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Topic: ANY Suggestions on what to try next? (Read 397 times) |
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nancyc
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Friends don't let friends post drunk on mbs......
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ANY Suggestions on what to try next?
« on: Feb 26th, 2002, 9:33am » |
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I am going to go to the University of Charleston Medical College to see a new neuro...been thinking of some options I may have. Will be goin on medical leave as of friday. I am on verap 720mg now and it is not working. Verap used to work for me...I am chronic...I had a bad reaction to prednisone...Topamax at a high dose worked for me but then it made me real depressed and suicidal. Tried Lithium years ago but dont think i took it long enough. Hearing that depakote is not really effective. So where do i go from here? I dont want to be on another med like Topamax that takes away your quality of life...I felt like a zombie on it...but I want this pain to stop...any suggestions for me...thanks...
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Donna
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Re: ANY Suggestions on what to try next?
« Reply #1 on: Feb 26th, 2002, 9:48am » |
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Did you read the message yesterday on melatonin by our Doug W? I can't find it today. 
I don't know where it was posted, but if you haven't read it, he was talking about (and this is bad but I THINK he said 9mg before bed ) was a trial that worked for a few people.
Must find his message for accurate info, and the research article he posted, but it might be something to look into.
Could it be that simple?
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ejwrancher
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Re: ANY Suggestions on what to try next?
« Reply #2 on: Feb 26th, 2002, 9:49am » |
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Wouldn't give up on the Verapimil just yet. The Indocin 75mg times 2 has done me good and seems to be the magic combo, this time, and I know it won't work next time. But I am not Chronic. Please keep me posted on what you do. Each episode keeps getting worse, and longer. This website has been a big support for me, thanks to all. No one could truely understand a run-in with the Beast unless the experence is there. I'll be here.
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ave
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Re: ANY Suggestions on what to try next?
« Reply #3 on: Feb 26th, 2002, 10:10am » |
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Nancy, I recall a discussion on the OUCh-UK board. Simon said adjusting his Vera dose downwards gave relief, and some people agreed with him.
Phasing down your Vera dose might be a good thing anyway, if you are going to ask for Lithium.
Hope something works for you 
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ave
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Nancy, I recall a discussion on the OUCh-UK board. Simon said adjusting his Vera dose downwards gave relief, and some people agreed with him.
Phasing down your Vera dose might be a good thing anyway, if you are going to ask for Lithium.
Hope something works for you
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ave
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Nancy, I recall a discussion on the OUCh-UK board. Simon said adjusting his Vera dose downwards gave relief, and some people agreed with him.
Phasing down your Vera dose might be a good thing anyway, if you are going to ask for Lithium.
Hope something works for you
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Donna
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Re: ANY Suggestions on what to try next?
« Reply #6 on: Feb 26th, 2002, 12:34pm » |
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Hey 'Loop.......
That article about Melatonin is 12 topics down. 
Got your shades ready for Fla?
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nancyc
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Friends don't let friends post drunk on mbs......
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Re: ANY Suggestions on what to try next?
« Reply #7 on: Feb 26th, 2002, 12:41pm » |
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Thanks gal! i found the article...it is 9mg...at bedtime...i also found a neuro at the Medical College who says he specilizes in chs...gonna go see him as soon as i can get an appointment...but want to take all these suggestions to him. You guys are great...thanks donna, ave,and ej....
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nancyc
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Friends don't let friends post drunk on mbs......
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Re: ANY Suggestions on what to try next?
« Reply #8 on: Feb 26th, 2002, 3:16pm » |
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Thanks den...i guess i keep hoping there is something i have missed...that magic bullet that will put an end to this. I wont give up till i find it...smiles!
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cher
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Re: ANY Suggestions on what to try next?
« Reply #9 on: Feb 26th, 2002, 3:24pm » |
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nancy, i`m right with ya girl, hang in there, i am by the skin of me teeth, lol.
mail me if you can
all my love
cher x
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cher x
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DavidGoldberg
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Re: ANY Suggestions on what to try next?
« Reply #10 on: Mar 2nd, 2002, 6:51pm » |
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Nancy, I was a chronic and I found Maxalt 10mg MLT to be very effective. Worked every time with no rebound. CCan not say enough abot it. See my posing on Surgery.
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nancyc
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Friends don't let friends post drunk on mbs......
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Re: ANY Suggestions on what to try next?
« Reply #11 on: Mar 2nd, 2002, 7:08pm » |
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David, thanks for the info but maxalt does not do a thing for me...imitrex injections are the only thing that works...and ave, i tried Simon's theory and strangely enough, i have had mild hits in the day but hit bad during the nite...but it has improved since i went back down to 480mg...thanks alot...i had an email from Dr. Goadsby's assistant, Dr.Matharu the other day....he is looking to see if he can find me a good neuro here in SC...had several options at the Medical University but dont want to decide till I hear back from him...thanks everyone, you are great....
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michelle
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Re: ANY Suggestions on what to try next?
« Reply #12 on: Mar 3rd, 2002, 2:15pm » |
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hey nancy,
how about amerge? i know it's very expensive, but some one on this board told me to take mine before bed and that really helped me get a night's sleep. it's when the beast wakes you up, it's the worst. if your insurance is like mine they only paid for 1 pill of amerge a day for me anyways. (sh**heads) i'm praying for you
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nancyc
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Friends don't let friends post drunk on mbs......
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Posts: 384
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Re: ANY Suggestions on what to try next?
« Reply #13 on: Mar 3rd, 2002, 4:23pm » |
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trying hard to stay off the triptans rite now so i can redose on the shrooms...i got more pf days with them than anything so far except the "suicide producing topamax" i was on at high doses...and i aint going back there again...everytime i think i have got my 24 hours in that i have not used triptans, i get hit so hard, i have no choice but to take them....but i am gonna find me a bullet and bite the sucker to stay off of them...thanks for the suggestion, it has worked for me before, michelle...i really appreciate it...
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