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Greg_A
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Info on CH
« on: Apr 16th, 2002, 9:26pm »		 Quote Quote Modify Modify Remove Remove
Some good info here...
 
http://www.helioshealth.com/headaches/cluster.html
 
Does OUCH have a way that we can startin linking resources?
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Greg_A
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Re: Info on CH
« Reply #1 on: Apr 16th, 2002, 9:34pm »		 Quote Quote Modify Modify Remove Remove
As i do my research on the web i will post the links in this thread so others can poke around if they wish.
 
Feel free to add some links of other info you find too..
 
http://abcnews.go.com/sections/GMA/GoodMorningAmerica/GMA010530Headaches _cluster.html
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Greg_A
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Re: Info on CH
« Reply #2 on: Apr 16th, 2002, 9:38pm »		 Quote Quote Modify Modify Remove Remove
http://www.drkoop.com/dyncon/article.asp?id=9663
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Greg_A
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Re: Info on CH
« Reply #3 on: Apr 16th, 2002, 9:44pm »		 Quote Quote Modify Modify Remove Remove
http://www.abc.net.au/rn/talks/8.30/helthrpt/stories/s42434.htm
 
This looks like an interview that was done with Dr Goedsby in London.
 
There is some contact info at the end of it.
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Greg_A
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Re: Info on CH
« Reply #4 on: Apr 16th, 2002, 9:51pm »		 Quote Quote Modify Modify Remove Remove
Some of these are links i've had from previous searching around....
 
I think we need to corner Dr Goedsby with our imitrex needles until he fixes the pain Smiley OR we can all show up on his doorstep and help him find a cure...
 
http://news.bbc.co.uk/hi/english/health/newsid_380000/380497.stm
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Greg_A
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Re: Info on CH
« Reply #5 on: Apr 17th, 2002, 9:50pm »		 Quote Quote Modify Modify Remove Remove
This article is about tooth extraction causing CH...
 
http://www.healthypages.net/news.asp?newsid=203
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Greg_A
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Re: Info on CH
« Reply #6 on: Apr 17th, 2002, 9:58pm »		 Quote Quote Modify Modify Remove Remove
This is a search engine for ACHE (American Counsil Headache Education.
 
Type in "cluster" or any other word and see what you get... i have read alot on this site.
 
http://www.achenet.org/search/search.pl
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Bob P
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Re: Info on CH
« Reply #7 on: Apr 18th, 2002, 5:14pm »		 Quote Quote Modify Modify
I like the ACHE one.  If you check their links, you'll find OUCH, the "ONLY" cluster headaches advocacy group in the world.  Is everyone a member yet?
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Re: Info on CH
« Reply #8 on: Apr 18th, 2002, 7:32pm »		 Quote Quote Modify Modify Remove Remove
Hey Greg,
 
just read about a 21 year old woman who died of Migraine related strokes and siezures on  http://headaches.about.com/
 
so sad, Maria
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Greg_A
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Re: Info on CH
« Reply #9 on: Apr 18th, 2002, 8:55pm »		 Quote Quote Modify Modify Remove Remove
That is sad Maria...imagin how she felt going through that....  Sad
 
Here is a link for some different cluster info from about.com  
 
http://headaches.about.com/sitesearch.htm?terms=Cluster&SUName=heada ches&TopNode=3042&type=1
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Greg_A
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Re: Info on CH
« Reply #10 on: Apr 18th, 2002, 8:58pm »		 Quote Quote Modify Modify Remove Remove
Headache Med Index
 
http://headaches.about.com/bl-all-meds.htm?PM=ss12_headaches
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Greg_A
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Re: Info on CH
« Reply #11 on: Apr 18th, 2002, 9:04pm »		 Quote Quote Modify Modify Remove Remove
Here is some info on med usage.... there is a warning about Topomax that some may be interested in.
 
http://headaches.about.com/cs/medicationsusage/
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rick
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Re: Info on CH
« Reply #12 on: Apr 19th, 2002, 10:19pm »		 Quote Quote Modify Modify
Thanks for all the info Greg.  I had a neuro who wanted to put me on Topomax last month, and I was getting sick enough on Depakote and Doxepin, so I did not go that route.  The above link makes me feel that much better about my decision.  I am morally against human cloning, but would make an exception in Dr. Goadsby's case!  -Rick
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Re: Info on CH
« Reply #13 on: Apr 19th, 2002, 11:55pm »		 Quote Quote Modify Modify
DAMN!  The legal medicines are much more dangerous than the illegal ones.  Big brother is looking out for your health.... not!  Sorry, I'm just pissed.   Angry
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Greg_A
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Re: Info on CH
« Reply #14 on: Apr 20th, 2002, 8:26am »		 Quote Quote Modify Modify Remove Remove
Not too mention that the "legal" meds are a hell of alot more EXPENSIVE than the "illegal" ones....
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