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Topic: No Hope to Some Hope (Read 406 times) |
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wcork
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Hanging in There...
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No Hope to Some Hope
« on: Nov 29th, 2007, 10:33pm » |
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Well it has been at least 2 weeks since I have posted anything. When I am suffereing I just don't know what to post. Kind of feel like a broken record.
I have been trying so many different things over the passed 3 weeks. Things that I have read on this board and other places.
Unfortunatly the beast has beaten me down to the point I have been admitted to a hospital for treatment. Since the treatment began (DHE) I hanv't had a sever cluster headache. I have had some minor ones. Going on my second night of treatment tonight.
I spent over 3 weeks of getting no more then 2 to 3 hours of broken sleep a night. I ended up in the ER 3 different times.
I have taken/tried:
12 mg Meletonin
O2 15lpm
Lithium 1200mg day.
Predznizone 40mg drop off (I Know not high enough).
Imetrex inj - these work.
Indomethisen - no luch.
Red Bulls
Suger Free Pop Cycles (Idea of my wife) and these have actually done really well for me... Cools me of quickly by chewing them down.
I would still average 8 attacks a day with 2 to 4 of them running in the K8+ range. With no sleep. Seems I wouldn't get but maybe 1 to 2 attacks while awake. But it didn't matter daytime/nighttime if I fell asleep I would have an attach within an hour. Get up and get ride of it, lay down, have another within an hour. Rinse & repeat... after aboutt 3 to 4 try I would just stay up because each tiime the headaches would get worse.
With being so sleep deprived my emotions and body just couldn't handle the attacks anymore. So my docotor admitted me to the hospital. So far the treatment seems to be working. There is about 3 differnt drugs they are giing me through IV. I am expecting to be release tomorrow. But at least I have had some sleep now!!!! The sleep alone my help me deal with this cycle of clusters. I am just praying this cycle is not another 10 year cycle but just a few week cycle. Somedays I wonder how any of us deal with this much pain on a daily basis and not have it control your life. My last cycle I did that easy enough... Maybe it is because I am older or just because of no sleep. But I sure couldn't beat this cycle so far.
Hopeing we all make it through another day,
Wayne
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E-Double
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Re: No Hope to Some Hope
« Reply #1 on: Nov 29th, 2007, 10:38pm » |
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i did an inpatient dhe infusion in july.
a world of difference.
practically broke a 3+ yr cycle
still have occasionally but really not like it was.
only a handful of major attacks since.
enjoy the rest
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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