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   Author  Topic: Hemochromatosis and CH  (Read 919 times)
Globi
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Hemochromatosis and CH
« on: Oct 14th, 2007, 3:07am »
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Hi,
 
Not a cure for CH but maybe something to think about. I have just found out that i have something called hemochromatosis (iron build up).  Browsing the internet some researchers do make a connection between this disease and CH. 1 in 200 people have this disease.....many of them do not know about it. So if you go for a blood check you might ask your doctor to check ferritin and transfirin.
 
Symptoms: different for each person (see link below)....but feeling very tired is one clue. I always blamed CH for feeling so tired...... know for sure many of you do the same.
 
My treatment start this week. It's simple. Blood letting (?). Same as giving blood. I realy hope it wil make a change.
 
So....if one of you has the same....just let me know.
 
Info: http://en.wikipedia.org/wiki/Hemochromatosis
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seasonalboomer
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Re: Hemochromatosis and CH
« Reply #1 on: Oct 14th, 2007, 7:54am »
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Here's some info for you from one of our expert sites on this issue:
 
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Hematochroma tosis
 
I think I'll hold off on the bloodletting for now.
 
Scott
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Globi
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Re: Hemochromatosis and CH
« Reply #2 on: Oct 14th, 2007, 8:38am »
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Thanks for the info.
 
I have been tested positive on 2 DNA mutations. So first they will test ferritin and transferin. If those levels are high they will go for a DNA test.  
 
So....blood letting is not an option if only your ferritin en transferin levels are up......DNA testing has to be done as well.
 
Globi
 
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