Author |
Topic: What's the "average" for episodic events (Read 1781 times) |
|
Mybelle
New Board Junior
Cluster what?
Gender: 
Posts: 89
|
 |
What's the "average" for episodic events
« on: Mar 31st, 2008, 3:42pm » |
 Quote  Modify
|
Just as a measuring stick to go by - how long have your episodes lasted? and did they taper off in duration and intensity? What are the chances that after almost 7 weeks it's over? We had 4 nights with the cocktails and uninterrupted sleep and in the morning upon awakening just one morning he had a kip2 and had coffee and it was gone and he's been fine for the last 3 days...... shadows here and there, and he's scared it will start a headache - which he hasn't has since last wednesday or thursday - but I've heard shadows are common even after a cycle is over.......
|
|
 IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
 
Gender: 
Posts: 26213
|
 |
Re: What's the "average" for episodic ev
« Reply #1 on: Mar 31st, 2008, 6:36pm » |
Quote Modify
|
on Mar 31st, 2008, 3:42pm, Mybelle wrote:| Just as a measuring stick to go by - how long have your episodes lasted? |
|
My first cycle lasted 31 years, what a ride that was!!!
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
mezza
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 95
|
|
Re: What's the "average" for episodic ev
« Reply #2 on: Mar 31st, 2008, 7:10pm » |
Quote Modify
|
my first cycle was 3 days ( 10 years ago) second cycle 4 years ago 1 week because prednisone taper stopped it. This time has been 4 weeks so far- but preds didnt stop it- On verap now and still have weak shadows but no real hits since friday
Sounds like your hubby is getting some rest! Probably more hopeful too - Hope the cycle is over!
|
|
IP Logged |
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
  
Gender:
Posts: 1639
|
|
Re: What's the "average" for episodic ev
« Reply #3 on: Mar 31st, 2008, 7:18pm » |
Quote Modify
|
Cycles are all different. Mine never start the same, end the same or last the same amount of time. The only thing that appears to be consistent is two periods per year of high activity. Other than that all bets are off.
I hope it is the end of his cycle. But just tell him to enjoy the PF time and try not to think about it. He'll know if he's out of the woods soon enough.
Wishing you both PFDAN!
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
kevmd
New Board Veteran
Who needs a hypothalamus anyway?
Gender:
Posts: 148
|
|
Re: What's the "average" for episodic ev
« Reply #4 on: Mar 31st, 2008, 8:29pm » |
Quote Modify
|
To me it sounds like its ending. mine just ended the same way. One week of shadows with 1 or 2 kip 3's. The day is not over yet but this could be my first day withou even a shadow. My last full blown CH was on Easter, 8 days ago
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: What's the "average" for episodic ev
« Reply #5 on: Mar 31st, 2008, 10:26pm » |
Quote Modify
|
Mine are very consistent--almost always 6 to 8 weeks in length.
Lots of variation out there, though.
Best wishes,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: What's the "average" for episodic ev
« Reply #6 on: Mar 31st, 2008, 10:27pm » |
Quote Modify
|
For the first 20 years you could set your watch by my cycles, last 10 years they are all over the board. Help him learn to enjoy the pain free time, and always be ready to do battle. Thanks again for riding the board for him!
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: What's the "average" for episodic ev
« Reply #7 on: Apr 1st, 2008, 12:08am » |
Quote Modify
|
5 weeks, 4 days, 13 hours, 47 minutes, 19 seconds.
You can slap me now cuz I'm being a smartass.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Mybelle
New Board Junior
Cluster what?
Gender:
Posts: 89
|
|
Re: What's the "average" for episodic ev
« Reply #8 on: Apr 1st, 2008, 12:40am » |
Quote Modify
|
Consider yourself slapped!!!! I'm new here...just trying to get some encouraging info!!! PFDAN to you all even Brewcrew
|
|
IP Logged |
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: What's the "average" for episodic ev
« Reply #9 on: Apr 1st, 2008, 12:52am » |
Quote Modify
|
Well, some of my cluster periods have been as short as 4 weeks. I've also had two periods that lasted about 18 months, which meant that I was chronic during those times. I'm back to being episodic, but I've stopped keeping track of how long they last. I suppose I could reconstruct them from my journal, but alas, I'm too lazy.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Qazpur
New Board Newbie
Gender:
Posts: 19
|
|
Re: What's the "average" for episodic ev
« Reply #10 on: Apr 1st, 2008, 4:48am » |
Quote Modify
|
on Mar 31st, 2008, 10:26pm, George_J wrote:| Mine are very consistent--almost always 6 to 8 weeks in length. |
|
same here, always 6 - 8 wks. yesterday first day in 6 weeks no need for intervention, here comes the sun...
|
|
IP Logged |
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: What's the "average" for episodic ev
« Reply #11 on: Apr 1st, 2008, 5:08am » |
Quote Modify
|
I used to be able to practically schedule my vacations around them. Not so anymore. One thing that is certain, whenever they come is the wrong time.
I've had them last a few weeks and some last a couple months. I've rationalized that I prefer the inconsistency as it means that any present cycle could end at any time, as opposed to having to wait out 8 weeks for sure.
Scott
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
barry_sword
CH.com Alumnus
New Board Hall of Famer
Mountain Biking Keeps Me Sane
Gender:
Posts: 1988
|
|
Re: What's the "average" for episodic ev
« Reply #12 on: Apr 1st, 2008, 7:05am » |
Quote Modify
|
My cycle's usually run for about 2 years then I get a one year break from them. This cycle was a little shorter than some of the other one's in the past.
Shadows are there most days to remind me not to let my guard down.
|
|
IP Logged |
QUIT SMOKING SEPT. 03 2005,
http://barrysword.blogspot.com
|
|
|
Trooper
New Board Junior
I ain't skeert!
Gender:
Posts: 93
|
|
Re: What's the "average" for episodic ev
« Reply #13 on: Apr 1st, 2008, 6:59pm » |
Quote Modify
|
For the first 12 yrs. mine were kinda all over the place. Seemed lack of sleep and stress could trigger them. Sometimes I could go 18 to 24 mos. without one at all. As the years went on they started coming every fall and spring for a couple of weeks max. Over the last 5 years they primarily come only in spring or early summer. They now last between 2-4 mos. I usually start out with a few shadows and get hit every couple of nights. Then I go for a good 30 days of being hit every night with K-8+ then they slow down again.
Based on how my cycles are, it sounds like his cycle is breaking. We are all different but I hope in this case we are the same!
|
|
IP Logged |
|
|
|
pattik
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2404
|
|
Re: What's the "average" for episodic ev
« Reply #14 on: Apr 1st, 2008, 7:06pm » |
Quote Modify
|
I'm one of those who's episodes have been fairly consistant (although not as precise as brewcrew's) 
They usually last 6 to 7 weeks, and things taper off during the last two weeks or so. It might help for him to keep a headache diary of some sort, so that he can compare his current episode to previous ones. If he sees pattens happening, at least he will have a written history to make comparisons.
Pat
|
|
IP Logged |
The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
|
|
|
coach_bill
New Board Veteran
gimmie my imitrex!!
Gender:
Posts: 118
|
|
Re: What's the "average" for episodic ev
« Reply #15 on: Apr 1st, 2008, 8:28pm » |
Quote Modify
|
hello, mine last anywhere from 8-10 weeks, but my last one just didnt wanna leave and scared the hell out of me, it lasted about 3 1/2 months. thanks coach bill
|
|
IP Logged |
boy i cant wait till it's my turn to give him a headache. paybacks a bitch
|
|
|
StressFree
New Board Veteran
James4:8 I'm a moral failure, but there is hope...
Gender:
Posts: 158
|
|
Re: What's the "average" for episodic ev
« Reply #16 on: Apr 2nd, 2008, 3:08pm » |
Quote Modify
|
Hopefully they are gone. It sounds like it. I started chronic as a teenager, once a day like clockwork. Chronic attacks broken in early 20's with headache specialist & verapamil. The verapamil didn't seem to work very well once I was episodic. 6 to 8 week cycles now. Seems like I get a longer break between each cycle, but extremely bad cycles - multiple hits each day and night - with mostly KIP10s the last couple of weeks of a cycle - then shadows for a few days and all clear. I've had up to 7 years between episodes. They may be gone for good now, but I'm always in fear of the unexpected return. Best of luck and prayers for you, Rich
|
|
IP Logged |
|
|
|
Becky
New Board Junior
Welcome to my world Now go home!!!
