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Topic: New but Thankful ! (Read 305 times) |
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CHERRILL
New Board Newbie
I love YaBB 1G - SP1!
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New but Thankful !
« on: Oct 30th, 2002, 6:41am » |
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Hi Everyone,
On 10/2 I woke up 3x in the middle of the night in the worst pain ever. This continued on for a couple of nights always the same. Severe pain on the left side of my head affecting my teeth, jaw, and ear. After a few days of this I went to the doctor. She told me it was TMJ and gave me a muscle relaxer. I asked her if it could be CH and she said no that CH is always during the day and brought on by stress. After 2 days of taking the muscle relaxer and still no releif I decided to look up ha's on the net. That's when I came across this web-site and I knew what I had. This web-site has been a life saver to me. After reading alot of info I called the doc back and told her to give me imitrex. That worked great to get me through the nights. Finally, I was put on a 10 day dose of prednisone. During my time taking the pred. I only suffered with 2 ha during those 10 days. I finished the pred. on 10/27 and have had 2 ha's since then. I'm still waiting and wondering what's going to happen now. I assume this is my second bout with CH. The last time was three years ago when I was rear ended in a car accident. I started having ha's two days later. Only one a night for about 1 1/2 months but the same thing. Same side of the head, same pain, lasting the same amount of time. Since this is all kind of new I don't know how long this will last or when it will return. All I do know is that I have learned alot and that I will continue to get my refills on imitrex wether I have the ha's or not. I would just like to say this site is the best. It has provided me with so much info. and support that I'm not alone. Without all of you I would have suffered alot more.
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ChristineL
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Cherrill,
Welcome..........sorry you have to be here but there is a ton of great info and good people to help.
My CH's came back in July after a 12 year remission. I also started on Pred which lessened the severity and occurances but did not end the cycle. I have switched to Verapamil which so far (knock on wood) is working. I did have a shadow the other night but haven't had a full blown CH since the beginning of Sept. I also use O2 which works great when a CH starts and Imitrex injections for the real bad ones.
You may want to consider switching Dr's and find someone who understands CH's or at least is willing to learn. My GP didn't know squat about them but I printed out everything I could find off of this site and took it all to her in a file. She has been wonderful about reading the material and giving me what I need.
Hope you are PF soon.
Chris L
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Karla
CH.com Alumnus
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One of Many and Never Alone - Join OUCH
 
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Re: New but Thankful !
« Reply #2 on: Oct 30th, 2002, 2:34pm » |
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I am glad that you found the correct diagnosis. Sorry you are suffering and here with us. There is a ton of info for you to take to your dr. If he wont review it then I would look for a new dr. You will need one that is knowlegeable on ch.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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domm
New Board Old Timer
I love YaBB 1G - SP1!
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Re: New but Thankful !
« Reply #3 on: Oct 30th, 2002, 6:03pm » |
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Cherrill -sorry to hear you are in pain, but you found the right place. These folks and this site have tons of experience and info. Click your way through it and raed, read, read. You probably already know more about this damn horrid condition than most doctors.
hang in there and I hope you find the right set of meds that work for you
domm
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Lori
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Re: New but Thankful !
« Reply #4 on: Oct 31st, 2002, 2:53am » |
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Cherryll,
sorry you are having to deal with this, but glad you found this site. It was a lifesaver for me too. With the info and input from other chers I was able to arm myself with what I needed to be sure I was treated properly for once. It was a great feeling and I owe it all to DJ for this site and the others here who were supportive. Good luck to you and PFDAN.
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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captdshea
CH.com Alumnus
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Re: New but Thankful !
« Reply #5 on: Oct 31st, 2002, 3:00am » |
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Cherrill- Sorry to hear your in pain.
Your doc. does know what CH is. Print out the reports here and educate him/her.
CH is strange, I have been pain free 6yrs. and began
to suffer again last week.
Hope your feeling better soon.
David
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"Seek knowledge and truth"
"Respect divergent points of view"
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