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Topic: ER Meds ??? (Read 1275 times) |
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EstieSA
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ER Meds ???
« on: Jan 27th, 2008, 10:10am » |
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Hi all !
I've been to ER on a DAILY basis the last couple of days hitting k7-k9s.
The normal IM injection consists of Pethidene , Largactil & Stemitil giving plus minus 20 hours of relief (NOT pf) with BAD side effects 
What meds are used in your case ???
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MJ
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Re: ER Meds ???
« Reply #1 on: Jan 27th, 2008, 10:43am » |
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on Jan 27th, 2008, 10:10am, EstieSA wrote:
(NOT pf) with BAD side effects
What meds are used in your case ??? |
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The last I went to the ER was in the 1980s.
The last 1/3 (10 years) of my cluster carreer I quit all RXmeds due to side effects and no value.
For me it was easier and cleaner to muscle through the hits allways at K10 with no side effects. Was allways hit 8-10 times a day. Never fun.
Have you tried oxygen? Prednisone, Verapamil, Immitrex? Might help.
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MJ
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Melissa
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Re: ER Meds ???
« Reply #2 on: Jan 27th, 2008, 11:11am » |
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Holy crap! Ok, I googled all those med names and it says the first is a pain killer, the 2nd an antipsychotic and the 3rd is used for nausea and vomiting?? Yikes.
Get thee to a neurologist as soon as possible! Most folks here take what MR listed, like Oxygen (an abortive) and Verapamil (a preventative). Please check out this link to all the different kinds of cluster headaches meds and treatments: http://www.ouch-us.org/chinfo1.htm
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Bob_Johnson
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Re: ER Meds ???
« Reply #4 on: Jan 27th, 2008, 1:08pm » |
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Melissa's idenification of the meds sounds like they gave you a run of migraine meds, none of which are specific for Cluster.
Our experiences and the medical literature make it clear that the ER is one of the weakest places to get a good Dx/treatment for cluster. I'd encourage you to find a good headache specialist--and not just any neurologist for many of them lack training/experience in headache issues.
This is excellent material to guide you in discussing treatment options with any doc.
HERE ARE TWO MAJOR DOCUMENTS WITH RECOMMENDED TREATMENTS FOR CLUSTER HEADACHE, ONE FROM A U.S. PHYSICIAN, THE SECOND FROM EUROPE.
_________________________________________
http://www.plainboard.com/ch/chtherapy.pdf
Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002. Rozen)
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Treatment guidelines from Europe
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A. May, M. Leone, J. Áfra, M. Linde, P. S. Sándor, S. Evers, P. J. Goadsby:
EFNS guidelines on the treatment of cluster headache and other
trigeminalautonomic cephalalgias.
European Journal of Neurology. 2006; 13: 1066–1077.
Download free full text:
http://www.efns.org/files/guideline_49.pdf
(Thanks to "cluster" for link.)
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Melissa
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Re: ER Meds ???
« Reply #5 on: Jan 27th, 2008, 1:28pm » |
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Here are a couple cluster headache sufferer recommended doctors in South Africa...
George Davie
Pretoria, Gauteng
Dr Pieter Slabbert
Pretoria, South Africa
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EstieSA
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Re: ER Meds ???
« Reply #6 on: Jan 27th, 2008, 3:52pm » |
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Thanks for the replies.
Just to recap my history:
I've been chronic for the last 3 years , 11 before that episodic...!
In the beginning I was diagnosed with Trigeminal neuralgia and had the "jeanetta procedure" performed on me twice. Basically a teflon plate installed between the 5th nerve & the main ajoining arterie.
No success. The nerve was then sewered/clipped which left me with blurred vision in my left eye, numb left side of face, no tears in left eye or runny left nostril...but Horners' Syndrome still sets in during the early stages of an attack.
Looong time ago a neurologist put me in hospital and over a 10 day period shoved every medication remotely related down my throat & into my veins!
In the end I was sent home with a handful of Neurontin & Isoptin but no stipulated dosages, and I wasn't going to take any chances...
Medics in SA are quite clueless when it comes to CH  , they just don't listen when you try to explain yourself!
For the last two years I used 3 x 400mg Neurontin /day, which gave relief right in the beginning. Dec 07 saw me change to Topamax, 250mg in total with daily breakthroughs.
02 + Clustermasx did wonders for about a month , after which it turned around and actually became WORSE when breathing medical 02 @ 15l/m.
Melissa, can you put me in contact with SA sufferers that's used these docs...?
Thx a lot for reading/listening to my "saga" !
PS: How can I forget - plenty nerve blocks over the years!
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| « Last Edit: Jan 27th, 2008, 4:19pm by EstieSA » |
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Ace
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Re: ER Meds ???
« Reply #8 on: Jan 30th, 2008, 4:50am » |
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If you ever want to get into the ER without the wait, let me know.
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My Head Hurts Too
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Ray
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Re: ER Meds ???
« Reply #9 on: Jan 30th, 2008, 7:53am » |
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on Jan 30th, 2008, 4:50am, Ace_Sterling wrote:| If you ever want to get into the ER without the wait, let me know. |
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Ah, no thanks...
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
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thomas
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Re: ER Meds ???
« Reply #10 on: Jan 30th, 2008, 9:35am » |
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DHE?
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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EstieSA
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Re: ER Meds ???
« Reply #11 on: Jan 30th, 2008, 4:05pm » |
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on Jan 30th, 2008, 9:35am, thomas wrote:
In the (banana) Republic of SA 
Not a chance...
Yonks ago an IM jab of Dihygergot snuffed the beast completely. It was withdrawn from the market here in the late '80s
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thomas
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Re: ER Meds ???
« Reply #12 on: Jan 30th, 2008, 4:35pm » |
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That is really too bad.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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EstieSA
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Posts: 63
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Re: ER Meds ???
« Reply #13 on: Feb 2nd, 2008, 6:06pm » |
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on Jan 27th, 2008, 1:28pm, Melissa wrote:
Dr Pieter Slabbert
Pretoria, South Africa
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The 1st opening to see him is on 31 March , so I took it. I'll be taking ch diaries, etc along.
Anything in particular I should remember...?
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Melissa
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Re: ER Meds ???
« Reply #14 on: Feb 2nd, 2008, 7:42pm » |
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on Feb 2nd, 2008, 6:06pm, EstieSA wrote:
The 1st opening to see him is on 31 March , so I took it. I'll be taking ch diaries, etc along.
Anything in particular I should remember...? |
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Well, the diaries are good. That should explain to your doctor just what sort of headache they are dealing with.
You also may want to print out the different kinds of medication treatments on this page: http://www.ouch-us.org/medications/medications.htm
Also this article on O2 therapy: http://www.chhelp.org/mhni.html
Good luck to you!
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DON'T WORRY ABOUT NOTTIN - NOTTIN IS ALRIGHT
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