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   Author  Topic: Had my Neuro Appointment today  (Read 409 times)
Patrick_A
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Had my Neuro Appointment today
« on: Nov 30th, 2007, 6:40pm »
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My old Neuro had retired. So, i was stuck trying out a new one. He was ok though. I told him of my success with the Verapamil/Prednisone taper, but that I didnt like the combo because of how it made me feel. I asked him to have 2 plans. He agreed to give me the prescription for the Verapamil and Prednisone, but he also gave me a prescription for Topamax. I will try the topamax 1st and if that doesnt work, I'll go back to the Pred/Verap combo.
Can anyone give me some details on this drug(topamax)? How successful is it? What are the side effects?
 
Thanks,
  Patrick
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Re: Had my Neuro Appointment today
« Reply #1 on: Nov 30th, 2007, 8:01pm »
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I've been on for about a month now.  I started out at 25 mg, about a few days then up to 50mg for a few more.  Now im up to 125 mg.  During this time I was on a Prednisone taper.  The prednisone really took the hits down to one a day and lessened the severity to a kip 4/5.  After the pred was finished the hits gradually came back.  The severity isn't too bad.  The worst is about a 7....maybe an 8 if I don't get to it in time with the O2.  Usually the kip is 4-6. Right now i average 2-3 a day.  
 
I use O2 and red bull on all my hits and its works fine.  Takes them out in about 10 minutes.  I haven't had to use my imitrix shots since before my prednisone taper.  Thats what counts in my book.  As long as I can keep away from the shot!
 
OK. Side effects.  At first, hard to concentrate and find words...phrases etc.  Im a teacher and I was having a VERY hard time talking to my students for a extended period of time.  I would have to limit the amount of time I gave my lessons.   Very hard to think things through.  Memory is hazy but manageable.   I'm getting by.  It's kind of weird, almost like I have to just stop thinking for a few minutes, take a breather and then I can get back into it.
Tingly feet....eat bananas or get potassium supplements.  
 
If this cycle goes past January/feb i might think about another preventitive
reg
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Re: Had my Neuro Appointment today
« Reply #2 on: Nov 30th, 2007, 9:58pm »
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dopeymax!
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Re: Had my Neuro Appointment today
« Reply #3 on: Nov 30th, 2007, 10:25pm »
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You might want to suggest combining lithium with the verapamil. It's a beast killer for many around here, myself included. I've actually been able to drop the verapamil and was on lithium alone for a long time.
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Re: Had my Neuro Appointment today
« Reply #4 on: Dec 1st, 2007, 12:55pm »
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on Nov 30th, 2007, 8:01pm, annar wrote:
I haven't had to use my imitrix shots since before my prednisone taper.  Thats what counts in my book.  As long as I can keep away from the shot!
reg

 
well, the beast must have heard me!  Last might I went through two e tanks of O2 and had to use a imitrix shot to abort a kip 9.  It just kept coming back.  I think I was worried because I was supposed to fly out of town today.  I canceled my trip.
-reg
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