Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 23rd, 2024, 10:53am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Alternative Therapy Round Two ( Updated) »


   Clusterheadaches.com Message Board
   Cluster Headache Help and Support
   Medications, Treatments, Therapies
(Moderator: DJ)
   Alternative Therapy Round Two ( Updated)
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Alternative Therapy Round Two ( Updated)  (Read 2808 times)
Mark C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Onward through the fog.

   
Email

Gender: male
Posts: 2660
Alternative Therapy Round Two ( Updated)
« on: Jun 2nd, 2007, 3:38pm »
Quote Quote Modify Modify

After years pain free the beast returned about 5 weeks ago.....pissed.
 
Round one of my treatment can be found here.  
Please read this.
 
I repeated the original treatmant but slightly increased the initial dose.
The first senasation I had was the nerve affected by my CH felt "aggravated", if that make sense, kinda odd.
 
Next day..........shadows.........hmmm...... Grin
 
Today...............nothing, no headache no shadows.....nada.
 
The beast made an apperance this afternoon. A nice K-8 out of nowhere. It did not last too long.  
I hope it is a farewell.

 
It is truly a miracle.
 
I want need to know why I respond so well to this treatment.
 
Has anyone else been able to measure PF time in years?
 
I reread my original post and cried......I am truly grateful to those who know who you are!.. Wink   Grin
 
All I can say is thank you!!
 
Mark
 
Clusterbusters
 
Erowid    
 
Mycobag
 
M.A.P.S
 
« Last Edit: Sep 17th, 2007, 2:52pm by Mark C » IP Logged


Click The Flag
Pinkfloyd
New Board Hall of Famer
USA 
*****




comfortably numb

  psiloscribe   pinkshroomrat
WWW Email

Gender: male
Posts: 1406
Re: Alternative Therapy Round Two
« Reply #1 on: Jun 3rd, 2007, 12:27am »
Quote Quote Modify Modify

on Jun 2nd, 2007, 3:38pm, Mark C wrote:
I want need to know why I respond so well to this treatment.

 
 

 
Don't look Mark!!!  Grin
 
Hope all goes well,
Bobw
IP Logged

"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
Pinkfloyd
New Board Hall of Famer
USA 
*****




comfortably numb

  psiloscribe   pinkshroomrat
WWW Email

Gender: male
Posts: 1406
Re: Alternative Therapy Round Two
« Reply #2 on: Jun 3rd, 2007, 12:59am »
Quote Quote Modify Modify

on Jun 2nd, 2007, 3:38pm, Mark C wrote:
I reread my original post and cried...

 
I just went back also and noticed that the first person to respond, is no longer with us.  Cry
 
I do know that seeing other people become pain-free made him happy.
 
Bobw
IP Logged

"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
IndianaJohn
New Board Hall of Famer
USA 
*****




Into the jaws of the Beast we ride!

   
Email

Gender: male
Posts: 643
Re: Alternative Therapy Round Two
« Reply #3 on: Jun 4th, 2007, 7:41pm »
Quote Quote Modify Modify

I tried the treatment three years ago and have been relatively pf since.  I've only had two or three cycles in that time and they were very mild and didn't last longer than a week.  I couldn't give this treatment a stronger recomendation.  It gave me my life back.
IP Logged

Did my brains fall out or is this headache over?
Mark C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Onward through the fog.

   
Email

Gender: male
Posts: 2660
Re: Alternative Therapy Round Two
« Reply #4 on: Sep 5th, 2007, 5:45pm »
Quote Quote Modify Modify

They are back....more to be revealed
 
 Angry
IP Logged


Click The Flag
fiftyamp
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   


Posts: 16
Re: Alternative Therapy Round Two
« Reply #5 on: Sep 6th, 2007, 2:37am »
Quote Quote Modify Modify

I'm in the same boat right now.  I really appreciated reading your original post.  I just dosed yesterday to break a cycle I thought had already been broken.  I got hit this afternoon by the nastiest CH I've ever had.  It started at 1230pm and lasted until 133pm.  The MFer took a 10 min break, then came back for another hour and a half.  Sick to my stomach, crying, and considering the ER for the first time in a long time.  Persistant shadowing over the next few hours, then nothing.  Currently not on any meds, but seeing a new Neuro next week.  Going to push for the o2, but hoping I won't need it until next year.
IP Logged
bluesunshine
New Board Junior
Canada 
**





   


Gender: male
Posts: 82
Re: Alternative Therapy Round Two
« Reply #6 on: Sep 6th, 2007, 3:58am »
Quote Quote Modify Modify

on Jun 4th, 2007, 7:41pm, IndianaJohn wrote:
I tried the treatment three years ago and have been relatively pf since.  I've only had two or three cycles in that time and they were very mild and didn't last longer than a week.  I couldn't give this treatment a stronger recomendation.  It gave me my life back.

 
It is funny that some of the CHmember that I met here 3-4 years ago are no longer "that much present"!  hooray PF!  And there is no more canadian board too...  Hope there is  a good bunch of PF free poeple out there and all around the world!!!
 
Stand up for PFDAN
 
blue
IP Logged
madaline
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   


Gender: female
Posts: 44
Re: Alternative Therapy Round Two
« Reply #7 on: Sep 7th, 2007, 3:36am »
Quote Quote Modify Modify

Exactly what is your "alternative therapy?"  Nevermind, I just read your old post. When all my "stuff" (verapamil, zomig clonodine, caffeine, prednisone, stops working -I have been a chronic for 11 yrs. now and have tried almost everything else  - I may ask what exactly "shrooms" are. For now, hope you are all having successes.  PF times. Madaline  Kiss
« Last Edit: Sep 7th, 2007, 3:53am by madaline » IP Logged
Mark C
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Onward through the fog.

   
Email

Gender: male
Posts: 2660
Re: Alternative Therapy Round Two Point One
« Reply #8 on: Sep 17th, 2007, 2:51pm »
Quote Quote Modify Modify

In an effort to squash the current cycle  LSA will be dosed this weekend.  
(Time permitting, attempting detox currently).
 
I am anxious to kill this bastard....again....  bigguns
 
Results to follow.  
 
Thank you all,
Mark
« Last Edit: Sep 17th, 2007, 2:55pm by Mark C » IP Logged


Click The Flag
Ray
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Ray and Shade

  raymond759  
WWW Email

Gender: male
Posts: 1118
Re: Alternative Therapy Round Two ( Updated)
« Reply #9 on: Sep 17th, 2007, 3:30pm »
Quote Quote Modify Modify

Mark:
 
My prayers are with you to crush the beast under your heel.
 
Ray
IP Logged

You have my prayers and compassion-I'm right there with you.

Dum tempus habemus, operemur bonum
*While we have the time, let us do good*

http://www.myspace.com/rayplace
http://www.shadesgarden.com
birdman
New Board Old Timer
USA 
****



Will try anything once!

   
Email

Gender: male
Posts: 313
Re: Alternative Therapy Round Two ( Updated)
« Reply #10 on: Sep 18th, 2007, 11:32am »
Quote Quote Modify Modify

Just read through your original post.  Hope you have the same results, folks liek yourself have convinced me to start growing.  God bless and hears to PF days for all of us.
IP Logged
jimp63
New Board Newbie
USA 
*



I love YaBB 1G - SP1!

   
Email

Gender: male
Posts: 17
Re: Alternative Therapy Round Two ( Updated)
« Reply #11 on: Sep 18th, 2007, 3:46pm »
Quote Quote Modify Modify

Hi Mark,
 
Glad to hear you've had success with this style of treatment.  It actually provides me with a heads up of what to expect when I embark on my own therapy.  Hopefully, I'm about 3-4 weeks off in terms of availability.  I hope to have the success you, and many others, have experienced.  I am currently off all preventatives (about 7 weeks now), it's tough letting go of that Trex though!  I'm thinking 2-3 weeks off that before my first session should be good. I am eager to start kicking some Beast ass!!!  Best of luck and continued success to you.
IP Logged
JDH
CH.com Alumnus
New Board Hall of Famer
USA 
*****




We will get by, We will survive!

    simnjue2u
Email

Gender: male
Posts: 2453
Re: Alternative Therapy Round Two ( Updated)
« Reply #12 on: Sep 18th, 2007, 4:13pm »
Quote Quote Modify Modify

on Jun 2nd, 2007, 3:38pm, Mark C wrote:

Has anyone else been able to measure PF time in years?
 
Mark
 

 
I can!  
After doing the dance every other year for about 18 years I have not had a full blown cluster since Feb '03. I have dosed every 6 months either with the fungus or RC seeds and still nothing. There have been a few times when it felt like a hit was ramping up on a nightly basis but it has never broke through.
I will always be grateful for what you and the Clusterbusters have done Bob.
 
Jim
 
IP Logged

9-11-01, to remember is to honor.

It's not what you know, it's what you can prove.

ECH established 1985
Beastfodder
New Board Old Timer
United_Kingdom 
****



O2 and clusterbusters - naturally

   


Gender: male
Posts: 294
Re: Alternative Therapy Round Two ( Updated)
« Reply #13 on: Sep 19th, 2007, 5:30am »
Quote Quote Modify Modify

Finger's crossed for you,
 
Always like a happy ending, doubt I'd have got such a good result without alternatives.
IP Logged

O2 and clusterbusters - naturally
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss