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Topic: A cure in two words? (Read 2337 times) |
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RogerG
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A cure in two words?
« on: Jan 30th, 2008, 5:40pm » |
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CHANGE HEMISPHERES
I am now 54 and been suffering since late teens. I seem to go 18 months to 2 years without clusters. Ice sometimes helps and various other tricks but when a bad one is coming, there is nothing to do but suffer. However, my work takes me from UK to Africa and within two days of arriving, the headaches stop and my head feels clear again. If I return to UK too soon, back they come.
Anyone had any similar experiences?
Roger
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Jonny
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Re: A cure in two words?
« Reply #1 on: Jan 30th, 2008, 5:53pm » |
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Cure?
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artonio7
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Re: A cure in two words?
« Reply #2 on: Jan 30th, 2008, 6:02pm » |
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on Jan 30th, 2008, 5:40pm, RogerG wrote:CHANGE HEMISPHERES
I am now 54 and been suffering since late teens. I seem to go 18 months to 2 years without clusters. Ice sometimes helps and various other tricks but when a bad one is coming, there is nothing to do but suffer. However, my work takes me from UK to Africa and within two days of arriving, the headaches stop and my head feels clear again. If I return to UK too soon, back they come.
Anyone had any similar experiences?
Roger |
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seasonalboomer
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Re: A cure in two words?
« Reply #3 on: Jan 30th, 2008, 6:53pm » |
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That's one I'll have to remember for the annual "best cure awards".
Scott
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Linda_Howell
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Re: A cure in two words?
« Reply #4 on: Jan 30th, 2008, 6:57pm » |
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Helen, Brace yourself.
We'll all be there in a few days.
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vietvet2tours
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Re: A cure in two words?
« Reply #5 on: Jan 30th, 2008, 7:08pm » |
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Sheeeeeit.
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DennisM1045
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Re: A cure in two words?
« Reply #6 on: Jan 30th, 2008, 8:01pm » |
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on Jan 30th, 2008, 6:57pm, Linda_Howell wrote:
Helen, Brace yourself.
We'll all be there in a few days. |
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Uh ... Linda ... I don't know quite how to break this to ya but moving in with Helen wouldn't change your hemisphere. You'd have to move south of the equator.
Now, let's all plan to move in with Aussie Brian and Annette!
Of course by this advice they should be cured. Right?
-Dennis-
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Annette
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Re: A cure in two words?
« Reply #8 on: Jan 31st, 2008, 12:04am » |
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on Jan 30th, 2008, 8:01pm, DennisM1045 wrote:
Uh ... Linda ... I don't know quite how to break this to ya but moving in with Helen wouldn't change your hemisphere. You'd have to move south of the equator.
Now, let's all plan to move in with Aussie Brian and Annette!
Of course by this advice they should be cured. Right?
-Dennis-
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Hey Dennis you are all welcome to move Down Under with us  but then you will all be cured and we will still be suffering ! 
Tell you what, how about we swap houses, you move down here and we move up there .. . Instant cure with a bit of sight seeing thrown in as well
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nani
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Re: A cure in two words?
« Reply #9 on: Jan 31st, 2008, 12:16am » |
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There may be something helpful when one makes a move closer to the Equator.
There was a speaker at the Clusterbuster Conference who has a theory and some anecdotal evidence about it.
Watch the General Boards for an announcement about the Conference Report.
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Pinkfloyd
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Re: A cure in two words?
« Reply #10 on: Jan 31st, 2008, 12:31am » |
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on Jan 30th, 2008, 5:53pm, Jonny wrote:
He did end the statement with a question mark, meaning he was asking IF it might be a cure. He wasn't stating it was a cure.
Roger,
Some people have noticed a marked improvement in their cycles when they move or vacation to a location closer to the equator, from a more northern location. There has long been speculation that moving closer to the equator would help people. No one to my knowledge has any real evidence of this other than people with similar stories to yours. Also, no one has come up with a plausible explanation as to why this might be, although anecdotal evidence such as this is often how new breakthroughs begin to be considered.
All that said, you aren't alone in your experience.
It seems to me, after hearing of these stories and following up on them, that it has more to do with that sort of "change" bringing about the improvement, than just the location.
I'm under the impression that if you moved there (Africa), your body would then eventually become accustomed to the new location and your clusters would come back, while in Africa.
Bobw
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George_J
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Re: A cure in two words?
« Reply #11 on: Jan 31st, 2008, 12:34am » |
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Maybe I'm naive, but if we just change this:
to this:
None of us should have to move, right?
Best,
George
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| « Last Edit: Jan 31st, 2008, 12:35am by George_J » |
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LeeS
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Re: A cure in two words?
« Reply #12 on: Jan 31st, 2008, 5:20am » |
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Interesting Roger. As others have said, this comes up periodically. However, perhaps importantly you don't say precisely where in Africa you travel and for how long you stay before returning for it to remain efficacious?
There is some evidence that the prevalence and incidence of CH increases the further away from the equator people are, but this evidence is scant and may be highly influenced by logistical limitations of epidemiological studies in some regions/countries. But in theory, if you travel to say Kenya, your CH could improve whereas if you travelled to say RSA, then your CH shouldn't change significantly.
If this theory does hold true then it may be because of the limited variation in day length i.e. a pretty consistent 12 hour light period throughout the year around the equator. Over time, this may in some way help re-set the master body clock, specifically the suprachiasmatic nucleus housed within the hypothalamus (either the left or right one, depending on your preference). Indeed this may be the latent mechanism of action for some CH treatments, particularly indole-ring based medication and perhaps even neurostimulation.
Anyway, if it is Kenya that you visit then all the best with it (but keep your head down).
-Lee
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artonio7
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Re: A cure in two words?
« Reply #13 on: Jan 31st, 2008, 7:31am » |
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on Jan 31st, 2008, 5:20am, LeeS wrote:Interesting Roger. As others have said, this comes up periodically. However, perhaps importantly you don't say precisely where in Africa you travel and for how long you stay before returning for it to remain efficacious?
There is some evidence that the prevalence and incidence of CH increases the further away from the equator people are, but this evidence is scant and may be highly influenced by logistical limitations of epidemiological studies in some regions/countries. But in theory, if you travel to say Kenya, your CH could improve whereas if you travelled to say RSA, then your CH shouldn't change significantly.
If this theory does hold true then it may be because of the limited variation in day length i.e. a pretty consistent 12 hour light period throughout the year around the equator. Over time, this may in some way help re-set the master body clock, specifically the suprachiasmatic nucleus housed within the hypothalamus (either the left or right one, depending on your preference). Indeed this may be the latent mechanism of action for some CH treatments, particularly indole-ring based medication and perhaps even neurostimulation.
Anyway, if it is Kenya that you visit then all the best with it (but keep your head down).
-Lee |
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... just a thought... if the logic is that the amount of light effects the cycle... then a strong reasoning would follow that full spectrum light therapy would lead to a significant change in our ch cycles. In other words... why move closer to the equator if you can just sit in front of a bank of lights for 12 hours or more a day?
Modified to add: Are there any ch suffers who have been blind since birth?
with warm regards,
Tony
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| « Last Edit: Jan 31st, 2008, 7:36am by artonio7 » |
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Brew
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Re: A cure in two words?
« Reply #14 on: Jan 31st, 2008, 7:53am » |
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Santa Claus must be chronic then. As well as all eskimos and a number of Exxon employees.
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LeeS
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Re: A cure in two words?
« Reply #15 on: Jan 31st, 2008, 7:53am » |
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on Jan 31st, 2008, 7:31am, artonio7 wrote:| ... just a thought... if the logic is that the amount of light effects the cycle... then a strong reasoning would follow that full spectrum light therapy would lead to a significant change in our ch cycles. In other words... why move closer to the equator if you can just sit in front of a bank of lights for 12 hours or more a day? |
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It is all to do with lux I think Tony; that is, how bright light is. For example, a brightly lit office will give you about 400 lux, whereas day light can give you up to 100,000 (on a sunny day).
You'd need quite a few light bulbs to match the equator!
-Lee
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seasonalboomer
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Re: A cure in two words?
« Reply #16 on: Jan 31st, 2008, 8:40am » |
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It is at this point when I feel the collective insecurity of the CH world. Every time some one has ever told you, "take a few tylenols and lie down", or, "it seems like they come back when you start to think about them." I see threads like this and it pisses me off.
These things aren't a sore back or a sour mood. Someone can always come up with another anectdotal piece of BS that tells us something else. I had a steak at Morton's one time and it averted a headache, I watched the Pittsburg Penguins win one time, and my headache went away, if I stare real hard into the TV when Kaite Couric is doing the news I can avoid getting hit. For Christ's sake.
Sorry, grumpy today.
Scott 
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pattik
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Re: A cure in two words?
« Reply #17 on: Jan 31st, 2008, 8:44am » |
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Roger,
We just don't have enough anecdotal evidence yet about permanent moves towards the equator helping CH. Your experience can add to what we suspect. But if you're taking prolonged trips away from the UK, I suspect that your positive changes are more about messing with your circadian rhythm. When you return to your normal routine, so can the CH.
-Patti
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Kevin_M
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Re: A cure in two words?
« Reply #18 on: Jan 31st, 2008, 9:34am » |
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on Jan 31st, 2008, 12:16am, nani wrote:There may be something helpful when one makes a move closer to the Equator.
There was a speaker at the Clusterbuster Conference who has a theory and some anecdotal evidence about it. |
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I see this was discussed also back in 2003 for the convention at Alexandria Bay, NY.
Quote:| The prevalence of CH is 0.4% overall. That is, CH may be 1% in New England, and only 0.1% in Brazil. The reason for this, is, they are now exploring the theory that CH is affected by environmental conditions, to include latitude. CH appears to be much more common in cold climate countries than it is in warm climates. They believe this may be due to hot climate countries being closer to the equator and don't experience the shorter and longer days of the year. This all ties in to the circadian rhythms. This also is only prevalent in CH sufferers, not in migraine, not in tension, not in sinus, etc. They believe that the circadian rhythms and the hypothalamus are triggered into derangement because of the winter and summer solstice. |
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Quote:| Watch the General Boards for an announcement about the Conference Report. |
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Incidentally, I want to mention that sharing the knowledge of discussions from the conventions is very welcome and that reading Cat's so-far unparalleled coverage of guest speakers at the NY convention in a timely manner was a benchmark in excellence.
Check this out!
http://www.ouch-us.org/gatherings/03.htm
Thank you Cat.
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| « Last Edit: Jan 31st, 2008, 9:47am by Kevin_M » |
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monty
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Re: A cure in two words?
« Reply #19 on: Jan 31st, 2008, 9:40am » |
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on Jan 31st, 2008, 8:40am, seasonalboomer wrote:It is at this point when I feel the collective insecurity of the CH world. Every time some one has ever told you, "take a few tylenols and lie down", or, "it seems like they come back when you start to think about them." I see threads like this and it pisses me off.
These things aren't a sore back or a sour mood. Someone can always come up with another anectdotal piece of BS that tells us something else. I had a steak at Morton's one time and it averted a headache, I watched the Pittsburg Penguins win one time, and my headache went away, if I stare real hard into the TV when Kaite Couric is doing the news I can avoid getting hit. For Christ's sake.
Sorry, grumpy today.
Scott |
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My clusters are strongly tied to the calendar and the clock. Travel can change the pattern. It isn't a cure, it is not as simple as changing hemispheres. Yet I am convinced time-shifting can affect things (for better or worse).
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The outer boundary of what we currently believe is feasible is far short of what we actually must do.
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hotprestwich
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Re: A cure in two words?
« Reply #20 on: Jan 31st, 2008, 11:12am » |
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if we all went to live in space on the space station,do you think we wouldnt get clusters?????
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Kevin_M
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Re: A cure in two words?
« Reply #21 on: Jan 31st, 2008, 11:22am » |
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on Jan 31st, 2008, 11:12am, hotprestwich wrote:| if we all went to live in space on the space station,do you think we wouldnt get clusters????? |
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Skylab? No. Pretty sure it fell out of orbit and burned up many years ago. Slight miscalculation with something to do with the Sun.
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| « Last Edit: Jan 31st, 2008, 11:24am by Kevin_M » |
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Stinger
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Re: A cure in two words?
« Reply #22 on: Jan 31st, 2008, 1:29pm » |
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I think gravity has a profound effect on CH
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karma
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Re: A cure in two words?
« Reply #23 on: Jan 31st, 2008, 1:40pm » |
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I've spent my entire life about 1,080 miles north of the equator.
Still get em every 2 -..5 years. I honestly don't know anyone else with CH that has grown up this far south.
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Pfunk
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Re: A cure in two words?
« Reply #24 on: Jan 31st, 2008, 2:00pm » |
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Interestingly enough, I went to high school in New Jersey and college in West Virginia. I experienced not one HA the entire time I was I was in either place. Maybe it was just coincidence or maybe I came home right on time for my cycles to star each year. Whatever it is/was. As long as I'm in SC, the HA's are horrible. There's my 2 cents( can I write that off?)LOL! Every little bit counts right?
Pfunk
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