Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 23rd, 2024, 8:02am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Clustermasx help »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   Clustermasx help
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Clustermasx help  (Read 1189 times)
Emily
New Board Old Timer
Wales 
****





   


Gender: female
Posts: 279
Clustermasx help
« on: Oct 8th, 2007, 6:06pm »
Quote Quote Modify Modify

Hi all,
 
I'm sure this has been posted a few times already, but where can I get hold of a clustermasx?  
 
I tried to get my doc to give me a bubbler to stop me sounding like Darth Vader after a hit or two, but apparently it's not suitable for short burst oxygen therapy and now he won't give me the kind of mask that's required because I don't qualify for tht either. Grrr... My current mask is a normal one with two holes in it. Surely with my tank revved up to 15lpm, the holes defeat the purpose?
 
The o2 is helping to bring the attack down to a kip 2/3, but I'm sure it would be more effective with the right equipment.
 
Help someone!
 
Em
IP Logged

The greater the obstacle, the more glory in overcoming it.
- Moliere

BMoneeTheMoneeMan
CH.com Alumnus
New Board Hall of Famer
USA 
*****



In remembrance of KingCazman. RIP

   
Email

Posts: 2082
Re: Clustermasx help
« Reply #1 on: Oct 8th, 2007, 7:30pm »
Quote Quote Modify Modify

www.clustermasx.com
 
 
It sounds like what your doc gave you is a regular non-rebreather.  The mask on those are pretty bad.  What I do it take the mask off of the reservoir bag and throw the mask in the garbage.  I just breathe directly from the reservoir bag.  In through the mouth, out through the nose.
 
Hope this helps
B$
IP Logged

"Fool me once, shame on, shame on you. Fool - can't get fooled again"


Think of how stupid the average person is, and then realize half the population is stupider than that.

Melissa
New Board Hall of Famer
USA 
*****




Gone Crazy. Be back soon.

   


Gender: female
Posts: 1748
Re: Clustermasx help
« Reply #2 on: Oct 8th, 2007, 9:15pm »
Quote Quote Modify Modify

Em,
 
Just put tape over the holes and make sure you hold the mask up to your face, don't strap it to your head.
 
Even though this may help more, a tiny investment in a clustermasx is SO worth it and makes a big difference!
 
Good luck!
IP Logged


DON'T WORRY ABOUT NOTTIN - NOTTIN IS ALRIGHT

My mosaic Crosses on Etsy: http://www.etsy.com/shop.php?user_id=5494187
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Clustermasx help
« Reply #3 on: Oct 9th, 2007, 6:24am »
Quote Quote Modify Modify

Bite the bullet and buy a clustermasx.
 
Also if you're now on a HOOF (Home Oxygen Order Form that your GP fills in) to get O2 at home you'll probably find your local oxygen supplier can be very helpful if you speak to them.
 
All the best
IP Logged

O2 and clusterbusters - naturally
Emily
New Board Old Timer
Wales 
****





   


Gender: female
Posts: 279
Re: Clustermasx help
« Reply #4 on: Oct 9th, 2007, 7:29am »
Quote Quote Modify Modify

Thanks for the tips all.  
 
BMonee - There isn't a bag on my mask - just a mask and a hose and that's it. It's pretty lame.
 
I think I will just get a clustermasx myself. I am on a HOOF, but have to go to my GP for any little amendment to what I already have.
 
Em
IP Logged

The greater the obstacle, the more glory in overcoming it.
- Moliere

Ctech
New Board Junior
USA 
**



I love Beer 12pk - Buds#1!

   


Gender: male
Posts: 72
Re: Clustermasx help
« Reply #5 on: Oct 9th, 2007, 6:55pm »
Quote Quote Modify Modify

Just do a search online for a 02 mask - you can by them all day without a doctors approval.
 
-Chris
IP Logged
DennisM1045
New Board Hall of Famer
USA 
*****




One wave at a time!

  DennisM1045   DennisM1045
Email

Gender: male
Posts: 1639
Re: Clustermasx help
« Reply #6 on: Oct 9th, 2007, 10:16pm »
Quote Quote Modify Modify

I don't think Ben is selling clustermasx yet.  Unless I missed something?
 
-Dennis-
IP Logged

Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
USA 
*****




If I can do it, it ain't art.

6108764393 6108764393   Randy   Piscatorus
WWW Email

Gender: male
Posts: 2217
Re: Clustermasx help
« Reply #7 on: Oct 9th, 2007, 10:23pm »
Quote Quote Modify Modify

This will work as good as the best of them until you get a Mask of the Gods.
 
IP Logged

May those who don't want any
Have memories of never getting any.
Emily
New Board Old Timer
Wales 
****





   


Gender: female
Posts: 279
Re: Clustermasx help
« Reply #8 on: Oct 10th, 2007, 7:06am »
Quote Quote Modify Modify

That is amazing! I'm SO
going to have a go at making that now. Unfortunately, I usually let my dogs have the cardboard tubes to chew, so I'm going to have to be extra careful with my new contraption.
 
Thanks for the great advice all!
 
Em
IP Logged

The greater the obstacle, the more glory in overcoming it.
- Moliere

Melissa
New Board Hall of Famer
USA 
*****




Gone Crazy. Be back soon.

   


Gender: female
Posts: 1748
Re: Clustermasx help
« Reply #9 on: Oct 10th, 2007, 12:40pm »
Quote Quote Modify Modify

Roll Eyes  Now Chris, that was just stupid.
 
 Wink
« Last Edit: Oct 10th, 2007, 12:41pm by Melissa » IP Logged


DON'T WORRY ABOUT NOTTIN - NOTTIN IS ALRIGHT

My mosaic Crosses on Etsy: http://www.etsy.com/shop.php?user_id=5494187
luveemom
New Board Veteran
USA 
***





   
Email

Gender: female
Posts: 235
Re: Clustermasx help
« Reply #10 on: Oct 10th, 2007, 3:09pm »
Quote Quote Modify Modify

Hi Emily,
Correct me if I am wrong, but last time I tried to get a clustermasx from the website I was told they are having problems with orders and payment processing.  Check and see if it is back up and running.......I'd like to get one myself...
Good Luck
Alicia
IP Logged
CostaRicaKris
New Board Veteran
USA 
***



Currently training for AFC half Marathon

  CostaRicaKris  
Email

Gender: female
Posts: 179
Re: Clustermasx help
« Reply #11 on: Oct 11th, 2007, 1:15am »
Quote Quote Modify Modify

I'm sorry guys, we're supposed to use this to smoke what?  
 
 
 
 Grin
 
 
Couldn't help myself
 
 Grin
 
 
~Kris
IP Logged

Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
BMoneeTheMoneeMan
CH.com Alumnus
New Board Hall of Famer
USA 
*****



In remembrance of KingCazman. RIP

   
Email

Posts: 2082
Re: Clustermasx help
« Reply #12 on: Oct 13th, 2007, 10:44pm »
Quote Quote Modify Modify

I have used that contraption suggested by Mr Hap.  It works well.
 
Like he says, though, 'Dont drool, it shortens the useful life"
 
IP Logged

"Fool me once, shame on, shame on you. Fool - can't get fooled again"


Think of how stupid the average person is, and then realize half the population is stupider than that.

Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss