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Topic: Works for me, sort of... (Read 401 times) |
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AL1
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Works for me, sort of...
« on: Mar 6th, 2007, 9:57am » |
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Hello All,
I have been having CHs for about 5 years now, they roll around once a year, sometimes twice for about a month. I don't need to tell people here how bad they are. I was diagnosed by a very good neurologist and he prescribed a medication to me called L-Tryptophan, and I must say that it has been helping me a whole lot. My CHs have not disappeared completely (I don't think they ever will) but the medicine reduced the intensity from a 10 - actually banged my head on the headboard so hard it cracked (the headboard  ) to a 4 at most, but often just shadows lingering. I just felt compelled to let people here know about this medication. Something that you may want to discuss with your doc.
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jmc
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Re: Works for me, sort of...
« Reply #1 on: Mar 6th, 2007, 10:34am » |
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Hello Al1, glad you've had success with this treatment!!!
Isn't L-Tryptophan a sleep aid supplement? OTC?
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George_J
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Re: Works for me, sort of...
« Reply #2 on: Mar 6th, 2007, 10:34am » |
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Interesting. It's an indole-ring compound with relationships to melatonin and serotonin.
Was available as an OTC dietary supplement and sleep aid for a time, present naturally in mammalian proteins.
See the FDA caution regarding its importation as a dietary supplement without prescription:
http://vm.cfsan.fda.gov/~dms/ds-tryp1.html
It appears that most of the potential danger is associated with the manufacturing process.
I've not heard of it being prescribed for CH. Anyone else?
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Lobster
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Re: Works for me, sort of...
« Reply #3 on: Mar 6th, 2007, 1:36pm » |
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on Mar 6th, 2007, 9:57am, AL1 wrote:| ...actually banged my head on the headboard so hard it cracked (the headboard )... |
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Post a pic please.
Not cuz I do not believe you, but because pics like that tell the story... it would be uber cool.
I have a pic here somewhere I took right after a hit.
During the hit I pressed my skull HARD against a the corner edge of a door jamb. The pic is of my skull... a 4-inch long line of inflamed ugliness.
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Rock beats Scissors.
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LeeS
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Re: Works for me, sort of...
« Reply #4 on: Mar 6th, 2007, 1:48pm » |
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Flo covered this a while back:
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Tryptophan
I had a go with 5-HTP last year, and although at the time it seemed to make things worse for me (other contraindications possibly), I have not yet disregarded its potential, and may well throw it back into the mix at some stage:
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=5-HTP
All the best with it AL1
-Lee
Edited to add, in case it's missed: Those taking triptans, anti-depressants (tricylics, SSRIs, MAOIs) or lithium or other drugs with serotonergic activities should not take 5-HTP. There is concern that the combination could result in serotonin syndrome, which is potentially life threatening.
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| « Last Edit: Mar 6th, 2007, 1:53pm by LeeS » |
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AL1
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Re: Works for me, sort of...
« Reply #5 on: Mar 7th, 2007, 12:28am » |
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Hi Guys/Girls,
To answer some of the questions: Yes I do believe that particular medicine is used as a sleep aid as well treatment for a host of other disorders. I am not at all qualified to talk about the prescribed uses though since I am a not a doc. However from what my GP told me is that it acts as a balancing agent for certain neuro-chemicals such as seratonin. I am also trying a nasal spray right now - Sinus Buster, will see how it goes.
P.S. Sorry Lobster no pics, I've since moved and replaced the bed, but I am sure there will be other things broken if I cant get these damned headaches under control. 
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sandie99
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Re: Works for me, sort of...
« Reply #6 on: Mar 8th, 2007, 4:37am » |
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AL1,
it's great to hear that you've found something which helps you with your ch.  I wish you a PF future!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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