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Topic: thanks (Read 579 times) |
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maryo
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Johnny & Roy puzzle where to apply the O2 mask
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Maybe it's because I eat too much Turkey at Thanksgiving that I don't get around to giving thanks until xmas. I don't know where I'd be without this site. Actually I do know -- encountering doc after doc, one alternative [health provider] after another , person after person who doesn't understand ch and say things like "Do you think it's stress?" I've decided hearing that phrase jacks up my stress more than anything.
I checked in last night to refresh my brain as to options to maybe get through one night without desperation. Started verapmil four days ago, 120 mg/day. Never had to take a prophylactic. But here I am, 55 and female, with the worst episode yet -- 4-5 a night, each one worse than the previous, and the oxygen having less and less benefit. And what the site reminded me about was melatonin. Took 6 mg regular melatonin and 3 mg of time release at bedtime, woke up this am pain free. There must be a Santa after all.
Thank you all for the information you share, and for validating my experience -- yes, women do have ch; they morph just when you think you have them licked and all of the sudden your routine stops working; most of all, there is no cure, and they're not my fault!!!!
Again, THANKS!!
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RichardN
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Re: thanks
« Reply #1 on: Dec 25th, 2007, 9:03pm » |
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Yo Ho Maryo and Merry Christmas
I got here 2/02 (having 6-8 attacks per day and sometimes 3-5 at night) Verapamil and 02 were my salvation. Verapamil is a taper drug and I didn't have my first PF day til I reached 240 mg (had three that night I killed with 02, but it was a WONDERFUL day . . . the first PF day in over a year). You need to make sure and monitor your blood pressure when taking Verapamil . . . can lower same more than you want . . . make sure your doc is on top of this. Having said that . . . many here take MUCH higher doses and sometimes in combinations with other drugs such as Lithium.
I assume you are using the 02 12-15 lpm? Non rebreather mask (the one with the bag)? I ask because all too often docs who do relent and give and 02 script prescribe much lower flo rates thru a nasal canulae . . . . which just doesn't do it for us.
Glad the Melatonin provided you with some rest.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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lionsound
CH.com Alumnus
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breathe
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Re: thanks
« Reply #2 on: Dec 26th, 2007, 6:33am » |
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good for you! you had a good night!!! 
and you are very welcome 
thanks for checking back with us.
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| « Last Edit: Dec 26th, 2007, 6:34am by lionsound » |
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maryo
New Board Junior
Johnny & Roy puzzle where to apply the O2 mask
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Re: thanks
« Reply #3 on: Dec 26th, 2007, 8:42am » |
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Two pain free nights now. Woke up with a shadow both mornings, oxygen didn't help those so I popped a couple of cafergot. I feel certain it's the melatonin and not the verapamil that's given relief. Being a paramedic I never hesitate with oxygen and yes, I use a non-breather at 12-15. Will be checking in with medical folks today about upping verapamil to 250. I've been in this cycle two months. Am hopeful it will end some time this month. Cheers!
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Brew
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Low Four!
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Re: thanks
« Reply #4 on: Dec 26th, 2007, 11:49am » |
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on Dec 26th, 2007, 8:42am, maryo wrote:| I feel certain it's the melatonin and not the verapamil that's given relief. |
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Very glad to hear that you're getting relief.
How are you certain of the above?
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Always remember that you're unique, just like everyone else.
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maryo
New Board Junior
Johnny & Roy puzzle where to apply the O2 mask
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Posts: 79
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Re: thanks
« Reply #5 on: Dec 26th, 2007, 4:13pm » |
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How certain? Oh, gee, kinda certain. I had been on the verapramil 5 days with no change. Things changed when I added the melatonin.
Do c-heads generally do better with time release melatonin or the regular? I have both on hand. Thanks.
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E-Double
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Are we ourselves?
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Re: thanks
« Reply #6 on: Dec 26th, 2007, 5:05pm » |
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on Dec 26th, 2007, 4:13pm, maryo wrote:How certain? Oh, gee, kinda certain. I had been on the verapramil 5 days with no change. Things changed when I added the melatonin.
Do c-heads generally do better with time release melatonin or the regular? I have both on hand. Thanks. |
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thought you were saying dickhead$ lol
some actually mix time release and standard suggestng that it provides a more natural sleep.
I have only used standard.
Sleep is good...enjoy 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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