Author |
Topic: Topamax - questions and suggestions (Read 611 times) |
|
SmoothSippin
New Board Newbie
Gender: 
Posts: 24
|
 |
Topamax - questions and suggestions
« on: Jul 24th, 2007, 12:55pm » |
 Quote  Modify
|
Ok,
So I am on this Topamax stuff now. I think it is helping (can you ever be totally sure), but one thing is for sure, the stuff ain't kind on the mind. I am currently at 25 mg at night and 25 in the morning. I believe the plan in to get to 175mg total in a day. I am not sure I am going to be able to do that.
My questions for those that use this. One, does this dizziness/grog/anxiety get worse or better? What about the stomach issues? Do you get used to this etc? Are my side effects abnormal?
On the good side my 2 a dayers are diminishing ....
but I think my mind is too. Sure could use a drink. Of course that is out of the question for a ?? while??
|
|
 IP Logged |
I pray to become the person that my dogs believe I am.
|
|
|
UN solved
Guest
|
|
Re: Topamax - questions and suggestions
« Reply #1 on: Jul 24th, 2007, 4:04pm » |
Quote Modify
 Remove
|
Many here call it "Dopeymax" for a reason. It will hamper your ability to think / concentrate and will probably worsen as the dose is increased. Also, for me, kidney stones were a major problem. Topomax caused them twice for me. (OUCH) Better drink plenty of water with this drug and be careful driving (or thinking).
Goodluck
UNsolved
|
|
IP Logged |
|
|
|
billyjoe
New Board Veteran
Go Red Sox!
Posts: 131
|
|
Re: Topamax - questions and suggestions
« Reply #2 on: Jul 24th, 2007, 4:37pm » |
Quote Modify
|
I didn't like the feeling at 75mg, but could handle 50mg ok. I ended up doing a Verapamil/topmax mix for a while and felt pretty good. Finally, I went to all Verapamil. BTW, since I got on these drugs, I can drink. 
|
|
IP Logged |
|
|
|
Lenny
CH.com Alumnus
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 213
|
|
Re: Topamax - questions and suggestions
« Reply #3 on: Jul 24th, 2007, 8:04pm » |
Quote Modify
|
on Jul 24th, 2007, 4:04pm, UN solved wrote:Many here call it "Dopeymax" for a reason. It will hamper your ability to think / concentrate and will probably worsen as the dose is increased.
Ditto to the above.....i had to get off of it after a week or two,as far as any help with the clusters (none what so-ever)then again that's my exp.with it and i am sure that there are others that have benefited from it.......IMHO they should change the name to "dopomax"........PF to all.........Lenny |
|
|
|
IP Logged |
yes a newbie,unfortunately not to the beast!!!Chronic - Clusterhead
|
|
|
PollyPocket
CH.com Alumnus
New Board Hall of Famer
Someone I am is waiting for my courage.
 
Gender: 
Posts: 2496
|
|
Re: Topamax - questions and suggestions
« Reply #4 on: Jul 24th, 2007, 9:13pm » |
Quote Modify
|
my advice: don't try to drive, someone will switch the pedals on ya.
don't try to cook.......stoves stay on all by themselves.
don't attempt laundry........ someone will move the buttons around.
converse? its better to remain silent and thought a fool than to speak and remove all doubt!
Sorry hon. I had every adverse reaction one could have asnd the doc took me off it after my trying to communicate ONE sentence. Hopefully it'll work for you, but I went back to vrap.
all the best,
jen
|
|
IP Logged |
“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened.  " - Tori
|
|
|
rolo65
Guest
|
|
Re: Topamax - questions and suggestions
« Reply #5 on: Jul 25th, 2007, 7:48pm » |
Quote Modify
Remove
|
I was so bad on the stuff that I could not remember how to get to places I've been to several times in the past.
I also got very loose liped and said many things I regreted.
Did'nt have stomach problems though.
It seemed like I got toxic on the stuff after two months or so. I had to go off it all three times I was on it.
I also saw little benifit from it, far outweighed by the terrible side efects.
