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Topic: A surgical Tx that could help cluster headaches (Read 596 times) |
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meggregg
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A surgical Tx that could help cluster headaches
« on: Nov 11th, 2002, 9:11pm » |
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I am new to this site and have not seen anyone touch on the subject of surgeries for the tx of cluster headaches. I have suffered from them for the past 8 years. Today, I was seen by a neurosurgeon at Allegheny Hospital in Pittsburgh, PA, and was advised that there is a procedure which is being perfected that can alleviate, if not eliminate, the cluster headaches all together. My case in particular involves a specific artery which expands and "scrunches" the surrounding nerves, specifically those that control the facial nerves and hearing and balance. I get my headaches daily, ranging anywhere from mild to severe. My best pain tx is Stadol. Regardless, a procedure can be done to move the artery and nerves, inserting a sponge to cushion the area and give the artery room to expand without scrunching the nerves, insert a mesh plate and ta da! I have been given a 75% chance of eliminating the headaches. THis is truly a gift. At this point, it is preliminary and once I go back for even more testing, I will then be notified if I am a candidate for same. This dr. is also making a documentary of his patients. As I know more, I can let anyone know who is interested. Hope this info. may give someone else some hope that maybe there is a light at the end of the tunnel!!!!
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meg
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Opus
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Re: A surgical Tx that could help cluster headache
« Reply #1 on: Nov 11th, 2002, 9:38pm » |
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In the past new board posts ( unfortunatly they are missing right now) There have been a few that have had surgury. They thought they were cured after a year but then the CH came back. The second surgury resulted in CH worse than before. Just becareful and it would be best to never get a second surgury. PJB
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David G
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Re: A surgical Tx that could help cluster headache
« Reply #2 on: Nov 20th, 2002, 8:58pm » |
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I suffered from CH for over 10 years. I had surgery from Dr. Guyuron in Cleveland about a year ago and have been CH free. I posted this information 3 months after my surgery and a lot of people on this message board attacked me. He is conducting clinical trials now. I suggest calling his office 440-461-7999 for more info.
David
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David G
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Re: A surgical Tx that could help cluster headache
« Reply #4 on: Nov 20th, 2002, 9:33pm » |
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Mark,
I was a patient at the Clevland Clinic before my surgery. My surgery disected the corugator muscle, repaired a deviated septum, and the disection of some of the branches of the trigeminal nerve. The main nerve was not cut.
David
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