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Mark C
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Sense of taste
« on: Oct 17th, 2002, 8:46pm »
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I have been on Topamax 100mg 1 x a day and Medrol dosepack for the last two weeks coming off of a month long bender that has been one of the worst. I found this place , so it wasnt all bad, anyway, here is my problem.  
I cant taste anything, nothing. My tastebuds left me. I have had Medrol a bunch but never the Topamax. At first I didnt think I was going to make it past the side effects of the Topamax, but I think its better, or I am getting to like it, except for not being able to taste anything. You all done this? Do I need a new cook?
My head has not hurt in about two weeks now and I might be willing to make the trade if its forever.
Tasteless in Tennessee,
Mark ;D
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Re: Sense of taste
« Reply #1 on: Oct 18th, 2002, 10:12am »
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 Hey, Mark,
 
   That's Great news about being pain free!!!! Yeah!!!!  Grin  Grin  Grin
 
    I haven't ever takin' Topamax but, I have noticed when I take Prednisone it screws with my taste buds.
Don't know if that's typical or not.
 
     Good luck with being pain free.
 
 
    Sue Ellen
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Re: Sense of taste
« Reply #2 on: Oct 18th, 2002, 11:07am »
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I took topomax for several months.  It made me insane for three days, destroyed my sense of taste and part of my memory.  I would have been willing to accept all of that if it had worked, but it did not.    
Also from Tennessee.
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Re: Sense of taste
« Reply #3 on: Oct 18th, 2002, 4:37pm »
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Hi Mark,
 
at : www.rxlist.com/cgi/generic2/topiram_ad.htm
 
you can find:
 
Special Senses Other Disorders: Frequent: taste perversion. Infrequent: taste loss, parosmia  
 
During my bout in 2000 I was taking topiramate for 6 months and wouldn't take it any more, even if there were some positive effects on CH - the negative effects were too bad. Anyhow, I didn't experiance taste loss, but several beverages and dishes changed their taste in a sometimes disgusting way: Soda water tasted like sewage, as one example. All those effects disappeared within a few days, once I stopped taking topiramate.
 
Thomas
 
 
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Charlie
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Re: Sense of taste
« Reply #4 on: Oct 18th, 2002, 11:02pm »
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I don't think I lost my taste with Topamax....but this thing sent me around the bend, so how would I know?
 
Actually, even though it bugs a lot of us, it can be a very effective little drug.  Made my ears ring like crazy.
 
Charlie
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Mark C
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Re: Sense of taste
« Reply #5 on: Oct 20th, 2002, 3:19am »
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The Medrol is gone and I am afraid the ghosting is back. That is not good.  I am still taking the Topamax but like all of the the other preventive meds I have had it dosent seem to work for me. I have not had a HA, yet,
just some light to medium ghosting. The knot in the back of my neck is getting bigger and tight, and the knot in my stomach is getting bigger. I am starting to get a little anxious. If this spell is not over I am going on 2 1/2 months now. I have not had a HA for about 3 weeks now and with my history I could usually say I was over it, but I have learned there is nothing normal about this shit. I aint gonna panic.
See ya later,
Mark
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