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pike
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simple tricks and tips to endure
« on: Oct 2nd, 2006, 6:32pm » |
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Hi Clusterheads
Very happy I found this site ! I hardly dare to say this here but I'm *not* a chronic with 5 KIP11 attacks every day. I feel very sorry for most of you. But there must be more people like me around, who have long PF periods, short cycles and attacks of appr. KIP 6 to 8. And I imagine us "softies" get diagnosed wrong more often... but as you may understand even a KIP8 is hard to explain to people ..
I've been eating antibiotics for 15 years  During that time, I developed dosens of simple tricks and tips that make me endure an attack. In this forum here I read all about brain surgery and heavy medication, but very little about the practical things that keep you going during an attack. Cold showers, wet towels, black coffee, that kind of thing.
Now that I know what this beast is most of my tricks even make medical sense. This is all so comforting! But some things I do still seem like superstition, and are not noted on owl-med et al. Wouldn't it be helpfull to make a list ? As a community effort ?
I'll be adding if someone's interested...
*-pike
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BigCoffinHunter
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Re: simple tricks and tips to endure
« Reply #1 on: Oct 2nd, 2006, 6:39pm » |
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Glad you found us, sorry you have to deal with the beast. I'm curious as to what you are taking so many antibiotics for?
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Karla
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Re: simple tricks and tips to endure
« Reply #2 on: Oct 2nd, 2006, 6:59pm » |
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check out http://www.clusterbusters.com/
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| « Last Edit: Oct 2nd, 2006, 7:01pm by Karla » |
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Karla
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pike
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Re: simple tricks and tips to endure
« Reply #3 on: Oct 2nd, 2006, 7:28pm » |
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thanks, karla. i said "tip and tricks", not "trips and ticks" very good site though. and yes may try. there's a good tea recipe on this site.
in fact, one of my friends in need is Damiana. but I'm curious if that is superstition or science. it works for me - a bit. note Damiana is legal, even in the states. you can tea it or smoke it. http://www.erowid.org/herbs/damiana/
more tips and tricks ?
*-pike
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BB
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Re: simple tricks and tips to endure
« Reply #4 on: Oct 2nd, 2006, 8:12pm » |
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Hello Pike,
I am happy to hear that you have only short cycle, long remission and low kip hits! Great ! Enjoy ! and I pray that it will stay like that or get better for you.
BTW, interesting plant , Damiana. Its not recommended for headaches though. How did you find out about it? and exactly how do you use it and what types of effects/side effects that you have personally experienced with it please?
Thanks for the info.
Take care and pf wishes to you.
Annette
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pike
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Re: simple tricks and tips to endure
« Reply #5 on: Oct 2nd, 2006, 11:10pm » |
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Hello Anette
thanks for the kudos .. congratiulate me another time tho .. ouch
I sometimes drink damiana as tea, or mix it in tea, for relaxation, which is how I found it. During an attack, I smoke it. No patience to make tea. I have a huge bag of pure damiana leaves here, very cheap. Don't buy it in a smart shop, that's heavily expensive and probably not pure.
The taste is ok and its slightly relaxing. It also changes the quality of my sleep (and dream). Some people claim it has no effect at all but I can clearly sense it, so maybe you have to have -or develop- a sensitivity.
Looking in my logs, a lot of my lesser attacks end with the word 'damiana'. not that they end the attack, but I take it at the end of an attack and it soothens.
so .. science or superstition ?
maybe the relaxing part has a positive effect on the pain; it takes off the agitation. but it also has some vascular effect -which is why it's classified as afrodisiac- which may have something to do with it. BTW, I never noticed anything erotic about it.
sideeffects .. when testing it as a preventive, I drank damiana tea continuously. after a few days, I could feel my liver and stopped. I assume if you feel your liver you're *way* too far so that's a warning for all you expirimentals out there.
