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Topic: med plan seems to be working (Read 289 times) |
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Charlotte
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med plan seems to be working
« on: Sep 5th, 2006, 10:56pm » |
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There are so many heavy things on the board that I was hesitant to talk about my med plan, but I wanted people to know that something is working.
When I found the board in February 06, it was because I had started getting hit every 2 hours at an 8. I didn't think I could make it without help. People here said get a new doc, and I did on 2-25-06. Inderal & maxalt melt for 6 weeks, then 5 mg paxil & maxalt melt for a month, around May 6 - the liquid kudzu & maxalt melt, eventually tried & added red bull.
The new doc felt stumped by the every 2 hours thing & referred me to the neuro who thinks it is not ch or cph but has elements of both, & is not in any other category either. His goal was to get me off the maxalt. He prescribed an escalation of neurontin, 1 a day on the first week, 2 a day on 2nd week, etc, up to 9 a day. I'm on week 5.
On week 2, my pain tolerance went down as the pain eased a little. My doc prescribed 75 mg time released Indocin twice a day. It helped immediately - not pf but much improved. E-Dub believes this should be tried much earlier than this point.
The neurontin dulls me so much that I can't use more than 1 at a time so I have been spacing them throuigh the day.
Today, I felt really close to good. I may just be in a low cycle, or the meds may be working. I used only liquid kudzu & neurontin. No maxalt, no indocin, no red bull.
As far as I'm concerned, the neuro's goal has been met - no maxalt. I hate that the neuro answered my email of concerns basically with - continue the escalation, see you in 5 weeks.
It may only last a day, but I wanted to share that I had a good day.
Thanks for all the moral support.
Charlotte
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alchemy
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Re: med plan seems to be working
« Reply #1 on: Sep 5th, 2006, 10:59pm » |
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Great knews, hope the pain free time continues forever.
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lionsound
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Re: med plan seems to be working
« Reply #2 on: Sep 5th, 2006, 11:16pm » |
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YAY! a good day!
I love to hear about good days....feel free to have many more!! 
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nani
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Re: med plan seems to be working
« Reply #3 on: Sep 5th, 2006, 11:50pm » |
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Gotta love the good days...
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TxBasslady
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Re: med plan seems to be working
« Reply #4 on: Sep 5th, 2006, 11:51pm » |
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It's always good to hear when one has a good day.
Congrats....and I wish many more for you. 
Jean
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sandie99
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Re: med plan seems to be working
« Reply #5 on: Sep 6th, 2006, 4:31am » |
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on Sep 5th, 2006, 11:50pm, nani wrote:| Gotta love the good days... |
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Amen to that.
I hope that lots of good days are on their way to you, Charlotte! 
Best wishes,
Sanna
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"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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pattik
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Re: med plan seems to be working
« Reply #6 on: Sep 6th, 2006, 8:18am » |
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Charlotte, thanks for the informative update. It's always great to hear of a little success. 
Patti
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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