Author |
Topic: Neurontin - Tightness and Redness in Face??? (Read 496 times) |
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
 |
Neurontin - Tightness and Redness in Face???
« on: Apr 12th, 2002, 7:30am » |
 Quote  Modify
|
Been on Neurontin for about a month. Have been noticing my face is red and skin is tight. Especially on my forehead. Has this ever happened to anyone? I'm going back to Neuro tomorrow, but was curious. ???
|
|
 IP Logged |
|
|
|
Greg_A
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #1 on: Apr 12th, 2002, 7:57am » |
Quote Modify
 Remove
|
Hey Kim,
I have never used that but have noticed that from the meds i take my face is red alot. Mainly around my eyes, nose and chin. Sometimes its like blotchy red then goes away after awhile.
Skin isnt really tight but is warm. Sorry couldnt help
greg
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #2 on: Apr 12th, 2002, 8:08am » |
Quote Modify
|
Hey Greg, i sure hope you had a good night last night! Yeah, my skin is also on the blotchy side and I got a red nose too. Wish i could blame it on too much fun at the Pub. ;D I'll have to see what the doc says tomorrow. ..Be well!
|
|
IP Logged |
|
|
|
Elaine
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #3 on: Apr 12th, 2002, 12:34pm » |
Quote Modify
Remove
|
I used it and I did not have that happen to me but thats not to say it would not happen.
Please be careful with this drug. I noyiced you said you was going back on it. I hope when you take the drug when you stop you don't stop cold turkey you wing yourself off. I stopped cold turkey went into a deep depression, so deep I almost took my life.
You can find some information at this link.
http://www.rxlist.com/frame/display.cgi?drug=NEURONTIN
If you go to this site you can out about most drugs just type in the name. The link is on Ch.coms link page but I will post it any way its a good site to keep on hand.
http://www.rxlist.com
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #4 on: Apr 12th, 2002, 12:52pm » |
Quote Modify
|
thank you Elaine for the input. I did go to rx web. You are right about not stopping cold turkey. It states that explicitly. I did that with prednisone once and all the muscles in my body failed to function, my face went hot red and flushed. Scary what these medicines can do to you. be well Elaine! Kim
PS: your post on drug addiction was SO familiar!
|
|
IP Logged |
|
|
|
Lori
New Board Hall of Famer
Gender: 
Posts: 526
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #5 on: Apr 12th, 2002, 1:56pm » |
Quote Modify
|
Hi Kim,
Did you go back to your neuro yet? I thought I remember you had an appt this week with him? How are you and the HA"S? Hope you are well...and PF!
|
|
IP Logged |
Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
|
|
|
Greg_A
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #6 on: Apr 12th, 2002, 2:58pm » |
Quote Modify
Remove
|
Actually Kim-- I DID!!!!!,,, i slept the whole night-- well most of it, i woke up at 3:30a to see if i had a HA (guess my body is used to waking up or something) and still as of now no HA, its going on 4pm Fla time.
I did have some minor shadows but dissapeard within a few minutes. The true test will be tonight about 8pm. Keep the fingers crossed.
Might be on to something here with the regular verap. I'm also taking lithium @ 450mg and Ibuprophen @ 600mgx4 a day. Dahm i hope this works.
Also gettin O2 on monday. I thought i had to wait but i guess not. Bring it on.
Also i mail ordered some Imitrex shots offshore last week, they showed up today. Now i have a little stock pile atleast.
AND, i may even have a new job coming up soon so today has been all around a good day.
Hope your havin a pain free day over there.
lata
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #7 on: Apr 12th, 2002, 4:57pm » |
Quote Modify
|
I'm making happy snooring sounds for ya! 
Aside from my appearance problems, things are ok 1 30 min. attack per evenin. Walk in the park...
Lori, i go to Neuro tomorrow. Still smiling!!!!Albeit somewhat kooky lookin! Be well and congrats on O.U.C.H. !!!!! Kim
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #8 on: Apr 14th, 2002, 5:49pm » |
Quote Modify
|
Thanks to finding this website (and subsequent feedback, etc), I have (after 25 years!) learned SO much. I can't even express it really. I only know that after coming here, for the first time, I'm able to more clearly see my illness (from outside in, instead of inside out, if ya know what I mean)...
This brings me to Neurontin issue. Saw doc yesterday. I got a rash. I can't remember SHIT! I am anxious and irritable (much more than my usual pain in the ass self),etc.
FINALLY. I know that I am senitive to many drugs (i am on LOW dose -only 300 mg day!!!). Now I see why after trying so many different preventatives, I was always getting messed up. For the people who tolerate drugs well, this might seem "foo". Whatever. all I'm saying is that for over two decades I've tried so many different medications for this illness. Most of the time, I ended up more screwed up than ever. Now I realize that my system is probably not as tolerable as some. This causes me to re-evaluate my original frustration with past treatments. Maybe I was too quick to chuck out an idea rather than wait and give it time and thought.
What I'm trying to say is that without the added input of all the folks around here, i'd a never got to this point. So, in conclusion, I'm a slow learner. HAH! If one person understands what I'm saying - cool.
|
|
IP Logged |
|
|
|
Greg_A
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #9 on: Apr 14th, 2002, 6:43pm » |
Quote Modify
Remove
|
Hear ya screamin over there Kim-- Hopefully some med will work out for ya or somthin. We all know the pain and the frustration of trying new things expecting results right away. (well atleast i do)
I too have learned alot on the these boards and continue to search everywhere for something someone has tried that worked. You never know-- there is that one thing that will just make all the pain go away for good, and i will keep looking till i find it.
Hope you have a good night, 30 min seems like a walk in the park but still hurts like hell
lata,,,,,,g
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Update................Neurontin...
« Reply #10 on: Apr 30th, 2002, 5:39pm » |
Quote Modify
|
This is the first cycle I have ever taken the preventative Neurontin. I am weening (sp) now.
This cycle lasted just about 8 weeks. I did not go to ER ONCE. At peak cycle, I still got hit numerous times a day with awful shadow pain in between. I got a lot of attacks where I was seriously struggling....but not to the point where go to hospital...
Side effects were not too good. Felt rubber brained, had several small encounters with objects while operating a car, was irritable, emotional, somewhat depressed, etc.
I look back and ask myself "Well, did it WORK?"
I DON'T KNOW. Coulda been a weaker cycle. Coulda been some relief from the Neurontin. I just don't know. This is the first cycle I can recall 8 weeks (usually longer). This is the first cycle with NO TRIP TO ER.
Did some looking in archives and did not come upon anyone who states anything earth shattering about Neurontin in connection with ch specifically.
Still puzzled................. ???
Neurologist speaks with cofidence that it performed it's preventative task. I'm not so sure....as usual......so hard to tell!
|
|
IP Logged |
|
|
|
Greg_A
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #11 on: May 1st, 2002, 2:49pm » |
Quote Modify
Remove
|
Hey Kim-- atleast the pain is gone and you can live in peace.
I guess next time around you will have to try it again.
Just think, since your cycle is done i guess the wildlife out back wont have to dodge anymore coffee cups for a while... and your car can get a well deserved break 
Hope you stay PF for a long long time...
Greg
|
|
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #12 on: May 1st, 2002, 7:46pm » |
Quote Modify
|
Thanks Greg. You are a prince  Took my LAST neurontin pill today. Still no ch. LIFE IS GOOD.... (Kim on Neurontin = "Leonard" from "Awakenings" Egaaads!)
But you know I'm from NY and will always be a bitch 
You jus keep suckin that 02 and gettin on with yur bad self ;D
Stay Pain Free.
Your red faced, hazardous driving, red faced, pin headed, foul mouthed, bad tempered, and very grateful............friend. Be well GOD DAMNIT! Kim
PS: Maybe I'll buy a motocycle............LOL, (can you hear the debris in my wake.............)
|
|
IP Logged |
|
|
|
Head_case77
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #13 on: May 1st, 2002, 10:57pm » |
Quote Modify
Remove
|
Kim,
I again tried the Neurontin last week and again yesterday, but I just can't seem to tolerate this medication more than a few days, even though it is supposed to have a low side effect profile. Yes, it did make my face red come to think of it. Also, it made me dizzy, and I just don't trust this medication since it's so new. But...who knows? Maybe if someone gives it a good trial (like four weeks) it can effect a change for the positive. One bit of advise----don't come off of it cold turkey. I did that last November and it was right after that that the worst bout of my life began. (I don't know how much of a role the Neurontin played in this, as I had come off three or four other medications simultaneously---that's another story).
Keep up the great work, Kim.
Franco
|
| « Last Edit: May 1st, 2002, 11:03pm by Head_case77 » |
IP Logged |
|
|
|
kim
New Board Newbie
I love YaBB 1G - SP1!
Posts: 7
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #14 on: May 2nd, 2002, 8:25am » |
Quote Modify
|
Hi Franco,
Today is the first day in over 1 month that I will NOT take any Neurontin at all. Been tapering since Sunday...
To tell you the truth, i'm trying to stay positive about this medication, but all joking aside, it gave me unfavorable side effects. Especially memory related and just thinking straight.
If my cycle is indeed over and done, then Iwill put it behind me and move on. However, if and when the beast knocks at my door in the future, I am going to immediately try the newer oxygen methods and see about verapimil. Reading all the posts and archives here, it seems to be the most positive and effective course. There are soooo many meds out there being sampled on us clusterheads. This clusterhead is getting mighty tired and fed up with the side effects.
I don't want to ramble, but boy oh boy, I could tell you stories....As can everyone here I bet....So frantic to end the pain you try anything, many times with frightening results.
thanks Franco for your reply. Be well. Kim
|
|
IP Logged |
|
|
|
Head_case77
Guest
|
|
Re: Neurontin - Tightness and Redness in Face???
« Reply #15 on: May 2nd, 2002, 11:59am » |
Quote Modify
Remove
|
Kim,
Oh, go ahead and ramble, I do it all the time! Yes, you are right that there are allot of medications out there, and hopefully more and better meds are on the way. Allot of it is hit and miss with we vascular headache PATIENTS. I want to try the verapamil and the oxygen again; it's been years since I've tried these. I don't believe I took the verapamil for more than a few days. This time I will give it a good run. I switched from the headache clinic to an alternative doctor now who prescribes medication as necessary, but also uses acupuncture, cranio-sacral therapy, Swedish massage, and other alternative modalities. I'm going to ask him about the oxygen, I think, next visit.
Oh boy, my neighbor who hardly ever leaves his apt. just turned his stereo on and the annoying booming has started. It's not like it's thashing loud, but i'm very sensitive to sound and prefer it very quiet. Unfortunately, my apt. is located off the main artery of this city! Can you imagine? And I guess, I'm the only one who complains about the traffic noise here! Either I'm nuts or I'm the only sane person left in this apartment complet.
Kim keep on keepin' on!
Franco
|
| « Last Edit: May 2nd, 2002, 12:02pm by Head_case77 » |
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss