Author |
Topic: Why does every doc write migrane instead of CH on (Read 577 times) |
|
DannyV
New Board Junior
Save Deadwood
Gender: 
Posts: 92
|
 |
Why does every doc write migrane instead of CH on
« on: Apr 14th, 2007, 2:06pm » |
 Quote  Modify
|
Do the rest of you have this happen to you? I have never seen the words Cluster Headache on my prescriptions. Always chronic intractable migraine.
My diagnosis is CH. Is this ringing any bells?
Thanks-- Danny
|
|
 IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: Why does every doc write migrane instead of CH
« Reply #1 on: Apr 14th, 2007, 2:15pm » |
Quote Modify
|
The lable on my Zomig NS says "Use as needed for cluster headache, limit 2 in 24 hours".
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
midwestbeth
CH.com Alumnus
New Board Hall of Famer
Gender: 
Posts: 834
|
|
Re: Why does every doc write migrane instead of CH
« Reply #2 on: Apr 14th, 2007, 2:54pm » |
Quote Modify
|
Quote:| The lable on my Zomig NS says "Use as needed for cluster headache, limit 2 in 24 hours". |
|
Jonny, you made me get up and read my Zimig. I am still using free samples & the insert states under What is Zomig Nasal Spray? "Zomig nasal spray is a perscription medication used to treat migraine headaces in adults. Zomig nasal spray is not for other types of headaches." Under Indications and Usage it states "for the acute migraine headaches"
I do not have a Rx yet, but since I'm down to 2, I need to call & I wonder what the doc will write? Yes, it really bugs me that ch is called migraine. I get migraines and ch does not even come close. I best annology I read on this site " Calling a ch a headache is like calling a tsunami a wave"
Beth
|
|
IP Logged |
Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
|
|
|
DannyV
New Board Junior
Save Deadwood
Gender:
Posts: 92
|
|
Re: Why does every doc write migrane instead of CH
« Reply #3 on: Apr 14th, 2007, 3:48pm » |
Quote Modify
|
I really like your analogy. I think I'll use that if you do'nt mind.
|
| « Last Edit: Apr 14th, 2007, 3:51pm by DannyV » |
IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
Rosybabe
CH.com Alumnus
New Board Hall of Famer
"Too much of a good thing can be wonderful!!
 
Gender:
Posts: 3470
|
|
Re: Why does every doc write migrane instead of CH
« Reply #4 on: Apr 14th, 2007, 4:01pm » |
Quote Modify
|
CH a headache....Tsunami a wave...
GOOD comparison!!
|
|
IP Logged |
 Believing is just the beginning!
|
|
|
midwestbeth
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 834
|
|
Re: Why does every doc write migrane instead of CH
« Reply #5 on: Apr 14th, 2007, 4:20pm » |
Quote Modify
|
Quote:| Calling a ch a headache is like calling a tsunami a wave |
|
Can't take the credit. I read it on here, don't remember who origanally said it. I think it may have been on a post about how to describe ch. It is the best decription I've heard.
Beth
|
|
IP Logged |
Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
|
|
|
birdman
New Board Old Timer
Will try anything once!
Gender:
Posts: 313
|
|
Re: Why does every doc write migrane instead of CH
« Reply #6 on: Apr 14th, 2007, 6:58pm » |
Quote Modify
|
Tow completely different HA's, no doubt. It bothers me more when people say, Oh you get migraines? Me too. So people have no clue. Some doc's write migraine because insurance companies/pharmacists have no clue either.
|
|
IP Logged |
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: Why does every doc write migrane instead of CH
« Reply #7 on: Apr 14th, 2007, 7:40pm » |
Quote Modify
|
My current neuro writes for cluster headache.
My previous neuro wrote cluster migraine. I don't remember what my first neuro wrote. He was pretty clueless about CH so I wasn't with him for more than a couple months.
|
|
IP Logged |
|
|
|
UN solved
Guest
|
|
Re: Why does every doc write migrane instead of CH
« Reply #8 on: Apr 14th, 2007, 7:54pm » |
Quote Modify
 Remove
|
I've had docs write it both ways. I'm sure my doc does it so it doesn't confuse others in the health profession. Everyone has heard of migraines but not many know what clusters really are.
UNsolved
|
|
IP Logged |
|
|
|
Skyhawk5
New Board Junior
I love YaBB 1G - SP1!
Gender:
Posts: 98
|
|
Re: Why does every doc write migrane instead of CH
« Reply #9 on: Apr 14th, 2007, 7:56pm » |
Quote Modify
|
To me the worst of this is the fact that our meds are made as migraine meds and the limits on monthly supplies are just barbaric. Like we don't exist almost. My Dr writes as CH.
I hope time, education & maybe a few lawsuits will make this better someday. Keeping us out of the Hospital has to be cheaper. My 2 cents.
Skyhawk
|
| « Last Edit: Apr 14th, 2007, 11:15pm by Skyhawk5 » |
IP Logged |
|
|
|
midwestbeth
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 834
|
|
Re: Why does every doc write migrane instead of CH
« Reply #10 on: Apr 14th, 2007, 10:15pm » |
Quote Modify
|
Quote:Everyone has heard of migraines but not many know what clusters really are.
|
|
|
|
IP Logged |
Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
|
|
|
DannyV
New Board Junior
Save Deadwood
Gender:
Posts: 92
|
|
Re: Why does every doc write migrane instead of CH
« Reply #11 on: Apr 15th, 2007, 2:31pm » |
Quote Modify
|
on Apr 14th, 2007, 7:54pm, UN solved wrote:I've had docs write it both ways. I'm sure my doc does it so it doesn't confuse others in the health profession. Everyone has heard of migraines but not many know what clusters really are.
UNsolved |
|
All the more reason that they should make other people aware of it! AAARRRGH
|
|
IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
Bob_Johnson
New Board Hall of Famer
Gender:
Posts: 1796
|
|
Re: Why does every doc write migrane instead of CH
« Reply #12 on: Apr 16th, 2007, 8:07am » |
Quote Modify
|
Two possibilities: either your doc is not current on Dx and therapies OR he writes this way to avoid potential conflict/rejection by insurance companies (re. drug coverage). As we have seen here, too many problems trying to get insurance outfits to recognize CH and the differences in therapy between CH and migraine.
|
|
IP Logged |
Bob Johnson
|
|
|
chrisw
New Board Veteran
I love bunnies
Gender:
Posts: 119
|
|
Re: Why does every doc write migrane instead of CH
« Reply #13 on: Apr 16th, 2007, 3:56pm » |
Quote Modify
|
My doctor writes "as needed for headache".
She probably knows that many pharmacists would look at a word like clusters, and not know what the hell it was.
She never uses migraine. Inever had a migraine, or at least I dont think I did.
Chrisw
|
|
IP Logged |
|
|
|
DannyV
New Board Junior
Save Deadwood
Gender:
Posts: 92
|
|
Re: Why does every doc write migrane instead of CH
« Reply #14 on: Apr 18th, 2007, 9:48pm » |
Quote Modify
|
I t angers me because sometimes Im forced to use some pretty strong pain killers,and when the pharmasists all read "as needed for headache", I know what they think when they give me the"Hmmmm" glance.
Makes me want to jump across the counter.
|
|
IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss