Author |
Topic: CH study in Dallas Texas (Read 906 times) |
|
CH_investigator
New Board Newbie
Posts: 4
|
 |
CH study in Dallas Texas
« on: Aug 17th, 2006, 2:48pm » |
 Quote  Modify
|
Notice for North Texas CH sufferers:
Enrollment into a CH study by a headache speciality clinic ran by Neurology doctors. The study will start in November, please contact Tosha or Amy at 214-345-1299 to be added on the list. You must be able to come to Dallas for three clinic visits (initial and two 2 week interval follow up visits) to be in the study. The study involves a new medication available in the US which is similiar in mechanism of action as melatonin.
|
|
 IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender: 
Posts: 26213
|
|
Re: CH study in Dallas Texas
« Reply #1 on: Aug 17th, 2006, 6:35pm » |
Quote Modify
|
on Aug 17th, 2006, 2:48pm, CH_investigator wrote:| The study involves a new medication available in the US which is similiar in mechanism of action as melatonin. |
|
Whats it called?
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
CH_investigator
New Board Newbie
Posts: 4
|
|
Re: CH study in Dallas Texas
« Reply #2 on: Aug 17th, 2006, 6:41pm » |
Quote Modify
|
The study medication is called rozerem or generic ramelteon. Rozerem has recently been FDA approved for insomnia. The medication acts at the same receptors as melatonin.
There have several studies in CH with melatonon indicating that the melatonin may help reduce duration and number of attacks in the cluster episode.
|
|
IP Logged |
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender:
Posts: 26213
|
|
Re: CH study in Dallas Texas
« Reply #3 on: Aug 17th, 2006, 6:58pm » |
Quote Modify
|
There are plenty of clusterheads living in Texas, prehaps the will respond here.
In the mean time try checking the archives of this meds board. I came up with this link real quick.
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1136184258
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
chewy
Guest
|
|
Re: CH study in Dallas Texas
« Reply #4 on: Aug 17th, 2006, 7:01pm » |
Quote Modify
 Remove
|
Quote:
I think they are called neurologists.
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: CH study in Dallas Texas
« Reply #5 on: Aug 17th, 2006, 7:03pm » |
Quote Modify
|
What clinic is it?
Regards,
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
  
Gender:
Posts: 6458
|
|
Re: CH study in Dallas Texas
« Reply #7 on: Aug 17th, 2006, 7:33pm » |
Quote Modify
|
I was perscribed that from NECH........never did it though.
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
rhino
New Board Newbie
I love YaBB 1G - SP1!
Posts: 50
|
|
Re: CH study in Dallas Texas
« Reply #8 on: Aug 17th, 2006, 8:29pm » |
Quote Modify
|
I'm going to Dallas,, hell nothing else is working, I was looking for another Doc anyway. . Would have made the 3rd one this cycle.
I will stay in touch and let you guys know whats up. 
|
| « Last Edit: Aug 17th, 2006, 10:59pm by rhino » |
IP Logged |
|
|
|
CH_investigator
New Board Newbie
Posts: 4
|
|
Re: CH study in Dallas Texas
« Reply #9 on: Aug 17th, 2006, 11:01pm » |
Quote Modify
|
One of the problems with melatonin is that we assume 9mg is 9mg. But there is much less quality control with over the counter products. A dose may potential vary widely in potency. Some brands have better consistency than others.
This adds validity the findings that may be concluded from a study with a medication such as rozerem which is precription and is regulated for purity and accurate strength.
|
|
IP Logged |
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: CH study in Dallas Texas
« Reply #10 on: Aug 18th, 2006, 12:57am » |
Quote Modify
|
I called several times, trying many of the automated options. The automated answering system (never could get through to a human being) answers as Neurology Specialists of Dallas. One of the alternate numbers you hear when going through their instructions and options comes back as the Dallas Headache Association using a reverse phone directory search.
I'm still waiting for a call-back to confirm the status of the clinical trial.
|
|
IP Logged |
|
|
|
SophiaK
CH.com Alumnus
New Board Junior
I love YaBB 1G - SP1!
Posts: 88
|
|
Re: CH study in Dallas Texas
« Reply #11 on: Aug 18th, 2006, 11:57am » |
Quote Modify
|
Melatonin gives me bad dreams, I had to stop taking it. It did not do for me what it has done for so many on this board. It didn't get me through the night, still had 2 hits and woke exhausted.
I wonder if their new formula would do the same.
|
|
IP Logged |
|
|
|
CH_investigator
New Board Newbie
Posts: 4
|
|
Re: CH study in Dallas Texas
« Reply #12 on: Aug 18th, 2006, 1:06pm » |
Quote Modify
|
Regarding clinic return calls, the rozerem study will not start until November. You may leave a message for indication of your interest or, better yet, leave a posting here. But we are not authorized to return clinic calls regarding the study yet.
|
|
IP Logged |
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: CH study in Dallas Texas
« Reply #13 on: Aug 18th, 2006, 2:02pm » |
Quote Modify
|
on Aug 17th, 2006, 2:48pm, CH_investigator wrote:| The study will start in November, please contact Tosha or Amy at 214-345-1299 to be added on the list.. |
|
on Aug 18th, 2006, 1:06pm, CH_investigator wrote:| You may leave a message for indication of your interest or, better yet, leave a posting here. But we are not authorized to return clinic calls regarding the study yet. |
|
You are authorized to recruit but can't return phone calls?
A little confusing. You can answer questions about the study online on a public message board but not in a private phone call?
Bobw
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: CH study in Dallas Texas
« Reply #14 on: Aug 18th, 2006, 2:08pm » |
Quote Modify
|
on Aug 18th, 2006, 11:57am, SophiaK wrote:| I wonder if their new formula would do the same. |
|
I don't know. The new formula shows a guy talking to Abe Lincoln and a gopher. Might depend on what you consider a bad dream. 
I've seen the commercial a bunch of times and I figured the guy that came up with the idea must have used pretty high doses of melatonin. Maybe he/she was a cluster sufferer.
Not knockin the study.....its just a weird commercial
Bobw
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
chewy
Guest
|
|
Re: CH study in Dallas Texas
« Reply #15 on: Aug 19th, 2006, 9:47pm » |
Quote Modify
Remove
|
Quote:| But we are not authorized to return clinic calls regarding the study yet |
|
Who is we? What is your role in this study?
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: CH study in Dallas Texas
« Reply #16 on: Aug 19th, 2006, 10:15pm » |
Quote Modify
|
on Aug 19th, 2006, 9:47pm, chewy wrote:
Who is we? What is your role in this study? |
|
Gettin' some weird vibes with this thing. It ain't passin' the smell test.
Did you ever call Gator back? I know you "aren't authorized to return phone calls", but his is one that you might want to reconsider.
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: CH study in Dallas Texas
« Reply #17 on: Aug 20th, 2006, 1:05am » |
Quote Modify
|
Sometimes it takes a while for messages to go up the chain and for answers to come back down.
Let's give this a little more time before we start sharpening the sticks.
Please.
|
|
IP Logged |
|
|
|
George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
Gender:
Posts: 4222
|
|
Re: CH study in Dallas Texas
« Reply #18 on: Aug 20th, 2006, 2:29am » |
Quote Modify
|
on Aug 20th, 2006, 1:05am, Gator wrote:Sometimes it takes a while for messages to go up the chain and for answers to come back down.
Let's give this a little more time before we start sharpening the sticks.
Please.
|
|
Thanks, Gator. You're right. Perhaps I'm jumping the gun.
I think things could definitely be made a bit less murky, however. I don't have a lot of tolerance for cloak and dagger stuff.
George
|
|
IP Logged |
Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
|
|
|
rhino
New Board Newbie
I love YaBB 1G - SP1!
Posts: 50
|
|
Re: CH study in Dallas Texas
« Reply #19 on: Aug 20th, 2006, 5:26pm » |
Quote Modify
|
You may leave a message for indication of your interest or, better yet, leave a posting here. But we are not authorized to return clinic calls regarding the study yet. [/quote]
With this kind of arrogance, I can only assume CH_investigator is a Neurologist. 
|
|
IP Logged |
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender: 
Posts: 1932
|
|
Re: CH study in Dallas Texas
« Reply #20 on: Aug 22nd, 2006, 6:47pm » |
Quote Modify
|
Are we suspicious by nature, do ya think? I emailed the person to see if they were working or needed info, and was informed of the study & asked if I wanted to participate, so (not direct but) the answer was working.
I don't think I can go to texas.
Charlotte
|
| « Last Edit: Aug 22nd, 2006, 6:50pm by Charlotte » |
IP Logged |
|
|
|
rhino
New Board Newbie
I love YaBB 1G - SP1!
Posts: 50
|
|
Re: CH study in Dallas Texas
« Reply #21 on: Aug 22nd, 2006, 7:35pm » |
Quote Modify
|
Charlotte
What is their e-mail adress,, I will crawl on my hands &
knees, kiss their feet and pay them untold amounts of money if they can help me get rid of these headaches. 
|
|
IP Logged |
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1932
|
|
Re: CH study in Dallas Texas
« Reply #22 on: Aug 22nd, 2006, 9:43pm » |
Quote Modify
|
I don't want to break any rules, so I'll tell you where it is. It is in the profile if you click on his/her name to the upper left.
|
|
IP Logged |
|
|
|
rhino
New Board Newbie
I love YaBB 1G - SP1!
Posts: 50
|
|
Re: CH study in Dallas Texas
« Reply #24 on: Aug 23rd, 2006, 8:08pm » |
Quote Modify
|
Thanks Charlotte,, I got it..
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss