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   Author  Topic: Topomax (Think thats what its called)  (Read 323 times)
prcole18
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Topomax (Think thats what its called)
« on: Sep 26th, 2006, 11:38am »
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Hi people, seeing my neuro next Tuesday & my GP said yesterday he has been having a lot of succes with Topomax, So I may ask him to put me on this.
 
Currently on 480mg Verap & the bloody things are still hitting me. Doctor wont up the Verap until I see my neauro next week.  
 
So, this is a preventive I take it?
 
Also has anyone had any success with this??
 
 
Paul
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Richr8
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Re: Topomax (Think thats what its called)
« Reply #1 on: Sep 26th, 2006, 12:16pm »
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Hi Paul,
 
The Topamax did not work for me, but I know that others here have had some success.  Actually, I probably did not give it a fair chance because it made me almost comatose at what would be considered low levels.  
 
Certainly worth a try.
 
 
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« Last Edit: Sep 26th, 2006, 12:17pm by Richr8 » IP Logged

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prcole18
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Re: Topomax (Think thats what its called)
« Reply #2 on: Sep 26th, 2006, 12:22pm »
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Cheers, just read the other post below on this, so apologies for putting this up, didn't see the other one.
 
Reading the other post, some of the side effects sound quite horriffic, good god!  Shocked
« Last Edit: Sep 26th, 2006, 12:23pm by prcole18 » IP Logged
LeLimey
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Re: Topomax (Think thats what its called)
« Reply #3 on: Sep 26th, 2006, 1:53pm »
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It has worked for a minority.. but for me it was the single worst experience of my entire life and believe me when I say I've had a few moments  Undecided
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prcole18
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Re: Topomax (Think thats what its called)
« Reply #4 on: Sep 26th, 2006, 1:59pm »
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Cheers people, fuck this, I think im just going to tell him to up my verap from 480mg to 720 & see if that works  Undecided
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LeLimey
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Re: Topomax (Think thats what its called)
« Reply #5 on: Sep 26th, 2006, 3:42pm »
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Good luck hon, we're all here if you need us. Bear in mind alot of people are up to 960mg on verap, its worth sticking with until you find your level
Helen
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Bond007
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Re: Topomax (Think thats what its called)
« Reply #6 on: Sep 26th, 2006, 6:30pm »
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I'm guessing you read my post about Topamax.  If not, look for it.  I've had a few people tell me about their bad sides and that it didn't work for them.  I'm still on it and going up to 300mg today, well it'll be tonight actually.  I haven't had too many bad sides so far, just problems thinking clearing.  That fades once I get used to the drug.  Unfortunately, I don't think it's helping me at with my CH.  It's also VERY expensive, at least in the States it is.  I don't know what it'll cost you in Great Britain.
 
Good luck Paul!
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Edski_1
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Re: Topomax (Think thats what its called)
« Reply #7 on: Sep 26th, 2006, 9:55pm »
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Bond, I *thought* I was adjusting to dopeymax while taking it - it was only an illusion.  I had trouble finding words like up or down...my motivations was killed.
 
The CH pain was killed, but I couldn't go on for several reasons.  But afterwards, after the fog lifted, I realized my wife was right and I wasn't the same person mentally.
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Bond007
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Re: Topomax (Think thats what its called)
« Reply #8 on: Sep 27th, 2006, 1:26pm »
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on Sep 26th, 2006, 9:55pm, Edski_1 wrote:
Bond, I *thought* I was adjusting to dopeymax while taking it - it was only an illusion.  I had trouble finding words like up or down...my motivations was killed.
 
The CH pain was killed, but I couldn't go on for several reasons.  But afterwards, after the fog lifted, I realized my wife was right and I wasn't the same person mentally.

 
HA!  I know what you mean.  Someone asked me where I lived a few days ago.  I actually had to THINK about where I could find my PDA and how to work it before I could try and FIND my GD address.  Even then, it took me a few more minutes to recall the name of my housing development....... UGH!!!
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Sometimes life bites you in the ass -- that's what drugs are for!!
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