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Topic: Breaking through prednisone (Read 337 times) |
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kari
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Breaking through prednisone
« on: Jul 19th, 2002, 1:46pm » |
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Has anyone here had the experience of breaking through a course of prednisone with another Ch attack?
Does this happen a lot?
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eyes_afire
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Re: Breaking through prednisone
« Reply #1 on: Jul 19th, 2002, 8:03pm » |
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Hi Kari. From what I've read here, it seems like prednisone is usually good only for a holiday from CH. For many people the CH returns once the prednisone is tapered below a certain amount, but for some people it can end a cycle. It is not healthy to stay on prednisone for extended periods of time. Personally, I refuse to take prednisone because I know it's only a temporary help and because it does really bad things to me. Prednisone scares the hell outta me.
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maria
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Re: Breaking through prednisone
« Reply #2 on: Jul 19th, 2002, 10:53pm » |
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hi Kari, Prednisone did not work for me, turned my 30 min. HA into a 2 hour HA. But that was years ago maybe I wasn't on the right dose. Maria
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justin
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Re: Breaking through prednisone
« Reply #3 on: Jul 19th, 2002, 11:54pm » |
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i've had bad experiences with steriods but have learned how they should be used. sort of. i think. lol
if you know that a certain profylaxis (shit i can't spell) drug works for you but it takes , oh say, two weeks to get in your system, like verapamil does, then you can take prednisone for two weeks when your cycle starts until the prednisone kicks in.
anyone want to argue that logic?
anyway. i tried a high high does of dexamethasone to try to shock out of a cycle. NOT A GOOD IDEA! don't do this! horrible side effects. email me if you want more info. ugh!
also if you're going to use prednisone start realy realy low. i'm really sensitive. i think the normal does is like 60 mg a day for cluster. i use like 30mg! and am fine!
peace
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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sue-bee
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Re: Breaking through prednisone
« Reply #4 on: Jul 20th, 2002, 7:01am » |
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I have been taking prednisone for 8 days now. I started with 50 mg for 4 days, then 40 mgs for 3. I'll be tapering down further starting today. It stopped my CH for 3 days totally, then I had one on Monday, then one on Wednesday, and a minor one on Friday. It certainly has lessened them. I don't know if it will continue. One thing it has definitely done for me is given me a repreive. I was really in the depths of this episode and was emotionally very down (I cried for 20 minutes straight at the start of my neurologist's appointment last week). So regardless of whether it totally wipes out my cycle, it's allowed me to be "normal" for the past eight days and not focus exclusively on headaches. Why I still get ANY CH while on prednisone I don't know. I've never really gotten a good answer as to why prednisone works on them at all.
Hope this helps.
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NotH20
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Re: Breaking through prednisone
« Reply #5 on: Jul 22nd, 2002, 11:33am » |
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Hey Kari - I use Prednisone for a "holiday" - start off on about 60 mgs per day and work my way down over a period of 10-14 days. It will usually work for me within 24 hours after my first dose. When I get down to 20 mgs per day, the ch's return without fail. One time - when I first started using the Pred it actually aborted an entire cycle  but that has been the only time....
I strongly urge you to read as much as you can on this medication - it's extremely harmful if taken the wrong way or too much. There are many side effects of long-term use.
Good luck to you,
NotH20
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The mad viking
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Re: Breaking through prednisone
« Reply #6 on: Jul 24th, 2002, 5:00pm » |
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Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few secons after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily
This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway
Take care my friend
Your Friend Svenn
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Always Look on The Bright Side of Life
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