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MikeE
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Me and my RC (seeds)
« on: Mar 16th, 2007, 9:56am » |
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Hello all, Many of you have helped me in the past so I wanted to share my 2 cents on RC seeds. I have had CH for almost 10 years and have tried everything short of surgery. I started episodic and have steadly drifted toward cronic through the years. RC seeds are far and away the best treatment I have tried. Today is seven weeks pain free. I have not gone that long without a hit in 18 months. I did just as advised on the clusterbuster site. Detox started fine because I really liked getting off lithimum and varapimil as they both drain your energy and ability to function. Fine being 4-5 hits a night but no more than on the meds and hits seemed clean, intense but shorter. The worst day was 13 hits in 24 hours now that was rough and I had to abort 2 times with trex as o2 was no help. After 12 days my seeds finally came Note, don't detox untill seeds are in hand. My hits were down to the regular 12 am, 2 am, 4 am K6's I was getting better so mabey I was nearing the end of a long cycle. I crushed 20 seeds soaked in water for 4 hours and dosed at about 6pm. Felt nothing at all and thought there is no way that was going to do anything. To my suprise I went to sleep at 10pm and woke at 7am with a clear head. I am talking crystal clear. Not left side awake and 4 cups of coffee later the right side starts to fire like an old bulldozer in cold weather. Some may think my cycle was ending anyway, and I would agree, but never without shadows and an few good bye hits.
I have dosed every Friday 30 seeds,40,60,100,30 in that order and never felt any kind of buzz. I dont think the higher doses did any more good I was just testing the water. 100 did make me sleepy and after about 9 hours of sleep I had a very mild hangover that didnt last long. Last week a storm front was comming in on Thursday, my right eye was a bit blurry and had that feeling that the beast was closing in, but night came and went with no pain and my Friday dose cleared things up again. That's what sold me. Mabey my cycle was ending at the start, I'm not sure, but I know the seeds stopped this cycle before it started. Call me crazy if you like but I know my pain and it is real pain, Yesterday I shot myself in the hand with a nail gun,I said huh and as we were trying to pull the nail out of my nuckel everyone was saying isn't that killing you? I just stood there calmly and said well it doesn't tickle. Thinking to myself these people are so blessed they have no idea what pain is. You folks know pain and this sure is working for me. Just wanted to share and give a big THANKS to all those at clusterbuster. BTW my nuro said he could not leagally tell me to do it but it made perfect sense to him.
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nani
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Re: Me and my RC (seeds)
« Reply #1 on: Mar 16th, 2007, 10:16am » |
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on Mar 16th, 2007, 9:56am, MikeE wrote:| a clear head. I am talking crystal clear. |
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Isn't that the most awesome feeling? Congrats on your success, Mike. I'm always happy to hear kinds of reports. A word of advice, though...
I find that for me, less is more. If I were you, I'd probably take a break from busting and see how long you can go before activity resumes. I've gone 60 days between seed doses, and I never have to use than 20 seeds. I don't think I'd recommend a 100 seed dose to anyone. The amount of LSA in seeds varies... 100 could possibly cause both mental and physical discomfort. I always suggest that people start small and only increase if necessary. JMHO
Sending continued pf wishes, nani
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Chillrmn1
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Re: Me and my RC (seeds)
« Reply #2 on: Mar 17th, 2007, 12:05am » |
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Excellent report Mike and so great to read your success.
Pretty amazing isn't it? I'm at 22 months in remission with this the ClusterBuster treatment, longest previously prior to this treatment was 14 months. I'm sold on it! 
Regards
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| « Last Edit: Mar 17th, 2007, 11:37am by Chillrmn1 » |
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Lobster
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Re: Me and my RC (seeds)
« Reply #3 on: Mar 17th, 2007, 3:11am » |
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RC is keeping me PF for the last 2-3 years.
That said, I had my first really whacked experience with these bad boys just last night. And I know exactly how I did it. Details some other time.
/no. it was not 100. but it was one small difference in the preparation.
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| « Last Edit: Mar 17th, 2007, 3:11am by Lobster » |
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BikerBob
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Re: Me and my RC (seeds)
« Reply #4 on: Mar 17th, 2007, 9:10am » |
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on Mar 17th, 2007, 3:11am, Lobster wrote:RC is keeping me PF for the last 2-3 years.
That said, I had my first really whacked experience with these bad boys just last night. And I know exactly how I did it. Details some other time.
/no. it was not 100. but it was one small difference in the preparation. |
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1) I don't believe that "RC is keeping me PF for the last 2-3 years" because Rivea corymbosa was never mentioned here or anywhere else as a potential treatment for CH before I discovered them in May 2005.
2) If you've been PF for the last 2-3 years why did you have a "really whacked experience with these bad boys just last night"?
3) So what was the "one small difference in the preparation"?
BB
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Lobster
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Re: Me and my RC (seeds)
« Reply #5 on: Mar 17th, 2007, 11:52am » |
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Actually, you are entirely correct.
I should have said that 'alternate treatments', shrooms and then RC, have been doing the trick. I still lump them into the same 'taboo' category, so my bad.
My first RC receipt is from mid-2005... so shy of 2 years on that.
Difference in prep?
First, know that I have never felt much at all when trying RC seeds. I normally dose with 25-30 when I feel the first pings of a shadow. Most I ever feel is a slight flushing of the cheeks.
My normal prep is to pepper mill them into water, then let the water sit for some period of time... from 2 minutes to an hour. Have tried the wine soaking and such... no substantial difference.
So the other day I start to feel the ping on my shadow site. No plans for the evening, so I plan to dose. Figure I will jump in the hot tub and read a book.
Ground up 30. Put them into HOT water... about 130 degrees. Perhaps half a cup.
Microwaved the mix for some short period of time... long enough to get the water boiling. Repeated that twice... another 15 seconds.
Diluted with cold water then chugged/filled it back up/swished to get the stuff clinging to the side/repeat... you know the drill.
Jumped in the hot tub... and about 45 minutes later... bang.
It was a trip. Not a 'drunk' trip or 'shroom' trip or anything else. Quite different.
Normally I have slight nausea after I take them, cuz the taste just sucks. This time it did not go away. So for at least two hours I felt like I was going to hurl.
So an hour into this I am happily reading, but confused. My wife planned to jump in, but I told her something was up and to leave me alone. The feeling is extremely difficult to explain. But I definitely passed the point of believing I am imagining it.
It was not what I would term as a 'pleasant' trip. More 'awkwardly uncomfortable'. Went completely anti-social during.
Now the kicker.
I put on my jammies, then go into my office to play some BF2142 for a few hours.
Earlier in the day I installed some faucets, and my wife kindly dumped all the papers from the boxes into a heap on my desk.
Among the papers is a bright yellow 4x8inch warning label. I mean bright yellow... warning label yellow.
And it is was not yellow. It was a very pale cream color. My color vision was COMPLETELY skewed.
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| « Last Edit: Mar 17th, 2007, 12:16pm by Lobster » |
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Lobster
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Re: Me and my RC (seeds)
« Reply #6 on: Mar 17th, 2007, 12:01pm » |
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On a side note... I cannot say for sure if the heat did anything. Perhaps I just hit upon some markedly different batch from the prior ones.
Up until now I still wondered if the seeds were a placebo, even after the repeated suppression of episodes... the banishing of shadows.
I mean... with the other alternatives treatments, there is no doubt that the dose is 'tweaking' your skull, as one goes through the minor 'trip'.
With RC's the lack of any effect always made me wonder.
That is far less so now.
You are the person who stumbled upon these, Bob? To say that I am in your debt is a considerable understatement. Countless thanks.
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| « Last Edit: Mar 17th, 2007, 12:04pm by Lobster » |
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chrisw
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Re: Me and my RC (seeds)
« Reply #7 on: Mar 18th, 2007, 10:14pm » |
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I have ordered my seeds and they should be here any day now. i have never tried them before but i am ready to try anything, because my ha's which usually last two months are now going into seven months with no end in sight. my question to you guys is, did you do the detox first, because i am on verapimil,480mg, and I was wondereing if I could try the seeds before I am completely off of the verap. i dont want to wait the 10 days or so it will take to wean off them and then the five days or so afterward to clean out my system.
thanx,
chrisw
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Lobster
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Re: Me and my RC (seeds)
« Reply #8 on: Mar 19th, 2007, 2:14am » |
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To be honest, back when I was last in cycle I did not do any of the 'detox' steps. Some swear by them, but I largely ignore them.
I was on Topa back then and used a different alternative with good effect without detoxing.
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chrisw
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Re: Me and my RC (seeds)
« Reply #9 on: Mar 19th, 2007, 9:44am » |
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thanx lobster,
i will at least give it a try. if it doesnt work, i will try again with the detox. at least now i have some hope
chrisw
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MJ
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Re: Me and my RC (seeds)
« Reply #10 on: Mar 20th, 2007, 1:23am » |
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Cool news MikeE
I agree with Nani
Thanks BB
Lobster when I first started using the RC seeds I started the soaks in hot water. It cooled down pretty quickly but it did seem to hasten the process a bit and I also felt a little more effect than I do now when I use them.
My current batch of seeds create absolutely no feelings at 30 seeds but still do the trick. The power can change.
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MikeE
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Re: Me and my RC (seeds)
« Reply #11 on: Mar 20th, 2007, 11:25pm » |
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Hello all, Thanks for the input. Im still PF and with each day I believe more and more in this treatment. Let me say that in no way was I telling anyone to try large doses. I think 20-30 rc seeds or less is enough. I was dumb for doing 100 but I shared the truth for those out there that are scared to try 12. I broke a bad cycle in the past with shrooms but had to do enough to get a very slight buzz. I assumed seeds were the same and when I felt nothing at all I wondered if more would do better. Not so in this case. Is it possible that there is a treatment for CH that has no side effects? PFDAN to all Mike
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MikeE
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Re: Me and my RC (seeds)
« Reply #12 on: Mar 20th, 2007, 11:40pm » |
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Chris, I detoxed because It was recomended and I was sick of feeling druged. I was on 480 varapimil and lithimum. I would not worry too much about varapamil but I knew I needed to get off the lithimum because Lith and LSA or any mind altering substance is asking for a trip. Good luck Mike
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Sandy_C
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Re: Me and my RC (seeds)
« Reply #13 on: Mar 21st, 2007, 1:40pm » |
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Congrats, Mike! Glad to hear the seeds are helping you.
I started last summer with "maintenance" doses of 11-12 seeds once a month, while out of cycle, hoping to abort the cycle completely. Cycle began anyway, so immediately dosed with 30 seeds, soaked in water (not hot, just tap) for 2 hrs. Re-dosed every 5 days with 30 seeds.
My shortest ever cycle was 8 weeks, longest 16 weeks. This cycle was completely aborted in less than two weeks, with a total of about three hits, one K7, a couple of K3-K4 and a few shadows.
Made me a believer!
But, I also followed the Clusterbusters recommendations of complete detox before I started the seeds. This was really easy for me because I was out of cycle when I began the maintenance program, so wasn't on much of anything. Trying to detox in the midst of a cycle, I would think, should be pretty rough.
For what it's worth, I agree with Nani. 100 seeds is way more than is needed to bust CH. Less IS more.
Sandy
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MikeE
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Re: Me and my RC (seeds)
« Reply #14 on: Mar 27th, 2007, 6:59pm » |
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Hello all Just an update. Still pain free into week 8 of treatment. Skiped regular Friday dose to see if I could go longer between doses. So far so good with no signs of ch. My plan is to see how long I can go but at the first sign of ch activity I am dosing 30 seeds. I am loving this. Almost forgot how life was before CH. For anyone thinking of trying this treatment be advised I think I got some very weak seeds from what I have read from others. DO NOT start with or do as many seeds as I did or am doing untill you know how they will effect you. I dont think my increasing doses did any better than if I had of done 30 each time. PF to all, Mike
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chrisw
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Re: Me and my RC (seeds)
« Reply #15 on: Mar 27th, 2007, 9:45pm » |
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mike,
thanx for all your info. i have two more days until im med free, then detox, then i can try the seeds again. i already took two doses, and i dont know if they heleped or not. still getting hit about 4 times a night, but i have hardly any shadows anymore, and i feel better in general. i think tom i will do a small dose because i dont want my good mood to go away. its amazing how much better you feel without that constant burning reminder all day long.
chrisw
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MikeE
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Re: Me and my RC (seeds)
« Reply #16 on: Mar 28th, 2007, 10:25pm » |
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I hear ya Chris, Sounds like I was. 4 hits every night and shadows all day. Lived on stress and red bull. Relax and BAM. I got rained out of work today,came home and took a nap. Playing with fire on the midday nap but didn't get burned. Good Luck, Mike
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nani
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Re: Me and my RC (seeds)
« Reply #17 on: Mar 28th, 2007, 10:31pm » |
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I'm happy to see your continued success, Mike. I agree that you should consider re-dosing should activity resume.
Chris, good luck with the detox and the next dose. The thing about these alternative treatments is that there is no "magic bullet". Each of us has to undergo our own, personal clinical trials to find what works. The best thing we do is share our progress with each other, giving other folks points of reference. Keep us updated, both of you.
pf wishes, nani
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MikeE
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Re: Me and my RC (seeds)
« Reply #18 on: Mar 28th, 2007, 11:13pm » |
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Hi Nani, Dang right I'LL redose at the first sign. Friday will be 9 weeks pain free. I have not had 9 PF weeks in a row for almost 2 years. Thanks for your support, Mike
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chrisw
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Re: Me and my RC (seeds)
« Reply #19 on: Mar 29th, 2007, 7:30am » |
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hi all,
well, I am down to only one dose a day of ch meds, so last night i took a dose of 15 seeds soaked in a teas of wine(scaryI know). What a horrible night!!! Maybe its because things have to get worse before they get better. I had 6 hard hits llast night, and if I thought my meds werent working before, now I know they were at lleast helping with the pain levels.
Anyway, now that I think about it the rc seeds may not work for me after all, because I have to take trileptal every day because I have epilepsy (due to two brain tumors, and removals). Trileptal is an anti seizure med. so if anyone has tried seeds while on such a med (some ch meds, such as depakote etc., are anti seizure) let me know if you have had any success.
If I am barking up the wrong tree with the seeds, I need to know because it was soooo hard not to take a trex injection last night. I cant believe I didnt give in to the pain. This detox is hardere than I thought it was going to be!!! Please excuse my poor typinng skills, my hands are shaky from so much caffiene.
thanks all,
chrisw
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BikerBob
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Re: Me and my RC (seeds)
« Reply #20 on: Mar 29th, 2007, 6:46pm » |
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Chris,
Sorry to hear that you have both CH and epilepsy. You may have to rule out LSA as a CH treatment because you have to take an anticonvulsant to prevent the seizures. I know of no anticonvulsants that won't interfere with LSA.
Trileptal prevents the seizures but I've never heard of it being prescribed for CH. It doesn't seem to be helping with your CH. Topamax is another type of anticonvulsant that is commonly used as a treatment for epilepsy and CH.
I never thought I would see the day that I suggested Topamax, but for people with both CH and epilepsy it might be the best way to go. Ask your neurologist.
BB
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chrisw
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Re: Me and my RC (seeds)
« Reply #21 on: Mar 29th, 2007, 9:55pm » |
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bob,
thanx for your advice. I take trileptal on a daily basis for years just for seizures. my ha doc put me on depakote recently for ch. why did you say you cant believe you would recommend topamax? i tried it a few yrs ago for ch, but it did no good, but then again there are some meds that work sometimes and then stop, and vice versa. is there some sort of problem with topamax?side effects, etc? I am still going to givei t a try with the seeds, I have come this far,, so why not give it a try. maybe i will get lucky, or maybe after detoxing for a while, if i go back on verap. it will pack a bigger punch and work good for me like it used to.
thanx, and pf wiishes to everyone
chrisw
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CHvsTN
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Re: Me and my RC (seeds)
« Reply #22 on: Apr 13th, 2007, 9:09am » |
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Just thought I'd chime in with my RC experiences.
I started in spring 2006 with small doses. The 1st time I took 6, got a whopper hit while I was wondering if the seeds would do anything. Next day had another high kip.
No more high kips since then! I still get shadows every day - but that's nothing in comparison.
My next dose, a week later, I took 9, then 12, 18, and 24 - each a week apart.
I didn't take any more for a few months until I felt that another cycle was revving up - I took 18 and the cycle didn't happen.
I take a small dose (less than 30) every 3 months and I can't remember ever feeling this good. I think the secret for me is to not take the seeds as a knee-jerk reaction to the first sign of pain, but rather take them at regular intervals of 3 months - whether in pain or not.
I can't thank all of you heroes and heroines who put me on to this treatment enough - to me, it's a pain-free oasis.
I hope everyone has as much success with RC as I am having.
RT
PS - I would gladly have contributed to the medical survey only I didn't appreciate getting a fax, headed something like "DRUG AND ALCOHOL CLINIC" (in about 2ft high letters), sent to my work. Guess who was next for the "random" drug test!
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tommyD
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Re: Me and my RC (seeds)
« Reply #23 on: Apr 14th, 2007, 6:26am » |
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Quote:| I take a small dose (less than 30) every 3 months and I can't remember ever feeling this good. I think the secret for me is to not take the seeds as a knee-jerk reaction to the first sign of pain, but rather take them at regular intervals of 3 months - whether in pain or not. |
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RT -
You might have something there. For some perverse reason, I always waited for the beast to show, then reacted with shrooms or seeds. I always prevailed, but started to wonder if it would be easier to get out in front of things.
My cycles aren’t all that predictable (I suspect the clusterbuster treatment makes them less predictable) so it was hard to decide when to dose. So it makes sense to try a regular schedule. And if the beast comes back anyway, hit it hard then.
-tommyD
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Chillrmn1
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Re: Me and my RC (seeds)
« Reply #24 on: Apr 14th, 2007, 7:45am » |
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on Apr 13th, 2007, 9:09am, CHvsTN wrote:I take a small dose (less than 30) every 3 months and I can't remember ever feeling this good. I think the secret for me is to not take the seeds as a knee-jerk reaction to the first sign of pain, but rather take them at regular intervals of 3 months - whether in pain or not.
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I practice the same preventative strategy with CB treatment as RT, but on a monthly interval. We're all different but this so far has been working well for me.
Prior to using the CB treatment my periods between cycles ranged from 12 - 14 months. It's now been 23 months PF since my last cycle while using CB treatment. So at this time I'm giving credit to the preventative maintenance dosing as the reason for my extended remission period.
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