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   Did Meds Screw up Your Schedule?
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   Author  Topic: Did Meds Screw up Your Schedule?  (Read 222 times)
renrob
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Did Meds Screw up Your Schedule?
« on: Sep 8th, 2002, 2:06pm »
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My CHs were like clockwork for 6 years.  Then I went and got some meds and all bets have been off since then.  Is there such a thing as coincidence?  My doc at the time thought it was just coincidence that my pattern went koo-koo, but I'm not so sure.  Anyone else have a similar story?
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kim
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Re: Did Meds Screw up Your Schedule?
« Reply #1 on: Sep 8th, 2002, 8:00pm »
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Yes.  In the beginning, I took NO meds.  Cycles ran the course like clockwork.  When I got older I decided to go to the doctor and get help.  that's when I began the journey with the medication trip.  That is also when my cycles have been the most horrific.
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justin
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Re: Did Meds Screw up Your Schedule?
« Reply #2 on: Sep 9th, 2002, 12:10pm »
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i've been doing the trial an error thing to find something that will work. so far i've tried 7- or 8 combos (i.e. lithium, verapamil, depakote, dhe, topomax, diltiazem) and everytime i try somethign new the schedule and frequency and level of attacks changes. i think so far verapamil has been the best giving me 1-2 attacks a day and only really the first one in the morning being bad. but i didn't get them at night then so i could at least sleep. when i went to depakote i would get 3-4 at night and then a couple bad ones in the day. so it was all over the place. that's what's making this so frustrating is that there isn't a real consistency to test the drugs and see what's working. it's like not having a control group in a study. oh well, hopefully one day something will just work and they will go away.
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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