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Topic: Horner's Syndrome Question (Read 1318 times) |
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Jazsaunt
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Hi All. Bill has a few questions, and was wondering if any of you could answer them or at least send some comments.
1. Does this damn Horner's syndrome ever go away? 
2. When a cluster cycle is going away, do they kind of end the way it started?
Today he is complaining of his eye being soar. He isn't sure if this is due to the horner's syndrome, or due to his cycle. He says that his eye feels like it did when this first started. He isn't having any bad clusters, but around 2:00 am at work he has headaches that are mostly in his eye....shadows I'm guessing. He's in his 5th week, and praying for it to end.
Any info. will be appreciated. Make him feel better anyway. Thanks.
Bill & Michelle
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NotH20
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Re: Horner's Syndrome Question
« Reply #1 on: Jul 24th, 2002, 12:52pm » |
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Michelle.....I've suffered with CH for over 22 years. My Mom has suffered with Horner's for many years. In addtion her headaches have been recently diagnosed as a "cluster vairant" (not exaclty sure if that means a yes or no). She suffers terribly with pain, headaches, soreness in head and eye, etc. I'll pass this thread along to her and see if she has any information to offer your hubby.
Hope he's feeling a little better - you are both in my prayers....
NotH20
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justin
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Re: Horner's Syndrome Question
« Reply #2 on: Jul 24th, 2002, 1:42pm » |
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hmmm...
pretty sure i only had horner's when i was over medicated with a steroid called dexamethasone. weird. but it went away when i stopped the meds. hope you feel better
jd
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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Tom
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Re: Horner's Syndrome Question
« Reply #3 on: Jul 24th, 2002, 4:32pm » |
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It seems that the Horner's Syndrome is mentioned here too often in a wrong way - it's a strictly defined neurologic symptom and a triad containing:
- droop eyelid (ptosis)
- narrow pupil (miosis) and
- eyeball sunken into the socket (enophthalmus)
Some authors add a fourth phenomenon seen many times along with the others, a red eye caused by wide blood vessels - but any kind of pain or a sore eye don't belong to the definition of the Horner's Syndrome.
ATB ! Thomas
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Thomas/Munich
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eyes_afire
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Re: Horner's Syndrome Question
« Reply #4 on: Jul 24th, 2002, 7:19pm » |
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Hi Jazsaunt. During the peak of my cycle my left eye will twitch and burn (sometimes for a month). I also get watery eye and some redness. When I get CH attacks they are focused in and around my left eye. After the big attacks and during strong shadows, my eye feels sore. Tom knows way more than me about medical stuff and makes excellent contributions to this message board, so he can give you the scoop about the true definition of Horners Syndrome.
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Still around... in a brand new world now...
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ltltnt
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Re: Horner's Syndrome Question
« Reply #5 on: Jul 25th, 2002, 8:29am » |
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I hope your family member is doing better and I will keep them in my prayers, I have been chronic now for the better part of 3 1/2 years do not know if this has anything to do with it but my left eye is at half mast at all times whether I have a headache or not. I think it would be obvious to say that if I do get a CH now my eye not only droops and tears it looks virtually closed and that is how my friends and family are able to tell how bad I am doing. I might add that when there is no pain present and my eye is at half mast it is only unattractive but has no other effects.
PPP
Sheryl
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Margi
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Re: Horner's Syndrome Question
« Reply #6 on: Jul 25th, 2002, 11:08am » |
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Tom gave an excellent response here, gang. Horner's Syndrome is just the eye thing, no pain associated. I call it 'cluster eye' and yes, sometimes it hangs around long after a cycle has ended. And, yes, it's possible to become permanent.
My husband has been out of cycle for a few months now and he is still going through the cluster eye thing and 'silent attacks'. His pupil will constrict for the length of what a normal cluster attack would be for him (say 45 minutes) then revert back to normal, with no pain.
These silent attacks have been documented - a couple of summers ago, we had an article posted here about it.
As a supporter, eyes are the first thing I check when I see a clusterhead - even in pictures. I can tell right away if there's 'cluster activity' present and be able to determine which side the attacks hit. I think that's one of the scariest things for a supporter to see, actually - we KNOW it means the Beast is still just hanging around. 
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Cin
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Re: Horner's Syndrome Question
« Reply #7 on: Aug 1st, 2002, 7:21am » |
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I'm glad I stopped and read this post. My eye droops still after being over my cycle for 4 mos. I really wish it would go away. I told my hubby the other day this really upsets me. I don't look like I used to. I really noticed it in a picture that I took to send over email. I sure hope it goes away.
Take care,
Cin
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MarkHW
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Re: Horner's Syndrome Question
« Reply #8 on: Aug 6th, 2002, 9:05pm » |
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I'm chronic and even medicated with no pain my eye lid droops and twitches. It comes and goes.
The interesting thing is that it is always the right eye. My clusters are usually on the right side, but sometimes are on the left.
Mark
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