I'm sure the teenagers like to feel that way but not me!
PFDAN,
Roland.
|
| « Last Edit: Jul 25th, 2007, 7:51pm by rolo65 » |
IP Logged |
|
|
|
Wayne
New Board Old Timer
RedBull Rules!!
Gender:
Posts: 299
|
|
Re: Topamax - questions and suggestions
« Reply #6 on: Jul 26th, 2007, 5:28am » |
Quote Modify
|
I was on Topo for about a year, started at 100mg and slowly tapered down to 50. I seemed to adjust to the worst side effects but my short term memory was attrocious. Forgot meetings, where I had put the car keys - which sometimes didn't matter because I couldn't remember where I had put the car, etc etc.
On the very positive side I was completely PF from about two weeks after starting except for the times where I felt so good that I forgot to take the stuff. I am also on Verap now and the memory is coming back.
|
|
IP Logged |
A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort.
|
|
|
SmoothSippin
New Board Newbie
Gender:
Posts: 24
|
|
Re: Topamax - questions and suggestions
« Reply #7 on: Jul 26th, 2007, 10:48am » |
Quote Modify
|
Well, I think my Topamax days are over. Had to leave work yesterday since I was too stoned to function. (Doseage was uped yesterday to 75mg) I think I read the same line in a email 14 times before I realized I did that. I also found myself starring off into space for ??? amounts of time. Lost my lunch as well.
Back to the doc today for some other junk. (No offense to those that it helps. I just hate taking stuff.) Sadly, I had only minor CHs when I was on it. Of course, I could not think either.
|
|
IP Logged |
I pray to become the person that my dogs believe I am.
|
|
|
dtoolman99
New Board Newbie
Gender:
Posts: 8
|
|
Re: Topamax - questions and suggestions
« Reply #8 on: Jul 26th, 2007, 12:46pm » |
Quote Modify
|
I've just stepped to 50mg of the stuff a couple of days ago,I can't imagine my life at 100mg a day  .
I went to put my pants on the other day,got one leg on,sat there for who knows how long,and then just took my pants back off,I guess wherever I was going wasn't very important.
But like you say Smooth,it seems like it is helping the CH's a bit.
|
|
IP Logged |
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: Topamax - questions and suggestions
« Reply #9 on: Jul 27th, 2007, 4:04am » |
Quote Modify
|
It surely was Dopeymax for me! I went to places and wondered why I'm in there and what I'm supposed to do... You can imagine what it was like to do an essay when you cannot hold a thought... It was horrible.
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
brauer100
New Board Newbie
Keep the faith!
Gender:
Posts: 15
|
|
Re: Topamax - questions and suggestions
« Reply #10 on: Aug 12th, 2007, 10:59pm » |
Quote Modify
|
If anyone is still searching this and curious about Topamax...I've not had a bad experience after long-term use and gradual dosing up. Started out on 50mg and couldn't remember my own phone number. A year and a half later, I take 300mg and my memory is only somewhat sketchy. Other symptoms are pretty much all gone, too. Feet sometimes feel like they're falling asleep. It didn't take me this entire time for symptoms to go away, either. Just a few months.
And Topamax has been the only preventive that has consistently helped me, so it was worth a few months of bad side fx for me, FYI.
I still get killer headaches, but overall I don't have any bad side fx.
Kate
|
|
IP Logged |
|
|
|
TomM
New Board Hall of Famer
Gender:
Posts: 2006
|
|
Re: Topamax - questions and suggestions
« Reply #11 on: Aug 13th, 2007, 4:38pm » |
Quote Modify
|
I got all the typical side effects from Topamax: tingling in hands and feet; soda taste wierd; weight loss; CRS (can't remember shit!) and NO MORE HEADACHES! I tapered upto 100mg/day and now am tapering down. Currently @ 50 mg/day. This is the best I have felt in months. Give and take, baby! Give and take. I'll take the CRS and give up the CH anytime.
TomM
|
|
IP Logged |
"Everyone should believe in something. I believe I'll go fishing."
--Thoreau--
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss