of getting rid of that much pain!
Roxy
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Jarvis
New Board Old Timer
Gender:
Posts: 251
|
|
Re: May sound stupid...but works for me
« Reply #6 on: Nov 24th, 2002, 1:35pm » |
Quote Modify
|
Roxy most husbands hate to take on that much responsibility most prefer to be the pain it seems. I too use exercise and helps me. my excersises are performed differently however than yours. [and less than half the satisfaction i might add]
|
|
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #7 on: Nov 24th, 2002, 1:45pm » |
Quote Modify
|
I've actually tried hauling hay. We didn't have any in the field, so I moved some from one side of the barn to the other...quickly decided the less strenuous cure was better...of course trying to concentrate through the pain, the kids banging on the door hollering, "Mom, what are you doing!" and praying they don't hear the electronic help I'm using...does send my out looking for other methods at times..
Just wish I could move to the eposodic group.
Roxy
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Jarvis
New Board Old Timer
Gender:
Posts: 251
|
|
Re: May sound stupid...but works for me
« Reply #8 on: Nov 24th, 2002, 2:10pm » |
Quote Modify
|
Roxy I have been chronic and now I am episodic. Tried 98% of the reccomended meds out there too and none have helped me yet. I say if you have found something that helps more power to you, your one of the lucky ones.
|
| « Last Edit: Nov 24th, 2002, 2:40pm by Jarvis » |
IP Logged |
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: May sound stupid...but works for me
« Reply #9 on: Nov 25th, 2002, 1:31am » |
Quote Modify
|
Hi Roxy. Sorry you're hurting. I'd be happy to help abort an attack for you.
Ted "The Imitrex" Marcus!
|
|
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #10 on: Nov 25th, 2002, 1:34am » |
Quote Modify
|
Well thanks Ted...I think. Should have been around about an hour ago! I'll take any support I can get.
Sight unseen...my,my you are a brave, brave man!
Roxy
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: May sound stupid...but works for me
« Reply #11 on: Nov 25th, 2002, 1:55am » |
Quote Modify
|
Well, here's to me being here for any other attacks you might get. Or feel free to use me as a preventative too. Who knows what powers I might have to help. Verapamil is used twice per day. Just let me know. 
|
|
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #12 on: Nov 25th, 2002, 4:20am » |
Quote Modify
|
You are nothing if not generous.
Roxy
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Slammy
CH.com Alumnus
New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
Gender:
Posts: 1418
|
|
Re: May sound stupid...but works for me
« Reply #13 on: Nov 25th, 2002, 2:38pm » |
Quote Modify
|
on Nov 25th, 2002, 4:20am, Roxy wrote:You are nothing if not generous.
Roxy |
|
Bahahaha!!! That's Ted! ;D
Quote:| my husband said he wasn't medicinal, |
|
LMAO! This is just ONE of the many advantages of being a Slammy! 
Slammy 
|
| « Last Edit: Nov 25th, 2002, 2:41pm by Slammy » |
IP Logged |
That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
|
|
|
Peppermint
CH.com Alumnus
New Board Hall of Famer
Work it out baby!
Gender:
Posts: 2605
|
|
Re: May sound stupid...but works for me
« Reply #14 on: Nov 25th, 2002, 3:03pm » |
Quote Modify
|
hmmmmm..................
Quote:| LMAO! This is just ONE of the many advantages of being a Slammy! |
|
 ....lookout Roxy....! It's the sequel to "the big 'O'"
Peppermint
|
|
IP Logged |
You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #15 on: Nov 26th, 2002, 3:55pm » |
Quote Modify
|
I honestly didn't mean to start a sequel.
And I do really appreciate everyone not laughing...well, at least not laughing too hard.
R
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Slammy
CH.com Alumnus
New Board Hall of Famer
Lust Without Remorse! Love Without Regret!
Gender:
Posts: 1418
|
|
Re: May sound stupid...but works for me
« Reply #16 on: Nov 26th, 2002, 4:12pm » |
Quote Modify
|
on Nov 26th, 2002, 3:55pm, Roxy wrote:I honestly didn't mean to start a sequel.
And I do really appreciate everyone not laughing...well, at least not laughing too hard.
R |
|
you're joking, right?
Slammy
|
|
IP Logged |
That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
 
Gender:
Posts: 1786
|
|
Re: May sound stupid...but works for me
« Reply #17 on: Nov 27th, 2002, 1:37pm » |
Quote Modify
|
Maybe ya should get a few pairs of those vibrating knickers. That way, ya can just drop what you're doin', hit a button, and ride the wave.
PFDAN.................................. Drk^Angel
|
|
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #18 on: Nov 27th, 2002, 1:39pm » |
Quote Modify
|
Tried that...got bucked off my horse!
R
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Azrael
New Board Hall of Famer
Sometimes... Being good just ain't worth it.
Gender:
Posts: 1786
|
|
Re: May sound stupid...but works for me
« Reply #19 on: Nov 27th, 2002, 2:32pm » |
Quote Modify
|
The horse was probably wonderin' what the Hell you were doin'... LOL
PFDAN................................... Drk^Angel
|
|
IP Logged |
"Hello police? I would like to report a robbery. Someone stole all my beer while I was drunk."
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #20 on: Nov 27th, 2002, 6:43pm » |
Quote Modify
|
He does look at me a little strange now. 
R
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Peppermint
CH.com Alumnus
New Board Hall of Famer
Work it out baby!
Gender:
Posts: 2605
|
|
Re: May sound stupid...but works for me
« Reply #21 on: Nov 27th, 2002, 9:22pm » |
Quote Modify
|
Roxy.... You scared the horse ??? 
|
|
IP Logged |
You like apples? How ya like them apples?
When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
|
|
|
sickofit
New Board Newbie
Wish I never heard of CHs(just diagnosed after 2 y
Posts: 8
|
|
Re: May sound stupid...but works for me
« Reply #22 on: Nov 27th, 2002, 10:32pm » |
Quote Modify
|
Got my wife to read this one!!!!THANX!!!!!!!!Anways just diagnosed myself after 2 years of hurtin.Verapamil,im. injections,midrin,water(all the usual) and alot of chocolate seems to help believe it or not,just ate half a pound and a gallon of water should be good for the night.Guess chocolate and sex have alot in common after all!!!!
|
|
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: May sound stupid...but works for me
« Reply #23 on: Nov 27th, 2002, 10:50pm » |
Quote Modify
|
Oh my god...I never thought to add chocolate!!!!!!
Just wondering...did you try the chocolate syrup or what?
R
hey peppermint....I think I scare alot of things
|
| « Last Edit: Nov 27th, 2002, 10:52pm by Roxy » |
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
Ted
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 1
|
|
Re: May sound stupid...but works for me
« Reply #24 on: Nov 28th, 2002, 1:51am » |
Quote Modify
|
I just realized I spelled my name wrong.
Ted "The Chocolate Syrup Imitrex" Marcus.
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss