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Topic: Verapamil has halted my cycle spectacularly (Read 440 times) |
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Maryse
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Verapamil has halted my cycle spectacularly
« on: Jun 24th, 2002, 11:40am » |
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Hello, little rabbits,
I've returned to the fold after a long absence.
I've had episodic clusters for 31 years.
(The hiatus between bouts has slowly stretched to 2.5 years, thank god.)
This time, one week into my 2-month cycle, I began taking 80 mg of Verapamil four times a day
(lower doses allowed some level-8 bouts that required Imitrex). Result: I no longer have headaches, only slight twinges.
More to the point: I discovered this weekend that
I CAN DRINK ALCOHOL WITH IMPUNITY...
What a lark!
Verapamil is a very big deal indeed. What concerns me is that a sufferer who consults this site to see what new medications might be working cannot get information from the "medications" link on the left side of this page (it's merely a survey) and thus cannot do a search through the archives since he/she does not know the name of the drug in question (I had to go to Simon's clusterheadaches.org.uk site and its very good medication outlines to find that out).
Best to all of you.
Maryse
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Marijke
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Re: Verapamil has halted my cycle spectacularly
« Reply #1 on: Jun 24th, 2002, 3:04pm » |
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Hi Maryse,
First, glad to hear verapamil is doing such a great job.
For medications, the information you are looking for is under the medical info button
Marijke
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Mastifflvr28
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Re: Verapamil has halted my cycle spectacularly
« Reply #2 on: Jun 25th, 2002, 12:57am » |
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I was checking through the OUCH site this morning to frantically print out my preferred meds for the new doctor I had to educate today. I was very surprised to see all the great Med info on OUCH. Haven't looked for about a year.
My point is...the OUCH site has great med info
AND
Thank you BobP for all the GREAT info, organized, easy to find. I printed all this stuff in 15 minutes.
Much to my surprise...and ALMOST disapointment, the new doc didn't look at my documentation, just started writing out scripts frantically 
btw...I DID force some education on her.
Mast
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| « Last Edit: Jun 25th, 2002, 12:58am by Mastifflvr28 » |
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Mastifflvr28 (aka Michelle A.)
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rick
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Re: Verapamil has halted my cycle spectacularly
« Reply #3 on: Jun 25th, 2002, 1:14am » |
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Maryse,
Congratulations! Enjoy feeling good!
-R
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Slammy
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Re: Verapamil has halted my cycle spectacularly
« Reply #4 on: Jun 25th, 2002, 2:57pm » |
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Hi Maryse!
Glad to hear that the Verapamil is working! I just tried it last night, but I am only taking 80mg once at bed and it didn't work. I notice that you take it 4 times a day... I'm wondering if I am underdosed!
Slammy 
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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eyes_afire
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Re: Verapamil has halted my cycle spectacularly
« Reply #5 on: Jun 25th, 2002, 7:26pm » |
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Hi Strider. I would say that you are underdosed. Many clusterheads need at least 240mg / day to notice an effect.
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Still around... in a brand new world now...
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Marijke
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Re: Verapamil has halted my cycle spectacularly
« Reply #6 on: Jun 26th, 2002, 3:50am » |
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Hi strider,
I also thing you are underdosed. I need 360mg a day - and I am a tiny female. Remember that verapamil can take up to two weeks to kick in.
Marijke
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Slammy
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Re: Verapamil has halted my cycle spectacularly
« Reply #7 on: Jun 26th, 2002, 11:52am » |
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Thanks Marijke!
I will patiently work with it! However my Slammy-senses are still pondering "tiny female" 
Slammy
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That's it! Everyone out of the pool!
" Everytime I try to get out, they PULL me back in! "
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kristi
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Re: Verapamil has halted my cycle spectacularly
« Reply #8 on: Jun 26th, 2002, 8:02pm » |
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Bahahahahaha! Slammy, you crack me up! ;D
Maryse: glad to read your positive news - hope the success continues.
PFDAN!
K
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