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Topic: prednisone (Read 341 times) |
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claudiamoore
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I took 16,000 millagrams of prednisone through a wrong prescription. I took it orally in January 2001 over a 14 day period. Since then I have had postier uveitis, floaters flashers, macular puckers in both eyes, 6 retina tears and holes (laser repaired), and now my disc to cup ratio is 7. Necular medicine showed damage in every area of my body. Blood in my urine. I feel this all has to do with the massive dose of steroids. I have cushing syndrom. No one in my town knows what to do or much about steroids induced ocular problems. Is this something anyone can help me with? Any steriod experts? I took more prednisone than has ever been taken in history. Any suggestions?
Claudia
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Bob P
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Shut up Bob!
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Re: prednisone
« Reply #1 on: May 30th, 2002, 8:33am » |
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Yes.
Before taking any prescription, look it up in one of the on-line pharmacology sites for normal doses and drug interactions. I've caught my neurologist prescribing multiple medications that are not supposed to be taken at the same time.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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NotH20
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Re: prednisone
« Reply #2 on: May 30th, 2002, 9:00am » |
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Claudia - Man on man sounds like you've had a rough time - my heart goes out to you  You said it was a "wrong prescription" did you mean that either your doc or the pharmacist mixed something up? If so, sounds like you could have some sort of legal battle on your hands.
Unfortunately I don't have any extensive knowledge on such massive dosages of Prednisone. I know that it's an extremely dangerous medication and needs to be tappered off - but I had NO idea that it could do all that you have described 
Do some extensive research on this board and on the OUCH board - maybe someone else out there took high dosages also.
Our thoughts and prayers are with you - we are here for you any time you need us.
Keep the faith -
NotH20
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eyes_afire
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Re: prednisone
« Reply #3 on: May 30th, 2002, 8:48pm » |
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Wow!! All I can say is that prednisone scares the hell out of me. Last time I tried a normal dose (for a tough bronchial infection) I had problems moving my arms and legs... they became very very very sore. After that experience I want to never take prednisone.
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Still around... in a brand new world now...
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The mad viking
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Re: prednisone
« Reply #4 on: May 31st, 2002, 6:48am » |
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Yes.
Before taking any prescription, look it up in one of the on-line pharmacology sites for normal doses and drug interactions
Svenn
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Always Look on The Bright Side of Life
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The mad viking
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Re: prednisone
« Reply #5 on: May 31st, 2002, 6:51am » |
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Normal doze is to start with 80mg /day for 10 days and then step down to 60-40-30-10 over a 2-3 weks periode
Svenn
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Always Look on The Bright Side of Life
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MarkHW
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Re: prednisone
« Reply #6 on: May 31st, 2002, 4:12pm » |
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Wow! I am so sorry....
I don't know anything about the conditions that you have now....
That is very scarey.
I'm on my second course of prednisone in a month now.
I was on some for about 10 days... no clusters, but as soon as the dose decreased, the clusters returned!
My Dr. tried verapamil for 10 days with no help (and gave me horrible stomache problems).
So, started roids again yesterday. 40 for 10 days, 30 for 10, 20 for 10, 10 for 10, and 5 for 10.
It is the only preventative med that works for me.
Mark
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The clusterhead formerly known as williamsmh.
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justin
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Re: prednisone
« Reply #7 on: May 31st, 2002, 8:02pm » |
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very scary. so sorry for you. normal dose is 80mg. i take 20mg! and it works fine. side effects are brutal. i was taking a high dose of dexamethasone for a month and developed cushing syndrom, but it went away a week after i weened of. sorry. good luck. sue some one
jd
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if any clusterheads in NYC want to get together shoot me an email justinott@mac.com
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malcolm
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I took 60mg of Prednisolone and within 12 hours became absolutely manic. I was unable to sleep for 2 nights and my brain was permanently going all the time despite being completely exhausted. At the end I was hallucinating and had to be knocked out with sedatives. For me prednisolone was more scary, more unpleasant and worse than the CHs and I had some major ones for the previous two nights.
If you have this reaction it is known as "steroid psychosis". It is VERY frightening. Call your Dr to say what is happening and do not take the next day's preds as it takes 2 days to wear off.
I feel very sorry for you if your medication has induced more permanent side effects becasue at least this wore off.
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Sweet_Landings
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Re: prednisone
« Reply #9 on: Jun 6th, 2002, 11:15am » |
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Claudia,
So sorry to hear of your pain and troubles. My husband has been on Prednisone for over 8 years now, low dose of 5-10 mg daily. However, about once a year he goes blind from MS and when that happens we do use extremely high doses over short periods thru an IV. 3grams given over a 72 hour period via IV. The only side effects that result from this treatment are severe mood swings, insomnia, hyper-activity, rapid pulse rate, and the return of his vision.
I don't know what to tell you other than what others have said, always research the medication and dosages before you use them. If this was the result of a mistake on the part of the dr. or pharmacist, Not4Hire is right, you have a lawsuit.
I certainly hope that you will be able to return to normal soon. My prayers and thoughts are with you.
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Sweet_Landings
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rick
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Re: prednisone
« Reply #10 on: Jun 6th, 2002, 7:07pm » |
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Claudia
Whoa! I'm really sorry to hear that, as well as being disgusted that someone could make such a ridiculous mistake.
Please talk to a lawyer. For your own sake and before someone else is hurt by this individual.
-Rick
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