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Topic: stimulator surgery (Read 663 times) |
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fjb
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I love YaBB 1G - SP1!
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stimulator surgery
« on: Oct 17th, 2006, 12:32pm » |
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Has anybody had either of the stimulator surgeries? If so has it helped?
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unsolved1
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I had a bi-lateral Occipital nerve stimulator implanted by MHNI in March of 04'.
Painful, uncomfortable, weird, ....and didn't help at all. Had it removed quickly. 
UNsolved
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pubgirl
New Board Old Timer
The next person who calls it a migraine eats teeth
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Re: stimulator surgery
« Reply #2 on: Oct 24th, 2006, 8:36pm » |
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I think to date 8 ONSI's have now been done in the UK for CH, not a one of the 8 is pain free but some improvement achieved for some. No improvement at all for others.
We still await official results and papers but even when we get them, 8 isn't a decent number to base a valid assessment on.
Our NHS system won't pay for it for most people as it is still experimental surgery, hence the very small numbers
I don't think the DBS is being done by anyone here for CH- considered too dangerous
Wendy
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zuesthedog
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dont give up dont give in
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Re: stimulator surgery
« Reply #3 on: Oct 29th, 2006, 2:32pm » |
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I have had the occ. stim. with some sucess back in 03. It migrated and poke out of the back of my head. They removed it dec 05. In feb 06 I had a stim placed on th tri. nerve I have been PF ever since. The best decission I ever made. will give all details if interested. if you have any speciffic ques just let me know pf days john
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zues
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