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Topic: I'm wonder if anything works for long (Read 224 times) |
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mustang
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I'm wonder if anything works for long
« on: Jun 27th, 2002, 5:23pm » |
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After being chronic for so many years I really wonder if anything reall works. It seem's are bodies get immune to all the meds, like we are not supposed to get relief for long. Does anyone else think this way?
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nancyc
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Re: I'm wonder if anything works for long
« Reply #1 on: Jun 27th, 2002, 7:48pm » |
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i became immune to verap...then i had so many side effects from seizure meds that took me off them cause i got suicidal...nothing has worked for me but imitrex and they are limiting those bigtime to keep me from having a heart attack....i give up...nothing works for me...what do we do now, sis? praying this doc i am going to on tuesday has an answer...he is a neurologist that also specializes in pain management...Could someone please remove my hypothalamus? LOL.....praying you find pain relief soon, sis..smiles,nancyc
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maria
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Re: I'm wonder if anything works for long
« Reply #2 on: Jun 27th, 2002, 9:04pm » |
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Hang in there Nancy,
There is a new drug just coming on the market shortly called Frova, which has an effect on the vessels of the brain, but does not affect the coronary veins. Thus not the risk of CVA. It also has a half life of 26 hours which I believe is 4x the imitrex. Hope you are OK, Maria
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nancyc
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Re: I'm wonder if anything works for long
« Reply #3 on: Jun 27th, 2002, 11:44pm » |
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Thanks, sis...hangin in here waiting on that miracle drug..smiles,nancyc
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rick
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Re: I'm wonder if anything works for long
« Reply #4 on: Jun 28th, 2002, 2:18am » |
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Nancy,
Were you ever able to give Aricept a try?
-Rick
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simpson1974
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Re: I'm wonder if anything works for long
« Reply #5 on: Jun 28th, 2002, 8:17am » |
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I'm not chronic, but I have had to look for new meds the last three cycles. Verapamil, Neurontin, and even Prednisone all stopped working for me. Depakote has this cycle under control, but I'm wondering where I'll go for the next cycle, because if history repeats itself, it won't work next time.
Sometimes I wonder, too, if my meds worked or if my cycle just ended... you never really know with these things.
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nancyc
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Re: I'm wonder if anything works for long
« Reply #6 on: Jun 28th, 2002, 9:04am » |
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Rick, my superwoman neuro gave up after four meds....completely forgot she promised to try me on aricept.. I get really frustrated with neuros...if they can't cure you in a few months, they are ready to hit the highway, it seems...smiles,nancyc
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Pinkfloyd
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Re: I'm wonder if anything works for long
« Reply #7 on: Jun 28th, 2002, 9:17am » |
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on Jun 27th, 2002, 9:04pm, maria wrote:Hang in there Nancy,
There is a new drug just coming on the market shortly called Frova, which has an effect on the vessels of the brain, but does not affect the coronary veins. Thus not the risk of CVA. It also has a half life of 26 hours which I believe is 4x the imitrex. Hope you are OK, Maria
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Frova is available now
Pink (the other one)
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maria
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Re: I'm wonder if anything works for long
« Reply #8 on: Jun 28th, 2002, 9:54am » |
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Oops, I had a senior moment there I meant frova does not affect the coronary vessels, thus less risk of having a heart attack, not CVA. Maria 
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Bob P
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Re: I'm wonder if anything works for long
« Reply #9 on: Jun 28th, 2002, 10:09am » |
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From the Frova insert:
PRECAUTIONS
General: As with other 5-HT1 agonists, sensations of pain, tightness, pressure and heaviness
have been reported in the chest, throat, neck and jaw after treatment with FROVA.
These events have not been associated with arrhythmias or ischemic ECG changes in
clinical trials with FROVA. Because 5-HT1 agonists may cause coronary vasospasm,
patients who experience signs or symptoms suggestive of angina following dosing should
be evaluated for the presence of CAD. Patients shown to have CAD and those with
Prinzmetal’s variant angina should not receive 5-HT1 agonists (see CONTRAINDICATIONS).
Patients who experience other symptoms or signs suggestive of decreased arterial flow,
such as ischemic bowel syndrome or Raynaud’s syndrome following the use of any 5-HT1
agonist are candidates for further evaluation. If a patient has no response for the first
migraine attack treated with FROVA, the diagnosis of migraine should be reconsidered
before frovatriptan is administered to treat any subsequent attacks.
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