Gender:
Posts: 84
|
|
Re: What's the "average" for episodic ev
« Reply #17 on: Apr 2nd, 2008, 4:53pm » |
Quote Modify
|
Mine usually last about 6 weeks, but I will get them in between for a couple of days if I get stressed or tired.
|
|
IP Logged |
|
|
|
marlinsfan
New Board Hall of Famer
I love this place!
Gender:
Posts: 876
|
|
Re: What's the "average" for episodic ev
« Reply #18 on: Apr 2nd, 2008, 10:47pm » |
Quote Modify
|
4 weeks to 3 months. Never really have an average cycle. The last one ended like the one you're describing, though after a few days of only shadows, I got hit with a doozy K8 in the middle of the day (my hits are almost exclusively while I sleep, unless I eat/drink something that triggers it).
If he's brave or dumb, he can try the beer or wine test. Have a drink, if he gets hit, it ain't over 
|
|
IP Logged |
|
|
|
MJ
New Board Hall of Famer
Gender:
Posts: 911
|
|
Re: What's the "average" for episodic ev
« Reply #19 on: Apr 2nd, 2008, 11:52pm » |
Quote Modify
|
Shortest cycles 4 months, longest ones 3 years. Least amounts of hits in a 24 hr period 8, average hit 1-2 hrs
lowest pain level rare 9 usually 10, 33 or so years in and out of cycles.
Life is grand between the hits and even in the hits knowing you get to whup another one. Its like talking face to face with God while kicking the devils ass whilst his minions are pouring hot lava on me and twisting all 3 prongs of his forked staff in the side of my head, while I swing the devil around by the fork of his tail thats stuck in my temple like a shark hook trying to tear its way out but driving ever deeper.
Then its over.
Averages: Me 59,600 knockouts, Devil zero.
Oops got carried awaaay.
2 years 2 months now I've kept that devil away.
|
| « Last Edit: Apr 3rd, 2008, 12:08am by MJ » |
IP Logged |
MJ
|
|
|
Judge_Smails
New Board Newbie
Gender:
Posts: 47
|
|
Re: What's the "average" for episodic ev
« Reply #20 on: Apr 3rd, 2008, 4:11pm » |
Quote Modify
|
My "cycle" didn't really emerge until about 14 years ago. Prior to that I just got random hits.
My cycles have been pretty consistent for the last 14 years: around 2-5 hits every day lasting about 5 weeks every 1.5 years.
|
|
IP Logged |
|
|
|
Beastfodder
New Board Old Timer
O2 and clusterbusters - naturally
Gender:
Posts: 294
|
|
Re: What's the "average" for episodic ev
« Reply #21 on: Apr 4th, 2008, 11:22am » |
Quote Modify
|
Pre-diagnosis and meds - 10 to 12 weeks.
With clusterbusters the cycles since then haven't lasted more than four pretty gentle weeks and even forgot all about last Autumn for the first time in about 10 years!
|
|
IP Logged |
O2 and clusterbusters - naturally
|
|
|
mudplugga
New Board Newbie
Clinging to the wreckage.
Posts: 39
|
|
Re: What's the "average" for episodic ev
« Reply #22 on: Apr 4th, 2008, 7:07pm » |
Quote Modify
|
This one has lasted 8 weeks, and I'm just about certain it's gone - until the next time
I was chronic for over 20 years and for the last 10 years I seem to be getting clusters every other year.
I actually feel that they have gone today, I feel different in every way. This morning I slept in until lunchtime, I can taste my food again, I feel ok. And that's something I have never noticed before, I never realised that the clusters made me feel so bad in so many different ways.
I hope this day comes for you very soon, take care.
|
|
IP Logged |
|
|
|
Barry_T_Coles
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1348
|
|
Re: What's the "average" for episodic ev
« Reply #23 on: Apr 6th, 2008, 8:52pm » |
Quote Modify
|
First one when episodic 13 weeks.
Went chronic on the next one 2 years without a break.
Started taurine/ magnesium in April 06 & got a 261 day break from Oct 06 to July 07.
Hit a high cycle in June 07 & went for 50 days.
Currently 241 days PF.
How long’s a cycle “Who Knows”
Barry
|
|
IP Logged |
Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
[img]
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss