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Randall_Swain
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Can interrupting your sleep work?
« on: Nov 25th, 2006, 9:29pm » |
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Hello All
Last night I had two attacks - one 90 minutes after going to bed, and the next 90 minutes after going to bed following the first attack. Speaking to a few people around here, 90 minutes into sleep seems to be the key.
My beautiful wife unfortunately had to witness my 10+ last night (second attack - first was about an 8 or 9) and I was in absolute stark raving mad agony... She was there for me and it was wonderful that she was - although I hate that I woke her and she had to see that.... Me a blubbering, weeping, spasming 38 year old!
Anyhow, we have discussed how it seems to be that I am on a strict 90 minute profile for attacks - if I try to stay awake longer, 90 minutes after I eventually go to sleep I end up with an attack - regular as clockwork.
So Mel came up with an idea. We have learnt that my attacks come as I hit REM sleep - after 90 minutes. She suggested (and at this point I was eager to try anything whatsoever!) that I set my alarm for an hour - then wake up and set it for another hour. I have a countdown timer on my phone, so I set that for 60 minutes. Collapsed on the bed following attack no 2 (a true "suicide" headache if ever I'd had one) and fell straight to sleep.
60 minutes later, my alarm went off. I awoke, reset it and fell straight back to sleep.
60 minutes later, it went off again (now about 5am) set it once more (I think...) and at 6am I woke, not having had another attack.
I have a shadow (and have had all day - now 1pm) but I can shadow-box all day... Just can't dance with the devil....
I am not sure if it is coincidental or not, but I am going to try again tonight. After all - disjointed sleep is so much better than screaming to oneself for an hour...
Has anyone else tried this? Had any success? I can't believe that I am the first to try - so please let me know how you go, and I will keep you updated to see whether this works!
Cheers!
Randall
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Thank you to my beautiful wife Mel - for putting up with me and supporting me!
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UN solved
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Re: Can interrupting your sleep work?
« Reply #1 on: Nov 25th, 2006, 9:35pm » |
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This would be extremely hard to do. You're talking about preventing REM sleep with an alarm clock ? I would think it maybe possible for awhile... but not for long term. Your body's still going to fall into REM sooner or later. Some claim that some drugs prevent REM ( like Melatonin) ... but they never prevented my cluster attacks.
Goodluck with it & let us know how you do
UNsolved
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Randall_Swain
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Re: Can interrupting your sleep work?
« Reply #2 on: Nov 26th, 2006, 12:59pm » |
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Unfortunately UN Solved was right - it didn't work
When I fell asleep tonight, I set the timer for 1hr 15. I awoke when it went off, and reset it for another 1.15. Ten minutes later the attack snuck in - so pretty much on time, although I don't know if it was during REM sleep or if the devil was just being a prick... It was only about a 7 so that was one small nicety. We danced for about an hour and fell back to sleep - setting the timer for another 1.15. This time is didn't wait, and hit after1.10 - with 5 minutes left on the timer. It hit 8 on the scale and am just recovering now - the nice dull ache one gets after a hit, which seems somehow pleasant...
So no magic bullet here I am afraid... Will keep searching!
Take care out there...
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Thank you to my beautiful wife Mel - for putting up with me and supporting me!
And remember to thank your supporter too!
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kcopelin
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good grief
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Re: Can interrupting your sleep work?
« Reply #3 on: Nov 26th, 2006, 1:15pm » |
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Randall,
There definitely is a connection between REM sleep and night-time hits. Unfortunately, Unsolved is right. Your body will only function so long without REM sleep. I'm sorry that melatonin didn't work for you Unsolved-it has helped me but I still wake up every 45 minutes to hour after I fall asleep. I have symptoms of a hit-congestion, teary red eye and cluster knot on my neck-but no pain. It is very odd.
PFDAN y'all,
kathy
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andrewjb
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Re: Can interrupting your sleep work?
« Reply #4 on: Nov 26th, 2006, 7:37pm » |
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 . thanks for posting randall, was going to try this tactic at the next dance..........................will keep searching. andrew.
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floridian
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Re: Can interrupting your sleep work?
« Reply #5 on: Nov 26th, 2006, 8:12pm » |
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REM deprivation is a great way to torture someone - they start losing their marbles pretty quick. And after a period of sleep deprivation, a person slips into REM almost as soon as they fall asleep.
IMO, If you are episodic, you are better off trying to re-establish regular circadian cycles. Melatonin helps me to do that - as soon as I feel like I am slipping into a CH cycle, I start hitting the melatonin at the same time everynight.
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E-Double
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Re: Can interrupting your sleep work?
« Reply #6 on: Nov 26th, 2006, 8:26pm » |
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..........and make sure that you stick to a regular sleep schedule!!!
It didn't seem to make a difference once I went chronic but it certainly helped with the melatonin establishing a good pattern and decreasing nocturnal attacks.
The more you disrupt your sleep the harder you will get slammed once you start crashing.
Good luck
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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AussieBrian
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Re: Can interrupting your sleep work?
« Reply #7 on: Nov 26th, 2006, 8:35pm » |
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Been doing the same thing for years, setting the alarm for an hour and a quarter, but the absolute max is twice in one night and just living with consequences after that.
Any more than that is mind-bending.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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andrewjb
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Re: Can interrupting your sleep work?
« Reply #8 on: Nov 26th, 2006, 8:39pm » |
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. yet again, thanks for being here. andrew.
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neetnut
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Re: Can interrupting your sleep work?
« Reply #9 on: Nov 26th, 2006, 8:59pm » |
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Interrupting my sleep at least once or twice will surely bring on an attack. Once they start, they usually last a day or two. When I get back on track with sleep they start to taper off. Seems like Holidays are the worst with the traveling and all, sleep gets messed up.
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stargirl50
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Re: Can interrupting your sleep work?
« Reply #10 on: Nov 30th, 2006, 7:18pm » |
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For me, interrupting sleep is a sure way to bring ON an attack. sticking to a regular sleep schedule once i start my med regimen (among other things) is one of the best ways to end a cycle.
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vig
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Re: Can interrupting your sleep work?
« Reply #11 on: Nov 30th, 2006, 9:30pm » |
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actually, I got pretty good at waking up after an hour, getting up and walking around for a few and going back to bed and trying another hour.
and sleeping sitting up!
both are difficult, and I think it helped, but really, how long can you keep that up? not very long!
In the end, I found a better answer at www.clusterbusters.com.
try the seeds first
my 2 cents
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| « Last Edit: Nov 30th, 2006, 9:31pm by vig » |
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