*-pike
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| « Last Edit: Oct 3rd, 2006, 5:52am by pike » |
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pike
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Re: simple tricks and tips to endure
« Reply #6 on: Oct 2nd, 2006, 11:22pm » |
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other tips ? simple ones please. I'll do one:
rub tigerbalm in your neck, at the side of the attack
use the heaviest balm you can find. and if you come across flying white peacock balm, send me a cradle
so .. superstition or science ?
it may do something to the blood distribution to your head. it also opens your nose on that side, allowing for more oxygen. on the other hand some of these solubles (hydrocarbons?) might act as a trigger, says wikipedia. maybe you shouldn't just use any tigerbalm, but only the ones with good ingredients.
plus if you climb into bed like that, it reminds you of being a little kid, and you fall asleep with the idea of your mum being around the corner
*-pike
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kcopelin
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Re: simple tricks and tips to endure
« Reply #7 on: Oct 3rd, 2006, 8:19am » |
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1. A bag of frozen peas. That's simple enough. Problem: they get mushy after awhile then refreeze into one solid mass that is not helpful at all.
2. Prayer.
Not necessarily in that order.
PFDAN
kathy
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Margi
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Re: simple tricks and tips to endure
« Reply #8 on: Oct 3rd, 2006, 9:51am » |
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Here:
http://www.ouch-us.org/chgeneral/nonmed.htm
There's lots of useful information contained in the buttons to the left.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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clusternewbe
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Re: simple tricks and tips to endure
« Reply #9 on: Oct 3rd, 2006, 10:08am » |
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Pike,
I had been PF for exactly a year in August and I have only had one cycle in 2005. It only lasted 2 weeks and I experienced kip9 and 10'ds the entire time, now I'm having shadows and i'm not exactly sure if i'm in cycle because it seems like when i do have pain it's not like before, maybe a kip 2 or 3. I know theres different level of pain but I'm still new at this. So like you I have episodes and experience long periods of PF time. From what I've been reading we're lucky and I'm trying to love every moment of it. Good luck with your clusters and thanks for the post. I will find it helpful.
Ash
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BB
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Re: simple tricks and tips to endure
« Reply #10 on: Oct 3rd, 2006, 10:26am » |
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on Oct 2nd, 2006, 11:10pm, pike wrote:Hello Anette
sideeffects .. when testing it as a preventive, I drank damiana tea continuously. after a few days, I could feel my liver and stopped. I assume if you feel your liver you're *way* too far so that's a warning for all you expirimentals out there.
*-pike |
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Hi Pike,
Sorry but you got me all curious again  , what do you mean by " feel the liver " ? How do you feel your liver and what does it feel like to you when you appears to have overdosed with the herbal tea ?
Was there any warning of possible overdose on the products ?
Bit concerned about the safety profile of this interesting plant , I must admit.
Thank again for the info. Hope you dont mind me asking.
Annette
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wildhaus
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Re: simple tricks and tips to endure
« Reply #11 on: Oct 3rd, 2006, 2:16pm » |
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Hi Pike
I don’t know you and don’t know who you are…… I am very sorry you have to join us,
But as a fellow newbie…… I would slow a bit…..
We had a lot of “New comers” with (let me put it in a nice way) questionable ways or ideas
I don’t know what is this thing you are promoting……Damiana….….. I would if I were you first look around and learn and gain from the vast amount of knowledge on this web site……
and only after realizing and understanding what was accumulated with time and pain I would hint that there might be something new!
But to run and tell us you have the cure….. you must be joking…….
Like I said I don’t know you, and I hope your intentions are genuine…..
but if not…. damn your damania……
Michael
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MJ
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Re: simple tricks and tips to endure
« Reply #12 on: Oct 3rd, 2006, 10:13pm » |
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Quoted from Springboard, Nutrition notebook.
"Damiana
(Turnera Diffusa)
"Description
Damiana grows wild and is cultivated around the Gulf of Mexico, and in some South American countries. Damiana is heavily branched and reaches six and half feet in height. The stems are smooth, straight, and yellow or reddish-brown in color. Small, obovate leaves grow in clusters alternately along the stem; the upper surface of which are olive green with undersurfaces lightly covered with whitish hairs. The leaves have toothed margins, and small flowers grow in the upper leaf axils. The fruits are small capsules, slightly curved, with rough skin. The medicinal part is the leaves.
CHEMICAL COMPOSITION
Arbutin Cyanogenic Acid Glycosides
Gonzalitosin-I Hexacosanol-I Hydrocyanic Acid
Resins Sitosterol Tannic Acid
Thymol Triacontane Volatile Oils
* For definition of some of the above terms see the dictionary section of this book.
NUTRIENT COMPOSITION
Chloride Copper Potassium
Sodium Sulfur
PROPERTIES AND USES
Aphrodisiac - any substance which arouses the sexual instinct.
Diuretic - Diuretics form a class of drugs which increase the volume of urine produced by the kidneys. It can be used effectively to treat mild cases of edema when kidney function is good and when the underlying abnormality of cardiac function, capillary pressure, or salt retention is being corrected simultaneously. Diuretics are not an appropriate treatment for edema caused by inflammation of the kidneys, and are useless in cardiac edema associated with advanced kidney insufficiency.
Emmenagogue - an agent which stimulate menstrual flow.
Laxative - an agent which acts to loosen the bowels; it is therefore used to treat constipation. Laxatives may act by increasing peristalsis by irritating the intestinal mucosa, lubricating the intestinal walls, softening the bowel contents by increasing the amount of water in the intestines, and increasing the bulk of the bowel content.
Stimulant - an agent that temporarily increases activity or physiological processes. Stimulants may be classified according to the organ upon which they act; for example, an intestinal stimulant is that which stimulates the intestines.
Tonic - an agent which strengthens or tones.
Damiana has stimulating properties and has been used for nervousness, weakness, and exhaustion. It has been recommended for increasing the sperm count in the male, strengthening the ovum in the female, and helping to balance hormones in women.
Damiana is especially beneficial for revitalizing the system, and has been used as a mild tonic laxative for children. It has been said to one of the most popular and safest of plants claimed to restore the natural sexual capacities and functions.
It was first used by the Mayans of Yucatan. They called it "mizib-coc," which means "plant for asthma." It was used for all pulmonary disorders, dizziness, vertigo, and as a general body cleanser.
The active constituents in damiana are: 0.5 - 1.0% volatile oil from which thymol, a-copaene, o-cadinene, and calamene have been isolated; a brown amorphous substance; damianin; resins; and gum.
TOXICITY FACTORS
Damiana is low in toxicity factors, but because of irritant action on the genitourinary tract, it may aggravate preexisting urinary tract diseases. Caution needs to be taken in such cases. In the West Indies the tea is taken to discharge the placenta after childbirth. Therefore, it may be wise to restrict its use during pregnancy.
DRUG PRECAUTIONS AND INTERACTIONS
Known Interactions: None
Possible Interactions: None
Comments: In the absence of other hard data, it may still be assumed that observable interactions may occur between the many central nervous system drugs and the psychoactive principles in Damiana."
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MJ
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MJ
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Re: simple tricks and tips to endure
« Reply #13 on: Oct 3rd, 2006, 10:28pm » |
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Damiani an even better site.
http://www.rain-tree.com/damiana.htm
Apparently the Damiani plant is used around the world for many different disorders, including nerve disorders and Headaches.
Interesting plant Pike
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MJ
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BB
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Re: simple tricks and tips to endure
« Reply #14 on: Oct 4th, 2006, 1:38am » |
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There are contraindications to the use of this plant in some people, for eg pregnant or breast feeding women and people with diabetes.
It may interact with some medications.
http://www.drugs.com/mtm/damiana.html
Interesting plant with great potential, needs more studies and researches done to ascertain its effects and side effects though.
Annette
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Charlotte
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Re: simple tricks and tips to endure
« Reply #15 on: Oct 4th, 2006, 9:47am » |
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A few years ago I used a blend of herbs that contained this, during menopause, and it did help with hot flashes, but not the cold sweats. I don't recall any headache relief from that blend, though.
Charlotte
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| « Last Edit: Oct 4th, 2006, 9:48am by Charlotte » |
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pike
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Re: simple tricks and tips to endure
« Reply #16 on: Oct 4th, 2006, 3:15pm » |
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Hi Guys
pfew, lot of posts here about a single comment I made. Let me make 1 thing clear: I *know* from experience Damiana will *not* stop an attack. So much for promotion
on Oct 3rd, 2006, 2:16pm, wildhaus wrote:
We had a lot of “New comers” with (let me put it in a nice way) questionable ways or ideas
I don’t know what is this thing you are promoting……Damiana….…..
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ho,ho, not promoting anything here.
on Oct 3rd, 2006, 2:16pm, wildhaus wrote:
I would if I were you first look around and learn and gain from the vast amount of knowledge on this web site…… |
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I have, and I'm happy I found it. but as I said I see too much heavy medications around and I'd like more simple tips. Tell me, wildhaus .. what do you *do* to bear the pain ? I really want to know. That's what I hoped this thread would be about. The frozen bag of beans sounds really good, thanks !
Quote:
i didnt deserve that ! please ... 
*-pike
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Charlotte
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Re: simple tricks and tips to endure
« Reply #17 on: Oct 4th, 2006, 3:47pm » |
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I apologize, Pike. We tend to be protective. You're right, it was just a comment. Let's start over.
Welcome aboard.
Check out the tips to the left.
Charlotte
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| « Last Edit: Oct 4th, 2006, 3:50pm by Charlotte » |
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pike
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Re: simple tricks and tips to endure
« Reply #18 on: Oct 4th, 2006, 5:12pm » |
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on Oct 4th, 2006, 3:47pm, Charlotte wrote:
Welcome aboard.
Check out the tips to the left.
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Thanks Charlotte.
I had. ofcourse. Hey, I took the medication survey to my doctor I found red bull on this forum and noticing it worked *instantly* - only the first time btw - decided to do the taurine, melatonin tour. And it has .. effect. My clock is all over the place now But it least I have a handle and I owe it to this site.
During years of ignorance, I found so many things to relieve myself .. I was wondering what other people had found. Ofcourse, they found meds. But apparently, they don't work 100% for everyone. So you still need relief. What do you do ?
Headbanging is an option, but it's a victim-attitude, not a fighter-attitude, its an expression of helpless frustration. You need to endure the pain, not indulge in it. So ..anybody using a boxing ball ? What do you do ?
*-pike
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Margi
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Re: simple tricks and tips to endure
« Reply #19 on: Oct 4th, 2006, 5:13pm » |
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Pike - did you read the link I posted above? There are lots of tips in there.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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pike
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Re: simple tricks and tips to endure
« Reply #20 on: Oct 4th, 2006, 5:17pm » |
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on Oct 3rd, 2006, 9:51am, Margi wrote:
Great link ! Exactly what I was looking for. Blue cheese and vinegar ?? Grape juice and ginger ale ??? Great Dont use Grape Juice with Verapimil, though.
More tips ?
I'll do one. Chew. Not chewing gum, thats too soft. An apple will do fine, for 5 minutes. Better chew on wood (like a stick of Liquorice) or even a piece of cloth. Dutch people can chew on DROP. Chewing just relieves the frustration, I guess...
*-pike
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Margi
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Re: simple tricks and tips to endure
« Reply #21 on: Oct 4th, 2006, 5:18pm » |
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no, that's grapeFRUIT juice that interacts with verapamil. Grape juice is completely different.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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pike
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Re: simple tricks and tips to endure
« Reply #22 on: Oct 4th, 2006, 5:26pm » |
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on Oct 4th, 2006, 5:18pm, Margi wrote:no, that's grapeFRUIT juice that interacts with verapamil. Grape juice is completely different.
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oops, sorry. not a native speaker ( so what *is* grape juice ? oh, never mind, found it, .. ofcourse )
*-pike
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Jonny
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Re: simple tricks and tips to endure
« Reply #23 on: Oct 4th, 2006, 6:28pm » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Karla
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Re: simple tricks and tips to endure
« Reply #24 on: Oct 4th, 2006, 8:42pm » |
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Thanks BB for that info on Damiana. I have drug interaction according to that link you provided. I wont be trying that stuff any time soon.
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Karla
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